Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain

Rationale: Family refusal to organ donation of a deceased relative represents one of the most important barriers to organ transplantation. Although a large literature about family decisions has amassed, the existing evidence needs further integration and structuring. Objective: This study seeks to a...

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Autores: López, Jorge S., Soria-Oliver, María, Aramayona Quintana, Begoña, Martínez García, José Manuel, García Sánchez, Rubén, Martín López, María Jesús, Almendros Rodríguez, Carmen
Tipo de recurso: artículo
Fecha de publicación:2018
País:España
Institución:Universidad Autónoma de Madrid
Repositorio:Biblos-e Archivo. Repositorio Institucional de la UAM
Idioma:inglés
OAI Identifier:oai:repositorio.uam.es:10486/717147
Acceso en línea:http://hdl.handle.net/10486/717147
https://dx.doi.org/10.1016/j.socscimed.2018.03.039
Access Level:acceso abierto
Palabra clave:Deceased organ donation
Exploratory multivariate analysis
Family consent
Family decision-making
Quantitative research
Social psychology
Psicología
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spelling Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in SpainLópez, Jorge S.Soria-Oliver, MaríaAramayona Quintana, BegoñaMartínez García, José ManuelGarcía Sánchez, RubénMartín López, María JesúsAlmendros Rodríguez, CarmenDeceased organ donationExploratory multivariate analysisFamily consentFamily decision-makingQuantitative researchSocial psychologyPsicologíaRationale: Family refusal to organ donation of a deceased relative represents one of the most important barriers to organ transplantation. Although a large literature about family decisions has amassed, the existing evidence needs further integration and structuring. Objective: This study seeks to analyse relationships between bereaved relatives’ decisions and a wide range of factors that converge in the family decision process, including interactions and complex relationship patterns, and taking psychosocial theoretical frameworks as reference to conceptualize empirical findings. Method: This observational study examined 16 Spanish hospitals during a 36-month period. Transplant coordination teams collected data of 421 cases of family decision processes about donation (338 donations/83 refusals) through a previously validated instrument. Indicators of the following factors were collected: deceased's characteristics; circumstances of death; bereaved relatives’ characteristics, beliefs, and expressions; behaviour of health and coordination staff; and family's emotional responses. Three global hypotheses related to bivariate and multivariate relations of factors with family decisions and relationships/interactions among factors were tested. Results: Relatives’ beliefs about the deceased's wishes concerning donation are the strongest predictor of family decisions. However, family decisions are also related to the deceased's characteristics, relatives’ characteristics, satisfaction with medical attention, satisfaction with personal treatment and relatives’ emotional responses, and other factors. Relatives’ emotional reactions are related to satisfaction with health-staff interventions and condition family decision, even if deceased's will concerning donation is known and positive. Relatives’ beliefs about deceased's wishes concerning donation vary as a function of deceased's characteristics and according to relatives’ characteristics. Conclusions: Understanding of family decisions underlying organ donation may greatly benefit from a more complex, integrated, and theoretically based approach. Educational efforts should stress the need to register or simply communicate own willingness to donate organs. However, an adequate training and performance of the health-staff involved in the organ donation process may generate substantive differences in consent ratesThis work received financial support from the Fund for Health Research of the Spanish Ministry of Health and Consumer Affairs (FIS 95/0538)ElsevierDepartamento de Psicología Social y MetodologíaFacultad de Psicología20182018-04-06research articlehttp://purl.org/coar/resource_type/c_2df8fbb1AMhttp://purl.org/coar/version/c_ab4af688f83e57aainfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10486/717147https://dx.doi.org/10.1016/j.socscimed.2018.03.039reponame:Biblos-e Archivo. Repositorio Institucional de la UAMinstname:Universidad Autónoma de MadridInglésengopen accesshttp://purl.org/coar/access_right/c_abf2Attribution-NonCommercial-NoDerivatives 4.0 Internationalhttp://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessoai:repositorio.uam.es:10486/7171472026-06-23T12:46:27Z
dc.title.none.fl_str_mv Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
title Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
spellingShingle Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
López, Jorge S.
