Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence

Maurer, Marcus; Aberer, Werner; Agondi, Rosana; Al‐Ahmad, Mona; Al‐Nesf, Maryam Ali; Ansotegui, Ignacio; Arnaout, Rand; Arruda, Luisa Karla; Asero, Riccardo; Aygören‐Pürsün, Emel; Banerji, Aleena; Kumaran, M. Sendhil; Hide, Michihiro; Ilina, Natalia; Inomata, Naoko; Ritchie, Bruce; Jakob, Thilo; Kleinheinz, Andreas; Josviack, Dario O.; Kang, Hye‐Ryun; Kaplan, Allen; Serpa, Faradiba S.; Kasperska‐Zając, Alicja; Larco Sousa, José Ignacio; Kocatürk, Emek; Košnik, Mitja; Krasowska, Dorota; Kulthanan, Kanokvalai; Longhurst, Hilary J.; Riedl, Marc A.; Lumry, William; MacGinnitie, Andrew; Parisi, Claudio A. S.; Magerl, Markus; Makris, Michael P.; Malbrán, Alejandro; Doorn, Martijn; Marsland, Alexander; Nicolay, Jan; Martinez Saguer, Inmaculada; Medina, Iris V.; Meshkova, Raisa; Metz, Martin; Peter, Jonathan Grant; Nishigori, Chikako; Ohsawa, Isao; Özyurt, Kemal; Papadopoulos, Nikolaos G.; Pfützner, Wolfgang; Ben‐Shoshan, Moshe; Popov, Todor; Röckmann‐Helmbach, Heike; Prior, Nieves; Ramon, German D.; Reich, Adam; Boccon‐Gibod, Isabelle; Reshef, Avner; Serra‐Baldrich, Esther; Rudenko, Michael; Salman, Andaç; Sánchez Borges, Mario; Schmid‐Grendelmeier, Peter; Sheikh, Farrukh R.; Bauer Alonso, Andrea; Smith, William; Soria, Angèle; Ye, Young‐Min; Staubach, Petra; Steiner, Urs C.; Stobiecki, Marcin; Craig, Timothy; Sussman, Gordon; Varga, Lilian; Tagka, Anna; Thomsen, Simon Francis; Treudler, Regina; Valle, Solange; Zalewska‐Janowska, Anna; Vázquez, Daniel O.; Wagner, Nicola; Wang, Liangchun; Weber‐Chrysochoou, Christina; Zanichelli, Andrea; Costa, Célia; Zhao, Zuotao; Berardi, Alejandro; Zhi, Yuxiang; Zuberbier, Torsten; Zwiener, Ricardo D.; Gompels, Mark; Castaldo, Anthony; Bork, Konrad; Bernstein, Jonathan A.; Betschel, Stephen; Bindslev‐Jensen, Carsten; Bizjak, Mojca; Bouillet, Laurence; Boysen, Henrik Balle; Brodszki, Nicholas; Broesby‐Olsen, Sigurd; Ensina, Luis Felipe; Busse, Paula; Buttgereit, Thomas; Bygum, Anette; Kessel, Aharon; Caballero, Teresa; Criado, Paulo Ricardo; Campos, Régis A.; Cancian, Mauro; Cherrez Ojeda, Ivan; Cohn, Danny M.; Ertaş, Ragıp; Criado, Roberta F.; Csuka, Dorottya; Dissemond, Joachim; Du‐Thanh, Aurélie; Fabiani, José E.; Katelaris, Constance; Fantini, Claudio; Farkas, Henriette; Ferrucci, Silvia Mariel; Figueras Nart, Ignasi; Fili, Natalia L.; Nasr, Iman; Fomina, Daria; Gonçalo, Margarida; Fukunaga, Atsushi; Gelincik, Asli; Giménez Arnau, Ana; Godse, Kiran; Gotua, Maia; Gower, Richard; Grumach, Anete S.; Guidos Fogelbach, Guillermo

Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence

This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations an...

