Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists

Introduction: Palliative care in neurodegenerative diseases is useful but underused. The objec- tive of this study is to know how palliative care (PC) is applied in our country in order to identify limitations and unmet needs. Materials and methods: It is a descriptive, observational, cross-sectiona...

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Authors: Saúco, MA, García-Ramos, R, Ramírez, IL, García, FC, Bueno, JF, Martínez, SM, García, BG, Moya-Martínez, A, Santos-García, D
Format: article
Status:Published version
Publication Date:2024
Country:España
Institution:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
Repository:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
OAI Identifier:oai:isabial.fundanetsuite.com:p11243
Online Access:https://isabial.portalinvestigacion.com/publicaciones11243
https://www.sciencedirect.com/science/article/pii/S0213485321002577?via%3Dihub
Access Level:Open access
Keyword:Palliative
Treatment
Parkinson's disease
Survey
Movement disorders
id ES_e578fa80df80930c3926c5e8a4cb656e
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repository_id_str
spelling Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologistsSaúco, MAGarcía-Ramos, RRamírez, ILGarcía, FCBueno, JFMartínez, SMGarcía, BGMoya-Martínez, ASantos-García, DPalliativeTreatmentParkinson's diseaseSurveyMovement disordersIntroduction: Palliative care in neurodegenerative diseases is useful but underused. The objec- tive of this study is to know how palliative care (PC) is applied in our country in order to identify limitations and unmet needs. Materials and methods: It is a descriptive, observational, cross-sectional study, anonymous survey type of 20 questions, directed and answered by neurologists dedicated to TM in Spain. Results: 58 responses were obtained from neurologists from 15 autonomous communities. 69% answered that they did not have a specialized TM nursing facility but did have a PC team in their center (81%). No specific protocol for CP in TM was identified. All except one neurologist stated that they lacked sufficient training in PC, the main training need being the "advance directi- ves explanation". Only 1 in 4 neurologists answered routinely explaining advance healthcare planning to their patients, recognizing up to 84.5% of neurologists not knowing how to assess the patient's competence. 60.3% of those surveyed answered that between 10 and 30% of their patients would be candidates for PC, although 1 in 3 said they were not clear when to refer the patient to PC. 100% of neurologists affirmed the priority need to implement PC protocols in TM. Conclusions: Our study shows a formative deficit in PC in TM and in the care of the patient with TM and their environment, and should serve as a starting point to develop consensual care protocols. (c) 2021 Sociedad Espa & ntilde;ola de Neurolog & iacute;a. Published by Elsevier Espa & ntilde;a, S.L.U. This is an open access article under the CC BY -NC -ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/).ELSEVIER ESPANA SLU2024info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://isabial.portalinvestigacion.com/publicaciones11243https://www.sciencedirect.com/science/article/pii/S0213485321002577?via%3DihubNEUROLOGIAISSN: 02134853ISSNe: 15781968reponame:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicanteinstname:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)Españolinfo:eu-repo/semantics/openAccessoai:isabial.fundanetsuite.com:p112432026-06-12T10:20:37Z
dc.title.none.fl_str_mv Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
title Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
spellingShingle Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
Saúco, MA
Palliative
Treatment
Parkinson's disease
Survey
Movement disorders
title_short Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
title_full Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
title_fullStr Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
title_full_unstemmed Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
title_sort Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
dc.creator.none.fl_str_mv Saúco, MA
García-Ramos, R
Ramírez, IL
García, FC
Bueno, JF
Martínez, SM
García, BG
Moya-Martínez, A
Santos-García, D
author Saúco, MA
author_facet Saúco, MA
García-Ramos, R
Ramírez, IL
García, FC
Bueno, JF
Martínez, SM
García, BG
Moya-Martínez, A
Santos-García, D
author_role author
author2 García-Ramos, R
Ramírez, IL
García, FC
Bueno, JF
Martínez, SM
García, BG
Moya-Martínez, A
Santos-García, D
author2_role author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Palliative
Treatment
Parkinson's disease
Survey
Movement disorders
topic Palliative
Treatment
Parkinson's disease
Survey
Movement disorders
description Introduction: Palliative care in neurodegenerative diseases is useful but underused. The objec- tive of this study is to know how palliative care (PC) is applied in our country in order to identify limitations and unmet needs. Materials and methods: It is a descriptive, observational, cross-sectional study, anonymous survey type of 20 questions, directed and answered by neurologists dedicated to TM in Spain. Results: 58 responses were obtained from neurologists from 15 autonomous communities. 69% answered that they did not have a specialized TM nursing facility but did have a PC team in their center (81%). No specific protocol for CP in TM was identified. All except one neurologist stated that they lacked sufficient training in PC, the main training need being the "advance directi- ves explanation". Only 1 in 4 neurologists answered routinely explaining advance healthcare planning to their patients, recognizing up to 84.5% of neurologists not knowing how to assess the patient's competence. 60.3% of those surveyed answered that between 10 and 30% of their patients would be candidates for PC, although 1 in 3 said they were not clear when to refer the patient to PC. 100% of neurologists affirmed the priority need to implement PC protocols in TM. Conclusions: Our study shows a formative deficit in PC in TM and in the care of the patient with TM and their environment, and should serve as a starting point to develop consensual care protocols. (c) 2021 Sociedad Espa & ntilde;ola de Neurolog & iacute;a. Published by Elsevier Espa & ntilde;a, S.L.U. This is an open access article under the CC BY -NC -ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/).
publishDate 2024
dc.date.none.fl_str_mv 2024
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://isabial.portalinvestigacion.com/publicaciones11243
https://www.sciencedirect.com/science/article/pii/S0213485321002577?via%3Dihub
url https://isabial.portalinvestigacion.com/publicaciones11243
https://www.sciencedirect.com/science/article/pii/S0213485321002577?via%3Dihub
dc.language.none.fl_str_mv Español
language_invalid_str_mv Español
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv ELSEVIER ESPANA SLU
publisher.none.fl_str_mv ELSEVIER ESPANA SLU
dc.source.none.fl_str_mv NEUROLOGIA
ISSN: 02134853
ISSNe: 15781968
reponame:r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
instname:Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
instname_str Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL)
reponame_str r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
collection r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,812455

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