Quality of life in hidradenitis suppurativa: Validation of the hsqol-24

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidra-denitis suppurativa. A multicentre study was pre-viously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific...

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Detalles Bibliográficos
Autores: Marron S.E., Gomez-Barrera M., Tomas-Aragones L., Goni-Navarro A., Vilarrasa-Rull E., Diaz-Diaz R.M., Garcia-Latasa De Aranibar F.J., Campos-Rodenas R., Fuentelsaz-Del-barrio V., Gilaberte-Calzada Y., Gracia-Cazaña T., Morales-Callaghan A.M., Ros-Abarca S., Madrid-Alvarez M.B., Puig L.
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2021
País:España
Institución:Universidad de Zaragoza
Repositorio:Zaguán. Repositorio Digital de la Universidad de Zaragoza
OAI Identifier:oai:zaguan.unizar.es:151460
Acceso en línea:http://zaguan.unizar.es/record/151460
Access Level:acceso abierto
Descripción
Sumario:To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidra-denitis suppurativa. A multicentre study was pre-viously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revali-date the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceiv-ed by patients.