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Authors:	Maurer, Marcus, Aberer, Werner, Agondi, Rosana, Al‐Ahmad, Mona, Al‐Nesf, Maryam Ali, Ansotegui, Ignacio, Arnaout, Rand, Arruda, Luisa Karla, Asero, Riccardo, Aygören‐Pürsün, Emel, Banerji, Aleena, Kumaran, M. Sendhil, Hide, Michihiro, Ilina, Natalia, Inomata, Naoko, Ritchie, Bruce, Jakob, Thilo, Kleinheinz, Andreas, Josviack, Dario O., Kang, Hye‐Ryun, Kaplan, Allen, Serpa, Faradiba S., Kasperska‐Zając, Alicja, Larco Sousa, José Ignacio, Kocatürk, Emek, Košnik, Mitja, Krasowska, Dorota, Kulthanan, Kanokvalai, Longhurst, Hilary J., Riedl, Marc A., Lumry, William, MacGinnitie, Andrew, Parisi, Claudio A. S., Magerl, Markus, Makris, Michael P., Malbrán, Alejandro, Doorn, Martijn, Marsland, Alexander, Nicolay, Jan, Martinez Saguer, Inmaculada, Medina, Iris V., Meshkova, Raisa, Metz, Martin, Peter, Jonathan Grant, Nishigori, Chikako, Ohsawa, Isao, Özyurt, Kemal, Papadopoulos, Nikolaos G., Pfützner, Wolfgang, Ben‐Shoshan, Moshe, Popov, Todor, Röckmann‐Helmbach, Heike, Prior, Nieves, Ramon, German D., Reich, Adam, Boccon‐Gibod, Isabelle, Reshef, Avner, Serra‐Baldrich, Esther, Rudenko, Michael, Salman, Andaç, Sánchez Borges, Mario, Schmid‐Grendelmeier, Peter, Sheikh, Farrukh R., Bauer Alonso, Andrea, Smith, William, Soria, Angèle, Ye, Young‐Min, Staubach, Petra, Steiner, Urs C., Stobiecki, Marcin, Craig, Timothy, Sussman, Gordon, Varga, Lilian, Tagka, Anna, Thomsen, Simon Francis, Treudler, Regina, Valle, Solange, Zalewska‐Janowska, Anna, Vázquez, Daniel O., Wagner, Nicola, Wang, Liangchun, Weber‐Chrysochoou, Christina, Zanichelli, Andrea, Costa, Célia, Zhao, Zuotao, Berardi, Alejandro, Zhi, Yuxiang, Zuberbier, Torsten, Zwiener, Ricardo D., Gompels, Mark, Castaldo, Anthony, Bork, Konrad, Bernstein, Jonathan A., Betschel, Stephen, Bindslev‐Jensen, Carsten, Bizjak, Mojca, Bouillet, Laurence, Boysen, Henrik Balle, Brodszki, Nicholas, Broesby‐Olsen, Sigurd, Ensina, Luis Felipe, Busse, Paula, Buttgereit, Thomas, Bygum, Anette, Kessel, Aharon, Caballero, Teresa, Criado, Paulo Ricardo, Campos, Régis A., Cancian, Mauro, Cherrez Ojeda, Ivan, Cohn, Danny M., Ertaş, Ragıp, Criado, Roberta F., Csuka, Dorottya, Dissemond, Joachim, Du‐Thanh, Aurélie, Fabiani, José E., Katelaris, Constance, Fantini, Claudio, Farkas, Henriette, Ferrucci, Silvia Mariel, Figueras Nart, Ignasi, Fili, Natalia L., Nasr, Iman, Fomina, Daria, Gonçalo, Margarida, Fukunaga, Atsushi, Gelincik, Asli, Giménez Arnau, Ana, Godse, Kiran, Gotua, Maia, Gower, Richard, Grumach, Anete S., Guidos Fogelbach, Guillermo
Format:	article
Status:	Published version
Publication Date:	2020
Country:	España
Institution:	Universidad de Barcelona
Repository:	Dipòsit Digital de la UB
OAI Identifier:	oai:diposit.ub.edu:2445/174368
Online Access:	https://hdl.handle.net/2445/174368
Access Level:	Open access
Keyword:	Edema angioneuròtic Urticària Angioneurotic edema Urticaria

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repository_id_str
