Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale
Evaluation of clinical genetic services is challenging due to the nature of their interventions. The Genetic Counseling Outcome Scale (GCOS-24), a patient-reported outcome measure, was developed to measure empowerment, an important patient-reported outcome from genetic counseling. Previously, we tra...
| Autores: | , , , , , , , |
|---|---|
| Tipo de recurso: | artículo |
| Fecha de publicación: | 2021 |
| País: | España |
| Institución: | Universidad Complutense de Madrid (UCM) |
| Repositorio: | Docta Complutense |
| Idioma: | inglés |
| OAI Identifier: | oai:docta.ucm.es:20.500.14352/109297 |
| Acceso en línea: | https://hdl.handle.net/20.500.14352/109297 |
| Access Level: | acceso abierto |
| Palabra clave: | 575 519.2 Clinical genetics services Empowerment Evaluation Genetic counseling Patient-reported outcome measure Validation Genética Estadística 2409 Genética 2404.01 Bioestadística |
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Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome ScaleLleuger-Pujol, RoserOrtega Castelló, EduardoFernández Franco, LorenzoEspinel Vallejo, Manuel EliecerMuñoz Cabello, PatriciaSantos Simarro, FernandoMcAllister, MarionGarcía-Miñaúr, Sixto575519.2Clinical genetics servicesEmpowermentEvaluationGenetic counselingPatient-reported outcome measureValidationGenéticaEstadística2409 Genética2404.01 BioestadísticaEvaluation of clinical genetic services is challenging due to the nature of their interventions. The Genetic Counseling Outcome Scale (GCOS-24), a patient-reported outcome measure, was developed to measure empowerment, an important patient-reported outcome from genetic counseling. Previously, we translated and adapted GCOS-24 for use in Spain, but neither test–retest reliability nor structural and construct validity were assessed at that time. In the present study, we set out to test the reliability and validity of the Spanish adaptation of the GCOS-24 against already validated Spanish language measures of satisfaction with life, anxiety, and health locus of control. 880 patients/families who attended the genetics clinic were invited to participate in a online survey. 201 participants (23%) completed the four questionnaires at the first timepoint, and 59 of these (29%) completed GCOS-24 again the second timepoint, 2–4 weeks later. Test–retest reliability was confirmed, with no significant differences between responses to GCOS-24 at the first and second timepoints and good internal consistency. Convergent validity was confirmed between GCOS-24 and measures of satisfaction with life and anxiety but not with measures of health locus of control. For the structural and construct validation, an exploratory factor analysis was performed. The resulting factorial structure of GCOS-24 consists of 6 factors that accumulate 68% of the variance shared by the 21 items that remained in the model. We applied the factor structure of the three validated measures to the available data and analyzed the correlation between factors of GCOS-24 and the other scales. The results showed significant and consistent correlation with factors of the satisfaction with life and anxiety scales but no significant correlation with internal health locus of control. The use of the Spanish adaptation of GCOS-24 in other genetic clinics in Spain will help to validate it further. This study contributes to the international validation of GCOS-24 to evaluate the quality of genetic counseling in Europe.National Society of Genetic CounselorsAustin, JehannineUniversidad Complutense de Madrid20212021-05-2620212021-05-26journal articlehttp://purl.org/coar/resource_type/c_6501AMhttp://purl.org/coar/version/c_ab4af688f83e57aainfo:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/20.500.14352/109297reponame:Docta Complutenseinstname:Universidad Complutense de Madrid (UCM)Inglésengopen accesshttp://purl.org/coar/access_right/c_abf2Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessoai:docta.ucm.es:20.500.14352/1092972026-06-02T12:44:21Z |
| dc.title.none.fl_str_mv |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| title |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| spellingShingle |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale Lleuger-Pujol, Roser 575 519.2 Clinical genetics services Empowerment Evaluation Genetic counseling Patient-reported outcome measure Validation Genética Estadística 2409 Genética 2404.01 Bioestadística |
| title_short |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| title_full |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| title_fullStr |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| title_full_unstemmed |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| title_sort |
Further validation and psychometric properties of the spanish adaptation of the Genetic Counseling Outcome Scale |
