Giving Them a Voice: Challenges to Narrative Agency in People with Dementia

In this paper, we argue that the capacity for narrative agency is significantly compromised in individuals with dementia due to at least three factors: (a) Dementia itself, which causes increasing difficulties in constructing and articulating coherent and meaningful stories, and sharing them with ot...

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Detalles Bibliográficos
Autores: Villar Posada, Feliciano, Serrat Fernández, Rodrigo, Bravo-Segal, S.
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2019
País:España
Institución:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/153403
Acceso en línea:https://hdl.handle.net/2445/153403
Access Level:acceso abierto
Palabra clave:Demència
Cura dels malalts
Dementia
Care of the sick
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spelling Giving Them a Voice: Challenges to Narrative Agency in People with DementiaVillar Posada, FelicianoSerrat Fernández, RodrigoBravo-Segal, S.DemènciaCura dels malaltsDementiaCare of the sickIn this paper, we argue that the capacity for narrative agency is significantly compromised in individuals with dementia due to at least three factors: (a) Dementia itself, which causes increasing difficulties in constructing and articulating coherent and meaningful stories, and sharing them with others; (b) cultural narratives about dementia, which promote an extremely negative and pessimistic view of those with the disease; and (c) the convergence of these two last factors, which can lead to caregiving interactions that do not support storytelling and can even stop people with dementia from telling stories. We highlight the importance of narrative care, which involves interventions that focus on the person and their unique life narrative. In narrative care, people with dementia are treated not as impaired patients defined by the disease, but as human beings. In doing so, people with dementia can have their own voices back, which is silenced and discredited so many times.MDPI2019info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2445/153403Articles publicats en revistes (Cognició, Desenvolupament i Psicologia de l'Educació)reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésReproducció del document publicat a: https://doi.org/10.3390/geriatrics4010020Geriatrics, 2019, vol. 4, num. 1, p. 20https://doi.org/10.3390/geriatrics4010020cc-by (c) Villar Posada, Feliciano et al., 2019http://creativecommons.org/licenses/by/3.0/esinfo:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/1534032026-05-27T06:46:51Z
dc.title.none.fl_str_mv Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
title Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
spellingShingle Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
Villar Posada, Feliciano
Demència
Cura dels malalts
Dementia
Care of the sick
title_short Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
title_full Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
title_fullStr Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
title_full_unstemmed Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
title_sort Giving Them a Voice: Challenges to Narrative Agency in People with Dementia
dc.creator.none.fl_str_mv Villar Posada, Feliciano
Serrat Fernández, Rodrigo
Bravo-Segal, S.
author Villar Posada, Feliciano
author_facet Villar Posada, Feliciano
Serrat Fernández, Rodrigo
Bravo-Segal, S.
author_role author
author2 Serrat Fernández, Rodrigo
Bravo-Segal, S.
author2_role author
author
dc.subject.none.fl_str_mv Demència
Cura dels malalts
Dementia
Care of the sick
topic Demència
Cura dels malalts
Dementia
Care of the sick
description In this paper, we argue that the capacity for narrative agency is significantly compromised in individuals with dementia due to at least three factors: (a) Dementia itself, which causes increasing difficulties in constructing and articulating coherent and meaningful stories, and sharing them with others; (b) cultural narratives about dementia, which promote an extremely negative and pessimistic view of those with the disease; and (c) the convergence of these two last factors, which can lead to caregiving interactions that do not support storytelling and can even stop people with dementia from telling stories. We highlight the importance of narrative care, which involves interventions that focus on the person and their unique life narrative. In narrative care, people with dementia are treated not as impaired patients defined by the disease, but as human beings. In doing so, people with dementia can have their own voices back, which is silenced and discredited so many times.
publishDate 2019
dc.date.none.fl_str_mv 2019
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/153403
url https://hdl.handle.net/2445/153403
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.3390/geriatrics4010020
Geriatrics, 2019, vol. 4, num. 1, p. 20
https://doi.org/10.3390/geriatrics4010020
dc.rights.none.fl_str_mv cc-by (c) Villar Posada, Feliciano et al., 2019
http://creativecommons.org/licenses/by/3.0/es
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc-by (c) Villar Posada, Feliciano et al., 2019
http://creativecommons.org/licenses/by/3.0/es
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv Articles publicats en revistes (Cognició, Desenvolupament i Psicologia de l'Educació)
reponame:Dipòsit Digital de la UB
instname:Universidad de Barcelona
instname_str Universidad de Barcelona
reponame_str Dipòsit Digital de la UB
collection Dipòsit Digital de la UB
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