spelling	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and ExcellenceMaurer, MarcusAberer, WernerAgondi, RosanaAl‐Ahmad, MonaAl‐Nesf, Maryam AliAnsotegui, IgnacioArnaout, RandArruda, Luisa KarlaAsero, RiccardoAygören‐Pürsün, EmelBanerji, AleenaKumaran, M. SendhilHide, MichihiroIlina, NataliaInomata, NaokoRitchie, BruceJakob, ThiloKleinheinz, AndreasJosviack, Dario O.Kang, Hye‐RyunKaplan, AllenSerpa, Faradiba S.Kasperska‐Zając, AlicjaLarco Sousa, José IgnacioKocatürk, EmekKošnik, MitjaKrasowska, DorotaKulthanan, KanokvalaiLonghurst, Hilary J.Riedl, Marc A.Lumry, WilliamMacGinnitie, AndrewParisi, Claudio A. S.Magerl, MarkusMakris, Michael P.Malbrán, AlejandroDoorn, MartijnMarsland, AlexanderNicolay, JanMartinez Saguer, InmaculadaMedina, Iris V.Meshkova, RaisaMetz, MartinPeter, Jonathan GrantNishigori, ChikakoOhsawa, IsaoÖzyurt, KemalPapadopoulos, Nikolaos G.Pfützner, WolfgangBen‐Shoshan, MoshePopov, TodorRöckmann‐Helmbach, HeikePrior, NievesRamon, German D.Reich, AdamBoccon‐Gibod, IsabelleReshef, AvnerSerra‐Baldrich, EstherRudenko, MichaelSalman, AndaçSánchez Borges, MarioSchmid‐Grendelmeier, PeterSheikh, Farrukh R.Bauer Alonso, AndreaSmith, WilliamSoria, AngèleYe, Young‐MinStaubach, PetraSteiner, Urs C.Stobiecki, MarcinCraig, TimothySussman, GordonVarga, LilianTagka, AnnaThomsen, Simon FrancisTreudler, ReginaValle, SolangeZalewska‐Janowska, AnnaVázquez, Daniel O.Wagner, NicolaWang, LiangchunWeber‐Chrysochoou, ChristinaZanichelli, AndreaCosta, CéliaZhao, ZuotaoBerardi, AlejandroZhi, YuxiangZuberbier, TorstenZwiener, Ricardo D.Gompels, MarkCastaldo, AnthonyBork, KonradBernstein, Jonathan A.Betschel, StephenBindslev‐Jensen, CarstenBizjak, MojcaBouillet, LaurenceBoysen, Henrik BalleBrodszki, NicholasBroesby‐Olsen, SigurdEnsina, Luis FelipeBusse, PaulaButtgereit, ThomasBygum, AnetteKessel, AharonCaballero, TeresaCriado, Paulo RicardoCampos, Régis A.Cancian, MauroCherrez Ojeda, IvanCohn, Danny M.Ertaş, RagıpCriado, Roberta F.Csuka, DorottyaDissemond, JoachimDu‐Thanh, AurélieFabiani, José E.Katelaris, ConstanceFantini, ClaudioFarkas, HenrietteFerrucci, Silvia MarielFigueras Nart, IgnasiFili, Natalia L.Nasr, ImanFomina, DariaGonçalo, MargaridaFukunaga, AtsushiGelincik, AsliGiménez Arnau, AnaGodse, KiranGotua, MaiaGower, RichardGrumach, Anete S.Guidos Fogelbach, GuillermoEdema angioneuròticUrticàriaAngioneurotic edemaUrticariaThis document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations and regional patient advocates, on why we need an Angioedema Center of Reference and Excellence (ACARE) program and network, and on the accreditation and certification process, governance and funding, and on the interaction with other GA2LEN networks of centers of reference and excellence. The protocols, aims, requirements, and provisions related to becoming a certified CARE are based on (a) the experience of the GA2LEN UCARE network and (b) input from angioedema patients, general practitioners, and angioedema specialists.European Academy of Allergy and Clinical Immunology; John Wiley & Sons Ltd.2020info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2445/174368Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésReproducció del document publicat a: https://doi.org/10.1111/all.14293Allergy, 2020, vol. 75, num. 8, p. 2115-2123https://doi.org/10.1111/all.14293cc by-nc (c) Maurer et al., 2020http://creativecommons.org/licenses/by-nc/3.0/es/info:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/1743682026-05-27T06:46:51Z
dc.title.none.fl_str_mv	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
title	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
