Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities

Background: The number of people with intellectual and developmental disabilities (IDD) living in residential settings has not changed substantially in recent years in Spain. To change this situation the project “My House: A Life in the Community” aims to promote the transition of individuals with I...

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Autores: Navas, Patricia, Arias, Víctor B., Vicente, Eva, Esteban, Laura, Guillén, Verónica M., Alvarado, Natalia, Heras, Inés, Rumoroso, Paula, García-Domínguez, Laura, Verdugo, Miguel Ángel
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2025
País:España
Institución:Universidad de Zaragoza
Repositorio:Zaguán. Repositorio Digital de la Universidad de Zaragoza
OAI Identifier:oai:zaguan.unizar.es:149029
Acceso en línea:http://zaguan.unizar.es/record/149029
Access Level:acceso abierto
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spelling Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilitiesNavas, PatriciaArias, Víctor B.Vicente, EvaEsteban, LauraGuillén, Verónica M.Alvarado, NataliaHeras, InésRumoroso, PaulaGarcía-Domínguez, LauraVerdugo, Miguel ÁngelBackground: The number of people with intellectual and developmental disabilities (IDD) living in residential settings has not changed substantially in recent years in Spain. To change this situation the project “My House: A Life in the Community” aims to promote the transition of individuals with IDD and high support needs into community settings. Aims: This paper deepens the understanding of the underlying mechanisms responsible for the changes observed in the process of deinstitutionalization. Methods: A longitudinal study was designed to evaluate the quality of life of individuals with IDD (n = 90) across different environments at two distinct time points: when they were living in an institution and nine months after transitioning to a community-based setting. A comparison group (n = 72) consisting of individuals who remained institutionalized was included to carry out intergroup comparisons. T-tests were used to estimate mean differences both between and within groups. Longitudinal path models were used to investigate the processes underlying the relationships between variables. Results: After transition, movers obtained significantly higher mean scores on all variables with large or very large effect sizes. However, simply moving to a different place was not the factor responsible for the observed improvements: positive changes in quality of life require the constant availability of opportunities to support decision making. Implications: deinstitutionalization will only lead to improvements in quality of life if it favors people’s control over their lives. Community living should therefore be understood not as an autonomous life but as a chosen one.2025info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttp://zaguan.unizar.es/record/149029reponame:Zaguán. Repositorio Digital de la Universidad de Zaragozainstname:Universidad de ZaragozaInglésinfo:eu-repo/grantAgreement/ES/AEI/PID2022–139354NB-I00info:eu-repo/semantics/openAccessoai:zaguan.unizar.es:1490292026-05-29T13:59:51Z
dc.title.none.fl_str_mv Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
title Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
spellingShingle Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
Navas, Patricia
title_short Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
title_full Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
title_fullStr Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
title_full_unstemmed Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
title_sort Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities
dc.creator.none.fl_str_mv Navas, Patricia
Arias, Víctor B.
Vicente, Eva
Esteban, Laura
Guillén, Verónica M.
Alvarado, Natalia
Heras, Inés
Rumoroso, Paula
García-Domínguez, Laura
Verdugo, Miguel Ángel
author Navas, Patricia
author_facet Navas, Patricia
Arias, Víctor B.
Vicente, Eva
Esteban, Laura
Guillén, Verónica M.
Alvarado, Natalia
Heras, Inés
Rumoroso, Paula
García-Domínguez, Laura
Verdugo, Miguel Ángel
author_role author
author2 Arias, Víctor B.
Vicente, Eva
Esteban, Laura
Guillén, Verónica M.
Alvarado, Natalia
Heras, Inés
Rumoroso, Paula
García-Domínguez, Laura
Verdugo, Miguel Ángel
author2_role author
author
author
author
author
author
author
author
author
description Background: The number of people with intellectual and developmental disabilities (IDD) living in residential settings has not changed substantially in recent years in Spain. To change this situation the project “My House: A Life in the Community” aims to promote the transition of individuals with IDD and high support needs into community settings. Aims: This paper deepens the understanding of the underlying mechanisms responsible for the changes observed in the process of deinstitutionalization. Methods: A longitudinal study was designed to evaluate the quality of life of individuals with IDD (n = 90) across different environments at two distinct time points: when they were living in an institution and nine months after transitioning to a community-based setting. A comparison group (n = 72) consisting of individuals who remained institutionalized was included to carry out intergroup comparisons. T-tests were used to estimate mean differences both between and within groups. Longitudinal path models were used to investigate the processes underlying the relationships between variables. Results: After transition, movers obtained significantly higher mean scores on all variables with large or very large effect sizes. However, simply moving to a different place was not the factor responsible for the observed improvements: positive changes in quality of life require the constant availability of opportunities to support decision making. Implications: deinstitutionalization will only lead to improvements in quality of life if it favors people’s control over their lives. Community living should therefore be understood not as an autonomous life but as a chosen one.
publishDate 2025
dc.date.none.fl_str_mv 2025
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dc.identifier.none.fl_str_mv http://zaguan.unizar.es/record/149029
url http://zaguan.unizar.es/record/149029
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv info:eu-repo/grantAgreement/ES/AEI/PID2022–139354NB-I00
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
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instname:Universidad de Zaragoza
instname_str Universidad de Zaragoza
reponame_str Zaguán. Repositorio Digital de la Universidad de Zaragoza
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