Home and Ambulatory Artificial Nutrition (NADYA) group report. Home parenteral nutrition in Spain, 2018

Aim: To communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.  com) for the year 2018. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry fr...

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Detalles Bibliográficos
Autores: Wanden-Berghe, Carmina, Compes, Cristina Cuerda, Maíz Jiménez, María Irene, Pereira Cunill, José Luis, Ramos Boluda, Esther, Gómez Candela, Carmen, Virgili Casa, Nuria, Burgos Peláez, Rosa, de Luis Román, Daniel Antonio, Penacho Lázaro, Ma Ángeles, Sánchez Martos, Eva Ángeles, Martínez Faedo, Ceferino, Díaz Guardiola, Patricia, Álvarez Hernández, Julia, Zugasti Murillo, Ana, Campos Martín, Cristina, Sanz Paris, Alejandro, de los Ángeles Martín Fontalba, María, Lobo, Gabriela, Matía Martín, Pilar, Carabaña Pérez, Fátima, Martín Folgueras, Tomás, Martín Palmero, Ma Ángela, Luengo Pérez, Luis Miguel, Sánchez-Vilar Burdiel, Olga Margarita, Martínez Costa, Cecilia, Tejera Pérez, Cristina, Martínez Ramírez, María José, García Delgado, Yaiza, Ponce González, Miguel, Mauri Roca, Silvia, García Zafra, Ma Victoria, Germán Díaz, Marta, Romero Gabino, Victoria, Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Irles Rocamora, José Antonio, Sánchez Sánchez, Rebeca, Apezetxea Celaya, Antxón, Ortiz, Clara Joaquín, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes García, Pere, Gil Martínez, Ma Carmen, Carrera Santaliestra, María José
Tipo de recurso: artículo
Fecha de publicación:2020
País:España
Institución:Universidad Autónoma de Madrid
Repositorio:Biblos-e Archivo. Repositorio Institucional de la UAM
Idioma:español
OAI Identifier:oai:repositorio.uam.es:10486/693488
Acceso en línea:http://hdl.handle.net/10486/693488
https://dx.doi.org/10.20960/nh.02976
Access Level:acceso abierto
Palabra clave:Epidemiology
Home care services
Home parenteral nutrition
Nutritional support
Parenteral nutrition
Records
Medicina
Descripción
Sumario:Aim: To communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe.  com) for the year 2018. Material and methods: Descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018.  Results: There were 278 patients from 45 Spanish hospitals (54.7% women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was “palliative cancer” (22.0%), followed by “others”. In children it was Hirschsprung’s disease together with necrotizing enterocolitis, with four cases (17.4%). The first indication was short bowel syndrome in both children (60.9%) and adults (35.7%). The most frequently used type of catheter was tunneled in both children (81.0%) and adults (41.1%). Ending 75 episodes, the most frequent cause was death (52.0%) and change to oral feeding (33.3%). Conclusions: The number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.

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