'Gout was like the boss'. A qualitative study exploring the impact of gout on employment

Objective Previous research has identified that gout impacts various domains of daily life. However, there have been no qualitative studies focusing on employment. This study aimed to understand the impact of gout on employment. Methods Semistructured interviews were conducted in Spain and Aotearoa/...

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Detalhes bibliográficos
Autores: Diaz-Torne, Cesar|||0000-0001-6275-7699, Pou, Maria Antònia|||0000-0002-5792-2802, Gasteiger, C.|||0000-0002-0597-2349, Dalbeth, N., Horne, A.
Tipo de documento: artigo
Data de publicação:2024
País:España
Recursos:Universitat Autònoma de Barcelona
Repositório:Dipòsit Digital de Documents de la UAB
Idioma:inglês
OAI Identifier:oai:ddd.uab.cat:324378
Acesso em linha:https://ddd.uab.cat/record/324378
https://dx.doi.org/urn:doi:10.1136/rmdopen-2024-004443
Access Level:Acceso aberto
Palavra-chave:Adult
Aged
Employment
Female
Gout
Humans
Interviews as Topic
Male
Middle Aged
New Zealand
Qualitative Research
Quality of Life
Spain
Workplace
Descrição
Resumo:Objective Previous research has identified that gout impacts various domains of daily life. However, there have been no qualitative studies focusing on employment. This study aimed to understand the impact of gout on employment. Methods Semistructured interviews were conducted in Spain and Aotearoa/New Zealand, in people with gout (according to the 2015 American College of Rheumatology/European Alliance of Associations for Rheumatology criteria) who had experienced a gout flare during their employment. The interviews were guided by questions exploring the impact on employment, job changes, disclosure and co-workers' reactions. Data were analysed thematically. Results Eighteen participants were interviewed (89% male, mean age 52.9 years). Six themes were identified. The characteristics of the disease (pain intensity, tophi and joints affected) and the job itself (including physical job requirement and workplace flexibility) determined the experience of working with gout. The experiences were divided into physical (from total incapacity to working despite pain), emotional (feeling responsible, embarrassment, guilt and depression) and social (including disclosure responses and financial impact). Gout management strategies including rapid gout flare management and urate-lowering therapy reduced the number of flares and the intensity of pain, and allowed work attendance and participation. Conclusion Both gout and work characteristics influence the employment experience for people with gout. Effective management of gout led to improved work experiences in all its domains.