| dc.creator.none.fl_str_mv |
Lleuger-Pujol, Roser Ortega Castelló, Eduardo Fernández Franco, Lorenzo Espinel Vallejo, Manuel Eliecer Muñoz Cabello, Patricia Santos Simarro, Fernando McAllister, Marion García-Miñaúr, Sixto |
| author |
Lleuger-Pujol, Roser |
| author_facet |
Lleuger-Pujol, Roser Ortega Castelló, Eduardo Fernández Franco, Lorenzo Espinel Vallejo, Manuel Eliecer Muñoz Cabello, Patricia Santos Simarro, Fernando McAllister, Marion García-Miñaúr, Sixto |
| author_role |
author |
| author2 |
Ortega Castelló, Eduardo Fernández Franco, Lorenzo Espinel Vallejo, Manuel Eliecer Muñoz Cabello, Patricia Santos Simarro, Fernando McAllister, Marion García-Miñaúr, Sixto |
| author2_role |
author author author author author author author |
| dc.contributor.none.fl_str_mv |
Austin, Jehannine Universidad Complutense de Madrid |
| dc.subject.none.fl_str_mv |
575 519.2 Clinical genetics services Empowerment Evaluation Genetic counseling Patient-reported outcome measure Validation Genética Estadística 2409 Genética 2404.01 Bioestadística |
| topic |
575 519.2 Clinical genetics services Empowerment Evaluation Genetic counseling Patient-reported outcome measure Validation Genética Estadística 2409 Genética 2404.01 Bioestadística |
| description |
Evaluation of clinical genetic services is challenging due to the nature of their interventions. The Genetic Counseling Outcome Scale (GCOS-24), a patient-reported outcome measure, was developed to measure empowerment, an important patient-reported outcome from genetic counseling. Previously, we translated and adapted GCOS-24 for use in Spain, but neither test–retest reliability nor structural and construct validity were assessed at that time. In the present study, we set out to test the reliability and validity of the Spanish adaptation of the GCOS-24 against already validated Spanish language measures of satisfaction with life, anxiety, and health locus of control. 880 patients/families who attended the genetics clinic were invited to participate in a online survey. 201 participants (23%) completed the four questionnaires at the first timepoint, and 59 of these (29%) completed GCOS-24 again the second timepoint, 2–4 weeks later. Test–retest reliability was confirmed, with no significant differences between responses to GCOS-24 at the first and second timepoints and good internal consistency. Convergent validity was confirmed between GCOS-24 and measures of satisfaction with life and anxiety but not with measures of health locus of control. For the structural and construct validation, an exploratory factor analysis was performed. The resulting factorial structure of GCOS-24 consists of 6 factors that accumulate 68% of the variance shared by the 21 items that remained in the model. We applied the factor structure of the three validated measures to the available data and analyzed the correlation between factors of GCOS-24 and the other scales. The results showed significant and consistent correlation with factors of the satisfaction with life and anxiety scales but no significant correlation with internal health locus of control. The use of the Spanish adaptation of GCOS-24 in other genetic clinics in Spain will help to validate it further. This study contributes to the international validation of GCOS-24 to evaluate the quality of genetic counseling in Europe. |
| publishDate |
2021 |
| dc.date.none.fl_str_mv |
2021 2021-05-26 2021 2021-05-26 |
| dc.type.none.fl_str_mv |
journal article http://purl.org/coar/resource_type/c_6501 AM http://purl.org/coar/version/c_ab4af688f83e57aa |
| dc.type.openaire.fl_str_mv |
info:eu-repo/semantics/article |
| format |
article |
| dc.identifier.none.fl_str_mv |
https://hdl.handle.net/20.500.14352/109297 |
| url |
https://hdl.handle.net/20.500.14352/109297 |
| dc.language.none.fl_str_mv |
Inglés eng |
| language_invalid_str_mv |
Inglés |
| language |
eng |
| dc.rights.none.fl_str_mv |
open access http://purl.org/coar/access_right/c_abf2 Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| dc.rights.openaire.fl_str_mv |
info:eu-repo/semantics/openAccess |
| rights_invalid_str_mv |
open access http://purl.org/coar/access_right/c_abf2 Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ |
| eu_rights_str_mv |
openAccess |
| dc.format.none.fl_str_mv |
application/pdf |
| dc.publisher.none.fl_str_mv |
National Society of Genetic Counselors |
| publisher.none.fl_str_mv |
National Society of Genetic Counselors |
| dc.source.none.fl_str_mv |
reponame:Docta Complutense instname:Universidad Complutense de Madrid (UCM) |
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Universidad Complutense de Madrid (UCM) |
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Docta Complutense |
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Docta Complutense |
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