Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol

Background: Adherence to allergen immunotherapy is important for its effectiveness. There is currently limited data available on allergen immunotherapy adherence outside of clinical trials i.e. in real-life clinical practice. As part of a European Academy of Allergy and Clinical Immunology Immunothe...

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Authors: Makatsori, Melina, Senna, Gianenrico, Pitsios, Constantinos, Lleonart Bellfill, Ramon, Klimek, Ludger, Nunes, Carlos, Rukhadze, Maia, Rogala, Barbara, Gawlik, Radoslaw, Panzner, Petr, Pfaar, Oliver, Calderon, Moises
Format: article
Status:Published version
Publication Date:2015
Country:España
Institution:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repository:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:2445/126129
Online Access:https://hdl.handle.net/2445/126129
Access Level:Open access
Keyword:Immunoteràpia
Malalties de l'aparell respiratori
Immunotheraphy
Respiratory organs diseases
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spelling Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocolMakatsori, MelinaSenna, GianenricoPitsios, ConstantinosLleonart Bellfill, RamonKlimek, LudgerNunes, CarlosRukhadze, MaiaRogala, BarbaraGawlik, RadoslawPanzner, PetrPfaar, OliverCalderon, MoisesImmunoteràpiaMalalties de l'aparell respiratoriImmunotheraphyRespiratory organs diseasesBackground: Adherence to allergen immunotherapy is important for its effectiveness. There is currently limited data available on allergen immunotherapy adherence outside of clinical trials i.e. in real-life clinical practice. As part of a European Academy of Allergy and Clinical Immunology Immunotherapy Interest group initiative, we endeavoured to design a survey in order to prospectively evaluate adherence to subcutaneous and sublingual immunotherapy across different European countries. Method/Design: The inclusion criteria for this prospective, multi-country survey were set as: adults, starting clinically indicated allergen immunotherapy for respiratory allergic disorders or Hymenoptera venom allergy. An online survey was designed in order to enrol participants and assess adherence to immunotherapy. Eight countries (Czech Republic, Georgia, Germany, Greece, Italy, Poland, Portugal, Spain) were selected to reflect different parts of Europe and differences in allergens and routes of immunotherapy administration. Each country has an allocated National co-ordinator that has identified local Allergy departments willing to enrol participants in this survey. Each participant will be followed up for a total of three years. In order to assess adherence, a 4-monthly follow-up form detailing any missed doses and reasons will be completed online. In case of a participant discontinuing treatment, reasons for this will be recorded. Discussion: The use of online survey software has enabled us to make this survey a reality and reach clinicians in different countries. Forty-five centres have enrolled a total of over 1,350 participants. It is hoped that this prospective real life survey will enable us to gain a better understanding of reasons that affect adherence to subcutaneous and sublingual immunotherapy and assist in developing ways to improve this.BioMed Central Ltd2018201820152018info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion8 p.application/pdfhttps://hdl.handle.net/2445/126129Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))reponame:Recercat. Dipósit de la Recerca de Catalunyainstname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)InglésReproducció del document publicat a: https://doi.org/10.1186/s13601-015-0060-0Clinical and Translational Allergy, 2015, vol. 5, num. 17https://doi.org/10.1186/s13601-015-0060-0cc by (c) Makatsori, Melina et al., 2015http://creativecommons.org/licenses/by/3.0/es/info:eu-repo/semantics/openAccessoai:recercat.cat:2445/1261292026-05-29T05:05:01Z
dc.title.none.fl_str_mv Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
title Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
spellingShingle Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
Makatsori, Melina
Immunoteràpia
Malalties de l'aparell respiratori
Immunotheraphy
Respiratory organs diseases
title_short Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
