Effectiveness of a psychoeducational intervention on myositis patients' quality of life and well-being: a randomized controlled trial
Background: Myositis is a rare disease associated with impaired health-related quality of life. A study evaluating the efectiveness of an intervention to improve the quality of life and well-being of myositis patients is presented. Methods: All myositis patients in a health district were contacted....
| Autores: | , , , , , |
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| Tipo de recurso: | artículo |
| Estado: | Versión publicada |
| Fecha de publicación: | 2024 |
| País: | España |
| Institución: | Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya) |
| Repositorio: | Recercat. Dipósit de la Recerca de Catalunya |
| OAI Identifier: | oai:recercat.cat:2445/219365 |
| Acceso en línea: | https://hdl.handle.net/2445/219365 |
| Access Level: | acceso abierto |
| Palabra clave: | Investigació psicològica Miositis Qualitat de vida Intervenció psicològica Psychological research Myositis Quality of life Psychological intervention |
| Sumario: | Background: Myositis is a rare disease associated with impaired health-related quality of life. A study evaluating the efectiveness of an intervention to improve the quality of life and well-being of myositis patients is presented. Methods: All myositis patients in a health district were contacted. Thirty-four eligible patients were randomly assigned to the experimental (n=17) or control (n=17) group. A psychoeducational intervention of 5 100-min sessions focusing on the disease as related to daily life was conducted only in experimental patients. Several reliable tools to measure quality of life and well-being were administered twice, before and after the intervention, to both groups. Results: In the experimental group, post-test scores were higher than pre-test in quality of life, well-being, and selfefcacy to manage the disease. Improvements were more evident in the experimental group than controls in 70% of the variables studied. Specifcally, sedentariness decreased and satisfaction with social relationships increased in the post-test evaluation to a greater degree in the experimental group than in controls. Conclusions: This randomized controlled trial on a representative sample of myositis patients in an extensive population provides evidence indicating the efectiveness of a psychoeducational intervention for improving HRQoL, wellbeing, and self-efcacy to manage the disease. |
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