Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study

[EN]Satisfaction with the detection process of autism and its determinants was investigated using data from the Autism Spectrum Disorder in the European Union (2015–2018) network. A total of 1342 family members, including 1278 parents, completed an online survey collecting information about their ex...

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Detalles Bibliográficos
Autores: Guillon, Quentin, Baduel, S, Bejarano Martín, Álvaro, Canal Bedia, Ricardo, Magán Maganto, María Carmen, Fernández-Álvarez, Clara J., Martín Cilleros, María Victoria, Sánchez Gómez, María Cruz, García Primo, Patricia, Rose Sweeney, Mary, Boilson, Andrew, Linertová, Renata, Roeyers, Herbert, Van der Paelt, Sara, Schendel, Diana, Warberg, Christine Kloster, Cramer, Susanne, Narzisi, Antonio, Muratori, Filippo, Scattoni, María Luisa, Moilanen, Irma, Yliherva, Anneli, Saemundsen, Evald, Jónsdóttir, Sigrídur Lóa, Efrim-Budisteanu, Magdalena, Arghir, A, Papuc, Sorina Mihaela, Vicente, Astrid, Rasga, Célia, Xenia Kafka, Johanna, Poustka, Luise, Kothgassner, Oswald D., Kawa, Rafal, Pisula, E, Sellers, Tracey, Posada de la Paz, Manuel, Rogé, Bernadette
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2022
País:España
Institución:Universidad de Salamanca (USAL)
Repositorio:GREDOS. Repositorio Institucional de la Universidad de Salamanca
OAI Identifier:oai:gredos.usal.es:10366/168771
Acceso en línea:http://hdl.handle.net/10366/168771
Access Level:acceso abierto
Palabra clave:Autism
Early detection
Parents’ experiences
Satisfaction
Early Diagnosis
Consumer Satisfaction
Autistic Disorder
61 Psicología
trastorno autístico
diagnóstico precoz
satisfacción del consumidor
Descripción
Sumario:[EN]Satisfaction with the detection process of autism and its determinants was investigated using data from the Autism Spectrum Disorder in the European Union (2015–2018) network. A total of 1342 family members, including 1278 parents, completed an online survey collecting information about their experience and satisfaction with the early detection of autism in their child. Overall, the level of satisfaction varied considerably from one respondent to another. Difficulty in finding information about detection services, lack of professional guidance and support in response to first concerns, finding a diagnostic service on one’s own, and a delay of more than 4 months between the confirmation of concerns and the first appointment with a specialist were all experiences individually associated with greater odds of being less satisfied. Using a dominance analysis approach, we further identified professional guidance and support in response to first concerns as the most important predictor of the level of satisfaction. These findings highlight the aspects of the process that need to be improved to enhance the experience of the detection process and are therefore relevant to guide health administrations toward actions to be implemented to this effect.

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