Challenges of creating a peer support online community for patients with diabetes: a case study

This study aims to explore the challenges and strategies in creating online communities for individuals with diabetes, emphasizing their role in fostering connections among individuals facing similar health conditions. Using a single-case approach, we investigated the design process of a diabetes on...

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Autores: Bujanda Sainz de Murieta, Arantxa, Isomursu, Minna, Escalada Hernández, Paula, San Martín Rodríguez, Leticia, García Vivar, Cristina, Soto Ruiz, María Nelia
Tipo de documento: artigo
Estado:Versión aceptada para publicación
Data de publicação:2025
País:España
Recursos:Universidad Pública de Navarra
Repositório:Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
OAI Identifier:oai:academica-e.unavarra.es:2454/52634
Acesso em linha:https://hdl.handle.net/2454/52634
Access Level:Acceso aberto
Palavra-chave:Chronic conditions
Diabetes
Online community
Peer support
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spelling Challenges of creating a peer support online community for patients with diabetes: a case studyBujanda Sainz de Murieta, ArantxaIsomursu, MinnaEscalada Hernández, PaulaSan Martín Rodríguez, LeticiaGarcía Vivar, CristinaSoto Ruiz, María NeliaChronic conditionsDiabetesOnline communityPeer supportThis study aims to explore the challenges and strategies in creating online communities for individuals with diabetes, emphasizing their role in fostering connections among individuals facing similar health conditions. Using a single-case approach, we investigated the design process of a diabetes online community using the classic waterfall model. Participants were recruited from a diabetes local association, and usability was assessed using the System Usability Scale and the think-aloud method. Subsequently, semistructured interviews were conducted to evaluate functionality and user experience. Data collection was conducted from August until December 2023. The development of the community unveiled significant usability challenges, highlighting the need for user feedback and improvement. Ethical considerations, including anonymity, usage conditions, privacy terms, and health information sharing, emerged as critical areas requiring meticulous attention. Furthermore, healthcare professional moderation was deemed essential to ensure a secure environment. Users expressed strong interest in enhanced interaction features and personalized notifications. Although online diabetes communities hold potential for peer support, addressing usability challenges, ethical considerations, and moderation issues is essential. This study emphasizes the ongoing necessity for research to enhance the development of patient communities, ensuring accessibility, mitigating ethical risks, and leveraging nurses as moderators.Wolters KluwerCiencias de la SaludOsasun ZientziakInstitute of Smart Cities - ISC2025info:eu-repo/semantics/articleinfo:eu-repo/semantics/acceptedVersionapplication/pdfhttps://hdl.handle.net/2454/52634reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarrainstname:Universidad Pública de NavarraInglés© 2024 Wolters Kluwer Health, Inc. All rights reserved.info:eu-repo/semantics/openAccessoai:academica-e.unavarra.es:2454/526342026-06-17T12:41:47Z
dc.title.none.fl_str_mv Challenges of creating a peer support online community for patients with diabetes: a case study
title Challenges of creating a peer support online community for patients with diabetes: a case study
spellingShingle Challenges of creating a peer support online community for patients with diabetes: a case study
Bujanda Sainz de Murieta, Arantxa
Chronic conditions
Diabetes
Online community
Peer support
title_short Challenges of creating a peer support online community for patients with diabetes: a case study
title_full Challenges of creating a peer support online community for patients with diabetes: a case study
title_fullStr Challenges of creating a peer support online community for patients with diabetes: a case study
title_full_unstemmed Challenges of creating a peer support online community for patients with diabetes: a case study
title_sort Challenges of creating a peer support online community for patients with diabetes: a case study
dc.creator.none.fl_str_mv Bujanda Sainz de Murieta, Arantxa
Isomursu, Minna
Escalada Hernández, Paula
San Martín Rodríguez, Leticia
García Vivar, Cristina
Soto Ruiz, María Nelia
author Bujanda Sainz de Murieta, Arantxa
author_facet Bujanda Sainz de Murieta, Arantxa
Isomursu, Minna
Escalada Hernández, Paula
San Martín Rodríguez, Leticia
García Vivar, Cristina
Soto Ruiz, María Nelia
author_role author
author2 Isomursu, Minna
Escalada Hernández, Paula
San Martín Rodríguez, Leticia
García Vivar, Cristina
Soto Ruiz, María Nelia
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Ciencias de la Salud
Osasun Zientziak
Institute of Smart Cities - ISC
dc.subject.none.fl_str_mv Chronic conditions
Diabetes
Online community
Peer support
topic Chronic conditions
Diabetes
Online community
Peer support
description This study aims to explore the challenges and strategies in creating online communities for individuals with diabetes, emphasizing their role in fostering connections among individuals facing similar health conditions. Using a single-case approach, we investigated the design process of a diabetes online community using the classic waterfall model. Participants were recruited from a diabetes local association, and usability was assessed using the System Usability Scale and the think-aloud method. Subsequently, semistructured interviews were conducted to evaluate functionality and user experience. Data collection was conducted from August until December 2023. The development of the community unveiled significant usability challenges, highlighting the need for user feedback and improvement. Ethical considerations, including anonymity, usage conditions, privacy terms, and health information sharing, emerged as critical areas requiring meticulous attention. Furthermore, healthcare professional moderation was deemed essential to ensure a secure environment. Users expressed strong interest in enhanced interaction features and personalized notifications. Although online diabetes communities hold potential for peer support, addressing usability challenges, ethical considerations, and moderation issues is essential. This study emphasizes the ongoing necessity for research to enhance the development of patient communities, ensuring accessibility, mitigating ethical risks, and leveraging nurses as moderators.
publishDate 2025
dc.date.none.fl_str_mv 2025
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/acceptedVersion
format article
status_str acceptedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2454/52634
url https://hdl.handle.net/2454/52634
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv © 2024 Wolters Kluwer Health, Inc. All rights reserved.
info:eu-repo/semantics/openAccess
rights_invalid_str_mv © 2024 Wolters Kluwer Health, Inc. All rights reserved.
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Wolters Kluwer
publisher.none.fl_str_mv Wolters Kluwer
dc.source.none.fl_str_mv reponame:Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
instname:Universidad Pública de Navarra
instname_str Universidad Pública de Navarra
reponame_str Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
collection Academica-e. Repositorio Institucional de la Universidad Pública de Navarra
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