spellingShingle	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence Maurer, Marcus Edema angioneuròtic Urticària Angioneurotic edema Urticaria
title_short	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
title_full	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
title_fullStr	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
title_full_unstemmed	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
title_sort	Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence
dc.creator.none.fl_str_mv	Maurer, Marcus Aberer, Werner Agondi, Rosana Al‐Ahmad, Mona Al‐Nesf, Maryam Ali Ansotegui, Ignacio Arnaout, Rand Arruda, Luisa Karla Asero, Riccardo Aygören‐Pürsün, Emel Banerji, Aleena Kumaran, M. Sendhil Hide, Michihiro Ilina, Natalia Inomata, Naoko Ritchie, Bruce Jakob, Thilo Kleinheinz, Andreas Josviack, Dario O. Kang, Hye‐Ryun Kaplan, Allen Serpa, Faradiba S. Kasperska‐Zając, Alicja Larco Sousa, José Ignacio Kocatürk, Emek Košnik, Mitja Krasowska, Dorota Kulthanan, Kanokvalai Longhurst, Hilary J. Riedl, Marc A. Lumry, William MacGinnitie, Andrew Parisi, Claudio A. S. Magerl, Markus Makris, Michael P. Malbrán, Alejandro Doorn, Martijn Marsland, Alexander Nicolay, Jan Martinez Saguer, Inmaculada Medina, Iris V. Meshkova, Raisa Metz, Martin Peter, Jonathan Grant Nishigori, Chikako Ohsawa, Isao Özyurt, Kemal Papadopoulos, Nikolaos G. Pfützner, Wolfgang Ben‐Shoshan, Moshe Popov, Todor Röckmann‐Helmbach, Heike Prior, Nieves Ramon, German D. Reich, Adam Boccon‐Gibod, Isabelle Reshef, Avner Serra‐Baldrich, Esther Rudenko, Michael Salman, Andaç Sánchez Borges, Mario Schmid‐Grendelmeier, Peter Sheikh, Farrukh R. Bauer Alonso, Andrea Smith, William Soria, Angèle Ye, Young‐Min Staubach, Petra Steiner, Urs C. Stobiecki, Marcin Craig, Timothy Sussman, Gordon Varga, Lilian Tagka, Anna Thomsen, Simon Francis Treudler, Regina Valle, Solange Zalewska‐Janowska, Anna Vázquez, Daniel O. Wagner, Nicola Wang, Liangchun Weber‐Chrysochoou, Christina Zanichelli, Andrea Costa, Célia Zhao, Zuotao Berardi, Alejandro Zhi, Yuxiang Zuberbier, Torsten Zwiener, Ricardo D. Gompels, Mark Castaldo, Anthony Bork, Konrad Bernstein, Jonathan A. Betschel, Stephen Bindslev‐Jensen, Carsten Bizjak, Mojca Bouillet, Laurence Boysen, Henrik Balle Brodszki, Nicholas Broesby‐Olsen, Sigurd Ensina, Luis Felipe Busse, Paula Buttgereit, Thomas Bygum, Anette Kessel, Aharon Caballero, Teresa Criado, Paulo Ricardo Campos, Régis A. Cancian, Mauro Cherrez Ojeda, Ivan Cohn, Danny M. Ertaş, Ragıp Criado, Roberta F. Csuka, Dorottya Dissemond, Joachim Du‐Thanh, Aurélie Fabiani, José E. Katelaris, Constance Fantini, Claudio Farkas, Henriette Ferrucci, Silvia Mariel Figueras Nart, Ignasi Fili, Natalia L. Nasr, Iman Fomina, Daria Gonçalo, Margarida Fukunaga, Atsushi Gelincik, Asli Giménez Arnau, Ana Godse, Kiran Gotua, Maia Gower, Richard Grumach, Anete S. Guidos Fogelbach, Guillermo
author	Maurer, Marcus
