Home and Ambulatory Artificial Nutrition (NADYA) Group Report. Home parenteral nutrition in Spain, 2018

Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry fro...

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Detalles Bibliográficos
Autores: Wanden-Berghe, C, Compes, CC, Jimenez, MIM, Cunill, JLP, Boluda, ER, Candela, CG, Casas, NV, Pelaez, RB, Roman, DAD, Lazaro, MAP, Martos, EAS, Faedo, CM, Guardiola, PD, Hernandez, JA, Murillo, AZ, Martin, CC, Paris, AS, Fontalba, MDM, Lobo, G, Martin, PM, Perez, FC, Folgueras, TM, Palmero, MAM, Perez, LML, Burdiel, OSV, Costa, CM, Perez, CT, Ramirez, MJM, Delgado, YG, Gonzalez, MAP, Roca, SM, Zafra, MVG, Diaz, MG, Gabino, VR, Baeza, BM, Marin, MG, Rocamora, JAI, Sanchez, RS, Celaya, AA, Ortiz, CJ, Llanos, JPS, de la Maza, BP, Garcia, PL, Martinez, MCG, Santaliestra, MJC
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2020
País:España
Institución:Institut d'Investigació i Innovació Parc Taulí (I3PT)
Repositorio:r-I3PT. Repositorio Institucional Producción Científica del Institut d'Investigació i Innovació Parc Taulí
OAI Identifier:oai:i3pt.fundanetsuite.com:p2694
Acceso en línea:https://i3pt.portalinvestigacion.com/publicaciones/2694
Access Level:acceso abierto
Palabra clave:Home parenteral nutrition
Parenteral nutrition
Nutritional support
Home care services
Records
Epidemiology
Descripción
Sumario:Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7 % women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was " palliative cancer" (22.0 %), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4 %). The first indication was short bowel syndrome in both children (60.9 %) and adults (35.7 %). The most frequently used type of catheter was tunneled in both children (81.0 %) and adults (41.1 %). Ending 75 episodes, the most frequent cause was death (52.0 %) and change to oral feeding (33.3 %). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.