Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception

Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients' and relatives' perspective are crucial to improve the patients' quality of life but have received limited attention. T...

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Autores: Font Guiteras, Antoni, Villar Abelló, Helena, Planas Domingo, Josep, Farriols, Cristina, Ruiz Ripoll, Ada, Berger, Rita
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2021
País:España
Institución:Universitat Pompeu Fabra
Repositorio:Repositorio Digital de la UPF
OAI Identifier:oai:repositori.upf.edu:10230/53498
Acceso en línea:http://hdl.handle.net/10230/53498
http://dx.doi.org/10.3390/ijerph18168509
Access Level:acceso abierto
Palabra clave:Concerns
Insomnia
Palliative care
Primary caregiver
Terminal cancer
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spelling Palliative oncological patients with insomnia: concerns of the patients and their relatives' perceptionFont Guiteras, AntoniVillar Abelló, HelenaPlanas Domingo, JosepFarriols, CristinaRuiz Ripoll, AdaBerger, RitaConcernsInsomniaPalliative carePrimary caregiverTerminal cancerInsomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients' and relatives' perspective are crucial to improve the patients' quality of life but have received limited attention. The aims were to identify the concerns of patients with insomnia in the terminal illness stage in a palliative care unit and the relatives' perception, and to compare both. Here, 63 patients and 53 relatives answered a questionnaire about worries in the personal, spiritual, family-related and economic area, as well as a quality-of-life uniscale. The results showed that the relatives' most frequent concern was "Having lived life to the fullest" (100%), and the most intense was "The possible suffering during the process" (9.2/10). The patients' most expressed concern was: "Having unfinished business" (100%), and the most intense was "Suffering during the process" (9.3/10). Quality of life showed an average value of 6.95 out of 10. Relatives only coincided significantly in: "Not knowing what happens after death" (r = 0.600; p = 0.000). These results bring visibility to concerns during the final stage of oncological palliative patients with insomnia from the patients' and relatives' perspective. Knowing both is useful for professionals to foster the well-being for a short, yet very important, period for patients, relatives and the caregiving team.MDPI202220222021info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttp://hdl.handle.net/10230/53498http://dx.doi.org/10.3390/ijerph18168509reponame:Repositorio Digital de la UPFinstname:Universitat Pompeu FabraInglésCopyright © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). Articles from International Journal of Environmental Research and Public Health are provided here courtesy of Multidisciplinary Digital Publishing Institute (MDPI)http://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:repositori.upf.edu:10230/534982026-06-12T07:21:37Z
dc.title.none.fl_str_mv Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
title Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
spellingShingle Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
Font Guiteras, Antoni
Concerns
Insomnia
Palliative care
Primary caregiver
Terminal cancer
title_short Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
title_full Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
title_fullStr Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
title_full_unstemmed Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
title_sort Palliative oncological patients with insomnia: concerns of the patients and their relatives' perception
dc.creator.none.fl_str_mv Font Guiteras, Antoni
Villar Abelló, Helena
Planas Domingo, Josep
Farriols, Cristina
Ruiz Ripoll, Ada
Berger, Rita
author Font Guiteras, Antoni
author_facet Font Guiteras, Antoni
Villar Abelló, Helena
Planas Domingo, Josep
Farriols, Cristina
Ruiz Ripoll, Ada
Berger, Rita
author_role author
author2 Villar Abelló, Helena
Planas Domingo, Josep
Farriols, Cristina
Ruiz Ripoll, Ada
Berger, Rita
author2_role author
author
author
author
author
dc.subject.none.fl_str_mv Concerns
Insomnia
Palliative care
Primary caregiver
Terminal cancer
topic Concerns
Insomnia
Palliative care
Primary caregiver
Terminal cancer
description Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients' and relatives' perspective are crucial to improve the patients' quality of life but have received limited attention. The aims were to identify the concerns of patients with insomnia in the terminal illness stage in a palliative care unit and the relatives' perception, and to compare both. Here, 63 patients and 53 relatives answered a questionnaire about worries in the personal, spiritual, family-related and economic area, as well as a quality-of-life uniscale. The results showed that the relatives' most frequent concern was "Having lived life to the fullest" (100%), and the most intense was "The possible suffering during the process" (9.2/10). The patients' most expressed concern was: "Having unfinished business" (100%), and the most intense was "Suffering during the process" (9.3/10). Quality of life showed an average value of 6.95 out of 10. Relatives only coincided significantly in: "Not knowing what happens after death" (r = 0.600; p = 0.000). These results bring visibility to concerns during the final stage of oncological palliative patients with insomnia from the patients' and relatives' perspective. Knowing both is useful for professionals to foster the well-being for a short, yet very important, period for patients, relatives and the caregiving team.
publishDate 2021
dc.date.none.fl_str_mv 2021
2022
2022
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
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status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/10230/53498
http://dx.doi.org/10.3390/ijerph18168509
url http://hdl.handle.net/10230/53498
http://dx.doi.org/10.3390/ijerph18168509
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv http://creativecommons.org/licenses/by/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv http://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv reponame:Repositorio Digital de la UPF
instname:Universitat Pompeu Fabra
instname_str Universitat Pompeu Fabra
reponame_str Repositorio Digital de la UPF
collection Repositorio Digital de la UPF
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