Desiderata for discoverability and FAIR adoption of health data hubs

[Background] The future European Health Research and Innovation Cloud (HRIC), as fundamental part of the European Health Data Space (EHDS), will promote the secondary use of data and the capabilities to push the boundaries of health research within an ethical and legally compliant framework that rei...

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Detalles Bibliográficos
Autores: Álvarez-Romero, Celia, Bernabeu Wittel, Máximo, Parra-Calderón, Carlos Luis, Rodríguez-Mejias, Silvia, Martínez-García, Alicia
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:España
Institución:Consejo Superior de Investigaciones Científicas (CSIC)
Repositorio:DIGITAL.CSIC. Repositorio Institucional del CSIC
OAI Identifier:oai:digital.csic.es:10261/371064
Acceso en línea:http://hdl.handle.net/10261/371064
https://api.elsevier.com/content/abstract/scopus_id/85199974578
Access Level:acceso abierto
Palabra clave:Survey
Data discoverability
Data management
FAIR principles
Health data hubs
Descripción
Sumario:[Background] The future European Health Research and Innovation Cloud (HRIC), as fundamental part of the European Health Data Space (EHDS), will promote the secondary use of data and the capabilities to push the boundaries of health research within an ethical and legally compliant framework that reinforces the trust of patients and citizens.