title_full Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
title_fullStr Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
title_full_unstemmed Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
title_sort Prospective adherence to specific immunotherapy in Europe (PASTE) survey protocol
dc.creator.none.fl_str_mv Makatsori, Melina
Senna, Gianenrico
Pitsios, Constantinos
Lleonart Bellfill, Ramon
Klimek, Ludger
Nunes, Carlos
Rukhadze, Maia
Rogala, Barbara
Gawlik, Radoslaw
Panzner, Petr
Pfaar, Oliver
Calderon, Moises
author Makatsori, Melina
author_facet Makatsori, Melina
Senna, Gianenrico
Pitsios, Constantinos
Lleonart Bellfill, Ramon
Klimek, Ludger
Nunes, Carlos
Rukhadze, Maia
Rogala, Barbara
Gawlik, Radoslaw
Panzner, Petr
Pfaar, Oliver
Calderon, Moises
author_role author
author2 Senna, Gianenrico
Pitsios, Constantinos
Lleonart Bellfill, Ramon
Klimek, Ludger
Nunes, Carlos
Rukhadze, Maia
Rogala, Barbara
Gawlik, Radoslaw
Panzner, Petr
Pfaar, Oliver
Calderon, Moises
author2_role author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Immunoteràpia
Malalties de l'aparell respiratori
Immunotheraphy
Respiratory organs diseases
topic Immunoteràpia
Malalties de l'aparell respiratori
Immunotheraphy
Respiratory organs diseases
description Background: Adherence to allergen immunotherapy is important for its effectiveness. There is currently limited data available on allergen immunotherapy adherence outside of clinical trials i.e. in real-life clinical practice. As part of a European Academy of Allergy and Clinical Immunology Immunotherapy Interest group initiative, we endeavoured to design a survey in order to prospectively evaluate adherence to subcutaneous and sublingual immunotherapy across different European countries. Method/Design: The inclusion criteria for this prospective, multi-country survey were set as: adults, starting clinically indicated allergen immunotherapy for respiratory allergic disorders or Hymenoptera venom allergy. An online survey was designed in order to enrol participants and assess adherence to immunotherapy. Eight countries (Czech Republic, Georgia, Germany, Greece, Italy, Poland, Portugal, Spain) were selected to reflect different parts of Europe and differences in allergens and routes of immunotherapy administration. Each country has an allocated National co-ordinator that has identified local Allergy departments willing to enrol participants in this survey. Each participant will be followed up for a total of three years. In order to assess adherence, a 4-monthly follow-up form detailing any missed doses and reasons will be completed online. In case of a participant discontinuing treatment, reasons for this will be recorded. Discussion: The use of online survey software has enabled us to make this survey a reality and reach clinicians in different countries. Forty-five centres have enrolled a total of over 1,350 participants. It is hoped that this prospective real life survey will enable us to gain a better understanding of reasons that affect adherence to subcutaneous and sublingual immunotherapy and assist in developing ways to improve this.
publishDate 2015
dc.date.none.fl_str_mv 2015
2018
2018
2018
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/126129
url https://hdl.handle.net/2445/126129
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.1186/s13601-015-0060-0
Clinical and Translational Allergy, 2015, vol. 5, num. 17
https://doi.org/10.1186/s13601-015-0060-0
dc.rights.none.fl_str_mv cc by (c) Makatsori, Melina et al., 2015
http://creativecommons.org/licenses/by/3.0/es/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc by (c) Makatsori, Melina et al., 2015
http://creativecommons.org/licenses/by/3.0/es/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 8 p.
application/pdf
dc.publisher.none.fl_str_mv BioMed Central Ltd
publisher.none.fl_str_mv BioMed Central Ltd
dc.source.none.fl_str_mv Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))
reponame:Recercat. Dipósit de la Recerca de Catalunya
instname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
instname_str Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
reponame_str Recercat. Dipósit de la Recerca de Catalunya
collection Recercat. Dipósit de la Recerca de Catalunya
repository.name.fl_str_mv
repository.mail.fl_str_mv
_version_ 1869419352747409408
score 15,81155

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