Definition, aims, and implementation of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence

This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations an...

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Autores: Maurer, Marcus, Aberer, Werner, Agondi, Rosana, Al‐Ahmad, Mona, Al‐Nesf, Maryam Ali, Ansotegui, Ignacio, Arnaout, Rand, Arruda, Luisa Karla, Asero, Riccardo, Aygören‐Pürsün, Emel, Banerji, Aleena, Kumaran, M. Sendhil, Hide, Michihiro, Ilina, Natalia, Inomata, Naoko, Ritchie, Bruce, Jakob, Thilo, Kleinheinz, Andreas, Josviack, Dario O., Kang, Hye‐Ryun, Kaplan, Allen, Serpa, Faradiba S., Kasperska‐Zając, Alicja, Larco Sousa, José Ignacio, Kocatürk, Emek, Košnik, Mitja, Krasowska, Dorota, Kulthanan, Kanokvalai, Longhurst, Hilary J., Riedl, Marc A., Lumry, William, MacGinnitie, Andrew, Parisi, Claudio A. S., Magerl, Markus, Makris, Michael P., Malbrán, Alejandro, Doorn, Martijn, Marsland, Alexander, Nicolay, Jan, Martinez Saguer, Inmaculada, Medina, Iris V., Meshkova, Raisa, Metz, Martin, Peter, Jonathan Grant, Nishigori, Chikako, Ohsawa, Isao, Özyurt, Kemal, Papadopoulos, Nikolaos G., Pfützner, Wolfgang, Ben‐Shoshan, Moshe, Popov, Todor, Röckmann‐Helmbach, Heike, Prior, Nieves, Ramon, German D., Reich, Adam, Boccon‐Gibod, Isabelle, Reshef, Avner, Serra‐Baldrich, Esther, Rudenko, Michael, Salman, Andaç, Sánchez Borges, Mario, Schmid‐Grendelmeier, Peter, Sheikh, Farrukh R., Bauer Alonso, Andrea, Smith, William, Soria, Angèle, Ye, Young‐Min, Staubach, Petra, Steiner, Urs C., Stobiecki, Marcin, Craig, Timothy, Sussman, Gordon, Varga, Lilian, Tagka, Anna, Thomsen, Simon Francis, Treudler, Regina, Valle, Solange, Zalewska‐Janowska, Anna, Vázquez, Daniel O., Wagner, Nicola, Wang, Liangchun, Weber‐Chrysochoou, Christina, Zanichelli, Andrea, Costa, Célia, Zhao, Zuotao, Berardi, Alejandro, Zhi, Yuxiang, Zuberbier, Torsten, Zwiener, Ricardo D., Gompels, Mark, Castaldo, Anthony, Bork, Konrad, Bernstein, Jonathan A., Betschel, Stephen, Bindslev‐Jensen, Carsten, Bizjak, Mojca, Bouillet, Laurence, Boysen, Henrik Balle, Brodszki, Nicholas, Broesby‐Olsen, Sigurd, Ensina, Luis Felipe, Busse, Paula, Buttgereit, Thomas, Bygum, Anette, Kessel, Aharon, Caballero, Teresa, Criado, Paulo Ricardo, Campos, Régis A., Cancian, Mauro, Cherrez Ojeda, Ivan, Cohn, Danny M., Ertaş, Ragıp, Criado, Roberta F., Csuka, Dorottya, Dissemond, Joachim, Du‐Thanh, Aurélie, Fabiani, José E., Katelaris, Constance, Fantini, Claudio, Farkas, Henriette, Ferrucci, Silvia Mariel, Figueras Nart, Ignasi, Fili, Natalia L., Nasr, Iman, Fomina, Daria, Gonçalo, Margarida, Fukunaga, Atsushi, Gelincik, Asli, Giménez Arnau, Ana, Godse, Kiran, Gotua, Maia, Gower, Richard, Grumach, Anete S., Guidos Fogelbach, Guillermo
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2020
País:España
Institución:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/174368
Acceso en línea:https://hdl.handle.net/2445/174368
Access Level:acceso abierto
Palabra clave:Edema angioneuròtic
Urticària
Angioneurotic edema
Urticaria
Descripción
Sumario:This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LEN and HAEi, including HAEi member organizations and regional patient advocates, on why we need an Angioedema Center of Reference and Excellence (ACARE) program and network, and on the accreditation and certification process, governance and funding, and on the interaction with other GA2LEN networks of centers of reference and excellence. The protocols, aims, requirements, and provisions related to becoming a certified CARE are based on (a) the experience of the GA2LEN UCARE network and (b) input from angioedema patients, general practitioners, and angioedema specialists.

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