Recalibrating the ‘world map’ of palliative care development

Background: Despite growing interest from policy makers, researchers and activists, there is still little science to underpin the global development of palliative care. This study presents the methods deployed in the creation of a ‘world map’ of palliative care development. Building on two previous...

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Autores: Baur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036, Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680, Garralda-Domezain, E. (Eduardo)|||/items/4889891c-a97b-47ad-841f-f3285703cac3, Connor, S. (Stephen)|||/items/16a435f4-80fc-426d-999b-020b801bb58f, Clark, D. (David)|||/items/5f3f6591-d152-4315-84ab-74d5cd107580
Tipo de recurso: artículo
Fecha de publicación:2019
País:España
Institución:Universidad de Navarra
Repositorio:Dadun. Depósito Académico Digital de la Universidad de Navarra
Idioma:inglés
OAI Identifier:oai:dadun.unav.edu:10171/59139
Acceso en línea:https://hdl.handle.net/10171/59139
Access Level:acceso abierto
Palabra clave:Palliative care
Global development
Hospice
Mapping
Medicina paliativa
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spelling Recalibrating the ‘world map’ of palliative care developmentBaur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680Garralda-Domezain, E. (Eduardo)|||/items/4889891c-a97b-47ad-841f-f3285703cac3Connor, S. (Stephen)|||/items/16a435f4-80fc-426d-999b-020b801bb58fClark, D. (David)|||/items/5f3f6591-d152-4315-84ab-74d5cd107580Palliative careGlobal developmentHospiceMappingMedicina paliativaBackground: Despite growing interest from policy makers, researchers and activists, there is still little science to underpin the global development of palliative care. This study presents the methods deployed in the creation of a ‘world map’ of palliative care development. Building on two previous iterations, with improved rigour and taking into account reviewers’ feedback, the aim of the study is to determine the level of palliative care development in 198 countries in 2017, whilst ensuring comparability with previous versions. We present methods of data collection and analysis. Methods and analysis: Primary data on the level of palliative care development in 2017 was collected from in-country experts through an online questionnaire and, where required, supplemented by published documentary sources and grey literature. Population and per capita opioid consumption data were derived from independent sources. Data analysis was conducted according to a new scoring system and algorithm developed by the research team. Ethics and dissemination: The study was approved by the University of Glasgow College of Social Sciences Research Ethics Committee. Findings of the study will be disseminated in peer-reviewed journals, as a contribution to the second edition of the Global Atlas of Palliative Care at the End-of-Life, and via social media, including the Glasgow End of Life Studies Group blog and the project website. Limitations of the study: There are potential biases associated with self-reporting by key in-country experts. In some countries, the identified key expert failed to complete the questionnaire in whole or part and data limitations were potentially compounded by language restrictions, as questionnaires were available only in three European languages. The study relied in part on data from independent sources, the accuracy of which could not be verified.F1000ResearchDadun. Depósito Académico Digital Universidad de Navarra20202020-07-3120192019-01-0120192019-01-01journal articlehttp://purl.org/coar/resource_type/c_6501info:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/10171/59139reponame:Dadun. Depósito Académico Digital de la Universidad de Navarrainstname:Universidad de NavarraInglésengopen accesshttp://purl.org/coar/access_right/c_abf2info:eu-repo/semantics/openAccessoai:dadun.unav.edu:10171/591392026-06-21T12:47:57Z
dc.title.none.fl_str_mv Recalibrating the ‘world map’ of palliative care development
title Recalibrating the ‘world map’ of palliative care development
spellingShingle Recalibrating the ‘world map’ of palliative care development
Baur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036
Palliative care
Global development
Hospice
Mapping
Medicina paliativa
title_short Recalibrating the ‘world map’ of palliative care development
title_full Recalibrating the ‘world map’ of palliative care development
title_fullStr Recalibrating the ‘world map’ of palliative care development
title_full_unstemmed Recalibrating the ‘world map’ of palliative care development
title_sort Recalibrating the ‘world map’ of palliative care development
dc.creator.none.fl_str_mv Baur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036
Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Garralda-Domezain, E. (Eduardo)|||/items/4889891c-a97b-47ad-841f-f3285703cac3
Connor, S. (Stephen)|||/items/16a435f4-80fc-426d-999b-020b801bb58f
Clark, D. (David)|||/items/5f3f6591-d152-4315-84ab-74d5cd107580
author Baur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036
author_facet Baur, N. (Nicole)|||/items/6cca39cc-1a12-4630-869d-8cae2aaa6036
Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Garralda-Domezain, E. (Eduardo)|||/items/4889891c-a97b-47ad-841f-f3285703cac3
Connor, S. (Stephen)|||/items/16a435f4-80fc-426d-999b-020b801bb58f
Clark, D. (David)|||/items/5f3f6591-d152-4315-84ab-74d5cd107580
author_role author
author2 Centeno, C. (Carlos)|||/items/51b2dfa8-5e18-4188-a2f8-410672dce680
Garralda-Domezain, E. (Eduardo)|||/items/4889891c-a97b-47ad-841f-f3285703cac3
Connor, S. (Stephen)|||/items/16a435f4-80fc-426d-999b-020b801bb58f
Clark, D. (David)|||/items/5f3f6591-d152-4315-84ab-74d5cd107580
author2_role author
author
author
author
dc.contributor.none.fl_str_mv Dadun. Depósito Académico Digital Universidad de Navarra
dc.subject.none.fl_str_mv Palliative care
Global development
Hospice
Mapping
Medicina paliativa
topic Palliative care
Global development
Hospice
Mapping
Medicina paliativa
description Background: Despite growing interest from policy makers, researchers and activists, there is still little science to underpin the global development of palliative care. This study presents the methods deployed in the creation of a ‘world map’ of palliative care development. Building on two previous iterations, with improved rigour and taking into account reviewers’ feedback, the aim of the study is to determine the level of palliative care development in 198 countries in 2017, whilst ensuring comparability with previous versions. We present methods of data collection and analysis. Methods and analysis: Primary data on the level of palliative care development in 2017 was collected from in-country experts through an online questionnaire and, where required, supplemented by published documentary sources and grey literature. Population and per capita opioid consumption data were derived from independent sources. Data analysis was conducted according to a new scoring system and algorithm developed by the research team. Ethics and dissemination: The study was approved by the University of Glasgow College of Social Sciences Research Ethics Committee. Findings of the study will be disseminated in peer-reviewed journals, as a contribution to the second edition of the Global Atlas of Palliative Care at the End-of-Life, and via social media, including the Glasgow End of Life Studies Group blog and the project website. Limitations of the study: There are potential biases associated with self-reporting by key in-country experts. In some countries, the identified key expert failed to complete the questionnaire in whole or part and data limitations were potentially compounded by language restrictions, as questionnaires were available only in three European languages. The study relied in part on data from independent sources, the accuracy of which could not be verified.
publishDate 2019
dc.date.none.fl_str_mv 2019
2019-01-01
2019
2019-01-01
2020
2020-07-31
dc.type.none.fl_str_mv journal article
http://purl.org/coar/resource_type/c_6501
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://hdl.handle.net/10171/59139
url https://hdl.handle.net/10171/59139
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv F1000Research
publisher.none.fl_str_mv F1000Research
dc.source.none.fl_str_mv reponame:Dadun. Depósito Académico Digital de la Universidad de Navarra
instname:Universidad de Navarra
instname_str Universidad de Navarra
reponame_str Dadun. Depósito Académico Digital de la Universidad de Navarra
collection Dadun. Depósito Académico Digital de la Universidad de Navarra
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