The history of Down syndrome-associated Alzheimer's disease

The landscape of Down syndrome-associated Alzheimer's disease (DSAD) research reflects decades of scientific endeavor and collaborative effort, charting a remarkable journey from initial observations to the elucidation of complex genetic and molecular mechanisms. This perspective article chroni...

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Bibliographic Details
Authors: Maure Blesa, Lucia|||0000-0001-5643-7971, Carmona Iragui, Maria|||0000-0001-6914-2339, Lott, I., Head, Elizabeth|||0000-0003-1115-6396, Wisniewski, Thomas M., Rafii, M.S., Espinosa, J., Flórez, J., Mobley, W.C., Holland, A., Strydom, A., Zaman, Shahid, Fortea, Juan|||0000-0002-1340-638X
Format: article
Publication Date:2025
Country:España
Institution:Universitat Autònoma de Barcelona
Repository:Dipòsit Digital de Documents de la UAB
Language:English
OAI Identifier:oai:ddd.uab.cat:322763
Online Access:https://ddd.uab.cat/record/322763
https://dx.doi.org/urn:doi:10.1002/alz.70158
Access Level:Open access
Keyword:Alzheimer's disease
Down syndrome
Down syndrome-associated Alzheimer's disease
amyloid
clinical trials
historical perspective
Description
Summary:The landscape of Down syndrome-associated Alzheimer's disease (DSAD) research reflects decades of scientific endeavor and collaborative effort, charting a remarkable journey from initial observations to the elucidation of complex genetic and molecular mechanisms. This perspective article chronicles key milestones and breakthroughs, paying homage to the pioneering scientists and advancements that have shaped the field. A thorough review of historical and contemporary literature offers a comprehensive narrative, highlighting the evolution of knowledge surrounding DSAD, from early recognition to the characterization of clinical presentation and natural history. The unique challenges and ethical considerations associated with DSAD populations are also examined, underscoring the importance of tailoring research and clinical approaches. By reflecting on the field's trajectory, this work celebrates past achievements while emphasizing the critical need for sustained research efforts. As part of a special issue, this article provides a foundation for appreciating the challenges and opportunities that lie ahead in advancing DSAD understanding and care. Highlights: This article provides a comprehensive overview of Down syndrome-associated Alzheimer's disease (DSAD) history, from early descriptions to its recognition as a genetic form of AD. It reflects on historical challenges faced by individuals with intellectual disabilities in achieving inclusion in scientific research. This historical perspective highlights the critical contributions of individuals with DS in advancing understanding of AD natural history. It explores pivotal milestones and efforts that have driven progress in DSAD research. Finally, it provides context to understand challenges and opportunities in DSAD research and its future directions.