Nutrición parenteral domiciliaria en España 2018. Informe del Grupo de Nutrición Artificial Domiciliaria y Ambulatoria NADYA

Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry fro...

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Detalles Bibliográficos
Autores: Wanden-Berghe, Carmina, Cuerda Compes, Cristina, Maíz Jiménez, María, Pereira Cunill, José Luis, Ramos Boluda, Esther, Gómez Candela, Carmen, Virgili, Núria, Burgos Peláez, Rosa, Luis Roman, Daniel A. de, Penacho Lázaro, María Ángeles, Sánchez Martos, Eva Ángeles, Martínez Faedo, Ceferino, Díaz Guardiola, Patricia, Álvarez Hernández, Julia, Zugasti Murillo, Ana, Martín, Cristina Campos, Sanz París, Alejandro, Martín Fontalba, María de los Ángeles, Lobo Támer, Gabriela, Matía Martín, Pilar, Carabaña Pérez, Fátima, Martín Folgueras, Tomás, Martín Palmero, Ángela, Luengo Pérez, Luis Miguel, Sánchez Vilar-Burdiel, Olga, Martínez Costa, Cecilia, Tejera, Cristina, Martínez Ramírez, María José, García Delgado, Yaiza, Ponce González, Miguel Ángel, Roca, Sílvia Mauri, García Zafra, María Victoria, Germán Díaz, Marta, Gabino, Victoria, Molina Baeza, Begoña, Gonzalo Marín, Montserrat, Irles Rocamora, José Antonio, Sánchez Sánchez, Rebeca, Apezetxea Celaya, Antxón, Joaquín Ortiz, Clara, Suárez Llanos, José Pablo, Pintor de la Maza, Begoña, Leyes, Pere, Martínez, M.ª Carmen Gil, Carrera Santaliestra, María José, Grupo NADYA-SENPE
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2020
País:España
Institución:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repositorio:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:2445/173647
Acceso en línea:https://hdl.handle.net/2445/173647
Access Level:acceso abierto
Palabra clave:Alimentació parenteral
Nutrició
Parenteral feeding
Nutrition
Descripción
Sumario:Aim: to communicate home parenteral nutrition (HPN) data obtained from the HPN registry of the NADYA-SENPE group (www.nadya-senpe. com) for the year 2018. Material and methods: descriptive analysis of the data collected from adult and pediatric patients with HPN in the NADYA-SENPE group registry from January 1st, 2018 to December 31st, 2018. Results: there were 278 patients from 45 Spanish hospitals (54.7 % women), 23 children and 255 adults, which represent a prevalence rate of 5.95 patients/million inhabitants/year 2018. The most frequent diagnosis in adults was " palliative cancer" (22.0 %), followed by "others". In children it was Hirschsprung's disease together with necrotizing enterocolitis, with four cases (17.4 %). The first indication was short bowel syndrome in both children (60.9 %) and adults (35.7 %). The most frequently used type of catheter was tunneled in both children (81.0 %) and adults (41.1 %). Ending 75 episodes, the most frequent cause was death (52.0 %) and change to oral feeding (33.3 %). Conclusions: the number of centers and collaborating professionals in the registry of patients receiving HPN remains stable, as well as the main indications and reasons for termination of HPN.

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