Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information

The availability of electronic health data favors scientific advance through the creation of repositories for secondary use. Data anonymization is a mandatory step to comply with current legislation. A service for the pseudonymization of electronic healthcare record (EHR) extracts aimed at facilitat...

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Autores: Somolinos, Roberto, Hernando, M Elena, Fragua, Juan A, Serrano, Pablo, Muñoz Carrero, Adolfo, Pascual-Carrasco, Mario, Caceres Tello, Jesus, Sánchez-de-Madariaga, Ricardo, Hernandez-Salvador, Carlos
Tipo de recurso: artículo
Fecha de publicación:2015
País:España
Institución:Instituto de Salud Carlos III (ISCIII)
Repositorio:Repisalud
Idioma:inglés
OAI Identifier:oai:repisalud.isciii.es:20.500.12105/10622
Acceso en línea:http://hdl.handle.net/20.500.12105/10622
Access Level:acceso abierto
Palabra clave:Electronic medical records
Identification of persons
ISO standards
Medical information systems
Pseudonymization
Telemedicine
Web services
Medical Informatics Applications
Confidentiality
Electronic Health Records
Humans
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spelling Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of InformationSomolinos, RobertoHernando, M ElenaFragua, Juan ASerrano, PabloMuñoz Carrero, AdolfoPascual-Carrasco, MarioCaceres Tello, JesusSánchez-de-Madariaga, RicardoHernandez-Salvador, CarlosElectronic medical recordsIdentification of personsISO standardsMedical information systemsPseudonymizationTelemedicineWeb servicesMedical Informatics ApplicationsConfidentialityElectronic Health RecordsHumansThe availability of electronic health data favors scientific advance through the creation of repositories for secondary use. Data anonymization is a mandatory step to comply with current legislation. A service for the pseudonymization of electronic healthcare record (EHR) extracts aimed at facilitating the exchange of clinical information for secondary use in compliance with legislation on data protection is presented. According to ISO/TS 25237, pseudonymization is a particular type of anonymization. This tool performs the anonymizations by maintaining three quasi-identifiers (gender, date of birth, and place of residence) with a degree of specification selected by the user. The developed system is based on the ISO/EN 13606 norm using its characteristics specifically favorable for anonymization. The service is made up of two independent modules: the demographic server and the pseudonymizing module. The demographic server supports the permanent storage of the demographic entities and the management of the identifiers. The pseudonymizing module anonymizes the ISO/EN 13606 extracts. The pseudonymizing process consists of four phases: the storage of the demographic information included in the extract, the substitution of the identifiers, the elimination of the demographic information of the extract, and the elimination of key data in free-text fields. The described pseudonymizing system was used in three telemedicine research projects with satisfactory results. A problem was detected with the type of data in a demographic data field and a proposal for modification was prepared for the group in charge of the drawing up and revision of the ISO/EN 13606 norm.Institute of Electrical and Electronics Engineers (IEEE)Instituto de Salud Carlos IIIPlan Nacional de I+D+i (España)20202020-07-0120152015-11-0120152015-11-01research articlehttp://purl.org/coar/resource_type/c_2df8fbb1SMURhttp://purl.org/coar/version/c_71e4c1898caa6e32info:eu-repo/semantics/articleapplication/pdfapplication/pdfhttp://hdl.handle.net/20.500.12105/10622reponame:Repisaludinstname:Instituto de Salud Carlos III (ISCIII)Inglésengopen accesshttp://purl.org/coar/access_right/c_abf2Atribución-NoComercial-CompartirIgual 4.0 Internacionalhttp://creativecommons.org/licenses/by-nc-sa/4.0/info:eu-repo/semantics/openAccessoai:repisalud.isciii.es:20.500.12105/106222026-06-12T12:43:37Z
dc.title.none.fl_str_mv Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
title Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
spellingShingle Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
Somolinos, Roberto
Electronic medical records
Identification of persons
ISO standards
Medical information systems
Pseudonymization
Telemedicine
Web services
Medical Informatics Applications
Confidentiality
Electronic Health Records
Humans