author_facet	Maurer, Marcus Aberer, Werner Agondi, Rosana Al‐Ahmad, Mona Al‐Nesf, Maryam Ali Ansotegui, Ignacio Arnaout, Rand Arruda, Luisa Karla Asero, Riccardo Aygören‐Pürsün, Emel Banerji, Aleena Kumaran, M. Sendhil Hide, Michihiro Ilina, Natalia Inomata, Naoko Ritchie, Bruce Jakob, Thilo Kleinheinz, Andreas Josviack, Dario O. Kang, Hye‐Ryun Kaplan, Allen Serpa, Faradiba S. Kasperska‐Zając, Alicja Larco Sousa, José Ignacio Kocatürk, Emek Košnik, Mitja Krasowska, Dorota Kulthanan, Kanokvalai Longhurst, Hilary J. Riedl, Marc A. Lumry, William MacGinnitie, Andrew Parisi, Claudio A. S. Magerl, Markus Makris, Michael P. Malbrán, Alejandro Doorn, Martijn Marsland, Alexander Nicolay, Jan Martinez Saguer, Inmaculada Medina, Iris V. Meshkova, Raisa Metz, Martin Peter, Jonathan Grant Nishigori, Chikako Ohsawa, Isao Özyurt, Kemal Papadopoulos, Nikolaos G. Pfützner, Wolfgang Ben‐Shoshan, Moshe Popov, Todor Röckmann‐Helmbach, Heike Prior, Nieves Ramon, German D. Reich, Adam Boccon‐Gibod, Isabelle Reshef, Avner Serra‐Baldrich, Esther Rudenko, Michael Salman, Andaç Sánchez Borges, Mario Schmid‐Grendelmeier, Peter Sheikh, Farrukh R. Bauer Alonso, Andrea Smith, William Soria, Angèle Ye, Young‐Min Staubach, Petra Steiner, Urs C. Stobiecki, Marcin Craig, Timothy Sussman, Gordon Varga, Lilian Tagka, Anna Thomsen, Simon Francis Treudler, Regina Valle, Solange Zalewska‐Janowska, Anna Vázquez, Daniel O. Wagner, Nicola Wang, Liangchun Weber‐Chrysochoou, Christina Zanichelli, Andrea Costa, Célia Zhao, Zuotao Berardi, Alejandro Zhi, Yuxiang Zuberbier, Torsten Zwiener, Ricardo D. Gompels, Mark Castaldo, Anthony Bork, Konrad Bernstein, Jonathan A. Betschel, Stephen Bindslev‐Jensen, Carsten Bizjak, Mojca Bouillet, Laurence Boysen, Henrik Balle Brodszki, Nicholas Broesby‐Olsen, Sigurd Ensina, Luis Felipe Busse, Paula Buttgereit, Thomas Bygum, Anette Kessel, Aharon Caballero, Teresa Criado, Paulo Ricardo Campos, Régis A. Cancian, Mauro Cherrez Ojeda, Ivan Cohn, Danny M. Ertaş, Ragıp Criado, Roberta F. Csuka, Dorottya Dissemond, Joachim Du‐Thanh, Aurélie Fabiani, José E. Katelaris, Constance Fantini, Claudio Farkas, Henriette Ferrucci, Silvia Mariel Figueras Nart, Ignasi Fili, Natalia L. Nasr, Iman Fomina, Daria Gonçalo, Margarida Fukunaga, Atsushi Gelincik, Asli Giménez Arnau, Ana Godse, Kiran Gotua, Maia Gower, Richard Grumach, Anete S. Guidos Fogelbach, Guillermo
author_role	author
author2	Aberer, Werner Agondi, Rosana Al‐Ahmad, Mona Al‐Nesf, Maryam Ali Ansotegui, Ignacio Arnaout, Rand Arruda, Luisa Karla Asero, Riccardo Aygören‐Pürsün, Emel Banerji, Aleena Kumaran, M. Sendhil Hide, Michihiro Ilina, Natalia Inomata, Naoko Ritchie, Bruce Jakob, Thilo Kleinheinz, Andreas Josviack, Dario O. Kang, Hye‐Ryun Kaplan, Allen Serpa, Faradiba S. Kasperska‐Zając, Alicja Larco Sousa, José Ignacio Kocatürk, Emek Košnik, Mitja Krasowska, Dorota Kulthanan, Kanokvalai Longhurst, Hilary J. Riedl, Marc A. Lumry, William MacGinnitie, Andrew Parisi, Claudio A. S. Magerl, Markus Makris, Michael P. Malbrán, Alejandro Doorn, Martijn Marsland, Alexander Nicolay, Jan Martinez Saguer, Inmaculada Medina, Iris V. Meshkova, Raisa Metz, Martin Peter, Jonathan Grant Nishigori, Chikako Ohsawa, Isao Özyurt, Kemal Papadopoulos, Nikolaos G. Pfützner, Wolfgang Ben‐Shoshan, Moshe Popov, Todor Röckmann‐Helmbach, Heike Prior, Nieves Ramon, German D. Reich, Adam Boccon‐Gibod, Isabelle Reshef, Avner Serra‐Baldrich, Esther Rudenko, Michael Salman, Andaç Sánchez Borges, Mario Schmid‐Grendelmeier, Peter Sheikh, Farrukh R. Bauer Alonso, Andrea Smith, William Soria, Angèle Ye, Young‐Min Staubach, Petra Steiner, Urs C. Stobiecki, Marcin Craig, Timothy Sussman, Gordon Varga, Lilian Tagka, Anna Thomsen, Simon Francis Treudler, Regina Valle, Solange Zalewska‐Janowska, Anna