Challenges and perspectives in biomedical research with data in the European Union in the Digital Era

The Digital Age in which we live requires the rethinking of current legal paradigms, both from the point of view of regulation and governance, and this particularly affects data, and scientific research with data. This work attempts to provide an overview of the challenges and opportunities that ari...

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Detalles Bibliográficos
Autor: Sarrión-Esteve, Joaquín
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:Brasil
Institución:Fundação Oswaldo Cruz (FIOCRUZ)
Repositorio:Cadernos Ibero-Americanos de Direito Sanitário (Online)
Idioma:español
inglés
OAI Identifier:oai:ojs.cadernos.prodisa.fiocruz.br:article/1290
Acceso en línea:https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/1290
Access Level:acceso abierto
Palabra clave:Dados de Saúde
Big Data
Tecnologia
Inteligência Artificial
Health Data
Technology
Artificial Intelligence
Datos sanitarios
Macrodatos
Tecnología
Inteligencia Artificial
Descripción
Sumario:The Digital Age in which we live requires the rethinking of current legal paradigms, both from the point of view of regulation and governance, and this particularly affects data, and scientific research with data. This work attempts to provide an overview of the challenges and opportunities that arise in this area, seeking a multidisciplinary legal research methodology adapted to the emerging (European) law of science and technology. It concludes the need to work so that in its development, both regulation and governance follow a series of ethical and legal principles that allow the guarantee of the rights and freedoms of people. Submission: 10/01/24| Review: 10/23/24| Approval: 10/23/24