Home and Ambulatory Artificial Nutrition (NADYA) Group Report. Home parenteral nutrition in Spain, 2018

Introduction: Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2018 Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group...

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Detalles Bibliográficos
Autores: Wanden-Berghe Lozano, Carmina, Cuerda Compes, Cristina, Maiz Jimenez, Maria, Pereira Cunill, Jose Luis, Ramos Boluda, Esther, Gomez Candela, Carmen, Virgili Casas, Maria Nuria, Burgos Pelaez, Rosa, de Luis Roman, Daniel A, Penacho Lazaro, M Angeles, Sanchez Martos, Eva Angeles, Martinez Faedo, Ceferino, Diaz Guardiola, Patricia, Alvarez Hernandez, Julia, Zugasti Murillo, Ana, Campos Martin, Cristina, Sanz Paris, Alejandro, Martin Fontalba, Maria de Los Angeles, Lobo-Tamer, Gabriela, Matia Martin, Maria Pilar, Carabana Perez, Fatima, Martin Folgueras, Tomas, Martin Palmero, M Angela, Luengo Perez, Luis Miguel, Sanchez-Vilar Burdiel, Olga, Martinez Costa, Cecilia, Tejera, Cristina, Martinez Ramirez, Maria Jose, Garcia Delgado, Yaiza, Ponce Gonzalez, Miguel Angel, Mauri Roca, Silvia, Garcia Zafra, Maria Victoria, German Diaz, Marta, Romero, Victoria, Molina Baeza, Begona, Gonzalo Marin, Montserrat, Irles Rocamora, Jose Antonio, Sanchez Sanchez, Rebeca, Apezetxea Celaya, Antxon, Joaquin Ortiz, Clara, Suarez Llanos, Jose Pablo, Pintor de la Maza, Begona, Leyes Garcia, Pere, Gil Martinez, M Carmen, Carrera Santaliestra, Maria Jose
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2020
País:España
Institución:INCLIVA
Repositorio:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
OAI Identifier:oai:incliva.fundanetsuite.com:p4447
Acceso en línea:https://incliva.portalinvestigacion.com/publicaciones/4447
Access Level:acceso abierto
Palabra clave:Home parenteral nutrition
Parenteral nutrition
Nutritional support
Home care services
Records
Epidemiology
Descripción
Sumario:Introduction: Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.com) for the year 2018 Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was "palliative cancer" (22.0%), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.

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