Palliative care management in patients with Parkinson's disease and other movement disorders. National survey to neurologists
Introduction: Palliative care in neurodegenerative diseases is useful but underused. The objec- tive of this study is to know how palliative care (PC) is applied in our country in order to identify limitations and unmet needs. Materials and methods: It is a descriptive, observational, cross-sectiona...
| Autores: | , , , , , , , , |
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| Tipo de documento: | artigo |
| Estado: | Versão publicada |
| Data de publicação: | 2024 |
| País: | España |
| Recursos: | Instituto de Investigación Biomédica y Sanitaria de Alicante (ISABIAL) |
| Repositório: | r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante |
| OAI Identifier: | oai:isabial.fundanetsuite.com:p11243 |
| Acesso em linha: | https://isabial.portalinvestigacion.com/publicaciones11243 https://www.sciencedirect.com/science/article/pii/S0213485321002577?via%3Dihub |
| Access Level: | Acceso aberto |
| Palavra-chave: | Palliative Treatment Parkinson's disease Survey Movement disorders |
| Resumo: | Introduction: Palliative care in neurodegenerative diseases is useful but underused. The objec- tive of this study is to know how palliative care (PC) is applied in our country in order to identify limitations and unmet needs. Materials and methods: It is a descriptive, observational, cross-sectional study, anonymous survey type of 20 questions, directed and answered by neurologists dedicated to TM in Spain. Results: 58 responses were obtained from neurologists from 15 autonomous communities. 69% answered that they did not have a specialized TM nursing facility but did have a PC team in their center (81%). No specific protocol for CP in TM was identified. All except one neurologist stated that they lacked sufficient training in PC, the main training need being the "advance directi- ves explanation". Only 1 in 4 neurologists answered routinely explaining advance healthcare planning to their patients, recognizing up to 84.5% of neurologists not knowing how to assess the patient's competence. 60.3% of those surveyed answered that between 10 and 30% of their patients would be candidates for PC, although 1 in 3 said they were not clear when to refer the patient to PC. 100% of neurologists affirmed the priority need to implement PC protocols in TM. Conclusions: Our study shows a formative deficit in PC in TM and in the care of the patient with TM and their environment, and should serve as a starting point to develop consensual care protocols. (c) 2021 Sociedad Espa & ntilde;ola de Neurolog & iacute;a. Published by Elsevier Espa & ntilde;a, S.L.U. This is an open access article under the CC BY -NC -ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/). |
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