Deceased organ donation
Exploratory multivariate analysis
Family consent
Family decision-making
Quantitative research
Social psychology
Psicología
title_short Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
title_full Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
title_fullStr Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
title_full_unstemmed Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
title_sort Bereaved relatives’ decision about deceased organ donation: An integrated psycho-social study conducted in Spain
dc.creator.none.fl_str_mv López, Jorge S.
Soria-Oliver, María
Aramayona Quintana, Begoña
Martínez García, José Manuel
García Sánchez, Rubén
Martín López, María Jesús
Almendros Rodríguez, Carmen
author López, Jorge S.
author_facet López, Jorge S.
Soria-Oliver, María
Aramayona Quintana, Begoña
Martínez García, José Manuel
García Sánchez, Rubén
Martín López, María Jesús
Almendros Rodríguez, Carmen
author_role author
author2 Soria-Oliver, María
Aramayona Quintana, Begoña
Martínez García, José Manuel
García Sánchez, Rubén
Martín López, María Jesús
Almendros Rodríguez, Carmen
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv Departamento de Psicología Social y Metodología
Facultad de Psicología
dc.subject.none.fl_str_mv Deceased organ donation
Exploratory multivariate analysis
Family consent
Family decision-making
Quantitative research
Social psychology
Psicología
topic Deceased organ donation
Exploratory multivariate analysis
Family consent
Family decision-making
Quantitative research
Social psychology
Psicología
description Rationale: Family refusal to organ donation of a deceased relative represents one of the most important barriers to organ transplantation. Although a large literature about family decisions has amassed, the existing evidence needs further integration and structuring. Objective: This study seeks to analyse relationships between bereaved relatives’ decisions and a wide range of factors that converge in the family decision process, including interactions and complex relationship patterns, and taking psychosocial theoretical frameworks as reference to conceptualize empirical findings. Method: This observational study examined 16 Spanish hospitals during a 36-month period. Transplant coordination teams collected data of 421 cases of family decision processes about donation (338 donations/83 refusals) through a previously validated instrument. Indicators of the following factors were collected: deceased's characteristics; circumstances of death; bereaved relatives’ characteristics, beliefs, and expressions; behaviour of health and coordination staff; and family's emotional responses. Three global hypotheses related to bivariate and multivariate relations of factors with family decisions and relationships/interactions among factors were tested. Results: Relatives’ beliefs about the deceased's wishes concerning donation are the strongest predictor of family decisions. However, family decisions are also related to the deceased's characteristics, relatives’ characteristics, satisfaction with medical attention, satisfaction with personal treatment and relatives’ emotional responses, and other factors. Relatives’ emotional reactions are related to satisfaction with health-staff interventions and condition family decision, even if deceased's will concerning donation is known and positive. Relatives’ beliefs about deceased's wishes concerning donation vary as a function of deceased's characteristics and according to relatives’ characteristics. Conclusions: Understanding of family decisions underlying organ donation may greatly benefit from a more complex, integrated, and theoretically based approach. Educational efforts should stress the need to register or simply communicate own willingness to donate organs. However, an adequate training and performance of the health-staff involved in the organ donation process may generate substantive differences in consent rates
publishDate 2018
dc.date.none.fl_str_mv 2018
2018-04-06
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
AM
http://purl.org/coar/version/c_ab4af688f83e57aa
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv http://hdl.handle.net/10486/717147
https://dx.doi.org/10.1016/j.socscimed.2018.03.039
url http://hdl.handle.net/10486/717147
https://dx.doi.org/10.1016/j.socscimed.2018.03.039
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Elsevier
publisher.none.fl_str_mv Elsevier
dc.source.none.fl_str_mv reponame:Biblos-e Archivo. Repositorio Institucional de la UAM
instname:Universidad Autónoma de Madrid
instname_str Universidad Autónoma de Madrid
reponame_str Biblos-e Archivo. Repositorio Institucional de la UAM
collection Biblos-e Archivo. Repositorio Institucional de la UAM
repository.name.fl_str_mv
repository.mail.fl_str_mv
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