Vázquez, Daniel O. Wagner, Nicola Wang, Liangchun Weber‐Chrysochoou, Christina Zanichelli, Andrea Costa, Célia Zhao, Zuotao Berardi, Alejandro Zhi, Yuxiang Zuberbier, Torsten Zwiener, Ricardo D. Gompels, Mark Castaldo, Anthony Bork, Konrad Bernstein, Jonathan A. Betschel, Stephen Bindslev‐Jensen, Carsten Bizjak, Mojca Bouillet, Laurence Boysen, Henrik Balle Brodszki, Nicholas Broesby‐Olsen, Sigurd Ensina, Luis Felipe Busse, Paula Buttgereit, Thomas Bygum, Anette Kessel, Aharon Caballero, Teresa Criado, Paulo Ricardo Campos, Régis A. Cancian, Mauro Cherrez Ojeda, Ivan Cohn, Danny M. Ertaş, Ragıp Criado, Roberta F. Csuka, Dorottya Dissemond, Joachim Du‐Thanh, Aurélie Fabiani, José E. Katelaris, Constance Fantini, Claudio Farkas, Henriette Ferrucci, Silvia Mariel Figueras Nart, Ignasi Fili, Natalia L. Nasr, Iman Fomina, Daria Gonçalo, Margarida Fukunaga, Atsushi Gelincik, Asli Giménez Arnau, Ana Godse, Kiran Gotua, Maia Gower, Richard Grumach, Anete S. Guidos Fogelbach, Guillermo
author2_role	author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author author
dc.subject.none.fl_str_mv	Edema angioneuròtic Urticària Angioneurotic edema Urticaria
topic	Edema angioneuròtic Urticària Angioneurotic edema Urticaria
description	This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations and regional patient advocates, on why we need an Angioedema Center of Reference and Excellence (ACARE) program and network, and on the accreditation and certification process, governance and funding, and on the interaction with other GA2LEN networks of centers of reference and excellence. The protocols, aims, requirements, and provisions related to becoming a certified CARE are based on (a) the experience of the GA2LEN UCARE network and (b) input from angioedema patients, general practitioners, and angioedema specialists.
publishDate	2020
dc.date.none.fl_str_mv	2020
dc.type.none.fl_str_mv	info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion
format	article
status_str	publishedVersion
dc.identifier.none.fl_str_mv	https://hdl.handle.net/2445/174368
url	https://hdl.handle.net/2445/174368
dc.language.none.fl_str_mv	Inglés
language_invalid_str_mv	Inglés
dc.relation.none.fl_str_mv	Reproducció del document publicat a: https://doi.org/10.1111/all.14293 Allergy, 2020, vol. 75, num. 8, p. 2115-2123 https://doi.org/10.1111/all.14293
dc.rights.none.fl_str_mv	cc by-nc (c) Maurer et al., 2020 http://creativecommons.org/licenses/by-nc/3.0/es/ info:eu-repo/semantics/openAccess
rights_invalid_str_mv	cc by-nc (c) Maurer et al., 2020 http://creativecommons.org/licenses/by-nc/3.0/es/
eu_rights_str_mv	openAccess
dc.format.none.fl_str_mv	application/pdf
dc.publisher.none.fl_str_mv	European Academy of Allergy and Clinical Immunology; John Wiley & Sons Ltd.
publisher.none.fl_str_mv	European Academy of Allergy and Clinical Immunology; John Wiley & Sons Ltd.
dc.source.none.fl_str_mv	Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL)) reponame:Dipòsit Digital de la UB instname:Universidad de Barcelona
instname_str	Universidad de Barcelona
reponame_str	Dipòsit Digital de la UB
collection	Dipòsit Digital de la UB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score	15,300724

Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence

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