title_short Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
title_full Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
title_fullStr Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
title_full_unstemmed Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
title_sort Service for the Pseudonymization of Electronic Healthcare Records Based on ISO/EN 13606 for the Secondary Use of Information
dc.creator.none.fl_str_mv Somolinos, Roberto
Hernando, M Elena
Fragua, Juan A
Serrano, Pablo
Muñoz Carrero, Adolfo
Pascual-Carrasco, Mario
Caceres Tello, Jesus
Sánchez-de-Madariaga, Ricardo
Hernandez-Salvador, Carlos
author Somolinos, Roberto
author_facet Somolinos, Roberto
Hernando, M Elena
Fragua, Juan A
Serrano, Pablo
Muñoz Carrero, Adolfo
Pascual-Carrasco, Mario
Caceres Tello, Jesus
Sánchez-de-Madariaga, Ricardo
Hernandez-Salvador, Carlos
author_role author
author2 Hernando, M Elena
Fragua, Juan A
Serrano, Pablo
Muñoz Carrero, Adolfo
Pascual-Carrasco, Mario
Caceres Tello, Jesus
Sánchez-de-Madariaga, Ricardo
Hernandez-Salvador, Carlos
author2_role author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Instituto de Salud Carlos III
Plan Nacional de I+D+i (España)
dc.subject.none.fl_str_mv Electronic medical records
Identification of persons
ISO standards
Medical information systems
Pseudonymization
Telemedicine
Web services
Medical Informatics Applications
Confidentiality
Electronic Health Records
Humans
topic Electronic medical records
Identification of persons
ISO standards
Medical information systems
Pseudonymization
Telemedicine
Web services
Medical Informatics Applications
Confidentiality
Electronic Health Records
Humans
description The availability of electronic health data favors scientific advance through the creation of repositories for secondary use. Data anonymization is a mandatory step to comply with current legislation. A service for the pseudonymization of electronic healthcare record (EHR) extracts aimed at facilitating the exchange of clinical information for secondary use in compliance with legislation on data protection is presented. According to ISO/TS 25237, pseudonymization is a particular type of anonymization. This tool performs the anonymizations by maintaining three quasi-identifiers (gender, date of birth, and place of residence) with a degree of specification selected by the user. The developed system is based on the ISO/EN 13606 norm using its characteristics specifically favorable for anonymization. The service is made up of two independent modules: the demographic server and the pseudonymizing module. The demographic server supports the permanent storage of the demographic entities and the management of the identifiers. The pseudonymizing module anonymizes the ISO/EN 13606 extracts. The pseudonymizing process consists of four phases: the storage of the demographic information included in the extract, the substitution of the identifiers, the elimination of the demographic information of the extract, and the elimination of key data in free-text fields. The described pseudonymizing system was used in three telemedicine research projects with satisfactory results. A problem was detected with the type of data in a demographic data field and a proposal for modification was prepared for the group in charge of the drawing up and revision of the ISO/EN 13606 norm.
publishDate 2015
dc.date.none.fl_str_mv 2015
2015-11-01
2015
2015-11-01
2020
2020-07-01
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
SMUR
http://purl.org/coar/version/c_71e4c1898caa6e32
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv http://hdl.handle.net/20.500.12105/10622
url http://hdl.handle.net/20.500.12105/10622
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
Atribución-NoComercial-CompartirIgual 4.0 Internacional
http://creativecommons.org/licenses/by-nc-sa/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
Atribución-NoComercial-CompartirIgual 4.0 Internacional
http://creativecommons.org/licenses/by-nc-sa/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Institute of Electrical and Electronics Engineers (IEEE)
publisher.none.fl_str_mv Institute of Electrical and Electronics Engineers (IEEE)
dc.source.none.fl_str_mv reponame:Repisalud
instname:Instituto de Salud Carlos III (ISCIII)
instname_str Instituto de Salud Carlos III (ISCIII)
reponame_str Repisalud
collection Repisalud
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,812455

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