Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific q...

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Detalles Bibliográficos
Autores: Marron, SE, Gomez-Barrera, M, Aragones, LT, Goni-Navarro, A, Vilarrasa-Rull, E, Diaz-Diaz, RM, Garcia-Latasa De Aranibar, FJ, Campos-Rodenas, R, Fuentelsaz-Del Barrio, V, Gilaberte-Calzada, Y, Gracia-Cazana, T, Morales-Callaghan, AM, Ros-Abarca, S, Madrid-Alvarez, MB, Puig, L
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2021
País:España
Institución:Institut d’Investigació Biomèdica Sant Pau (IIB Sant Pau)
Repositorio:r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
OAI Identifier:oai:iibsantpau.fundanetsuite.com:p8197
Acceso en línea:https://iibsantpau.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=8197
https://ddd.uab.cat/record/269675
Access Level:acceso abierto
Palabra clave:hidradenitis suppurativa
quality of life
patient reported outcome measure
psychometrics
validation
Descripción
Sumario:To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.

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