Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study

Introduction. The WPAI-UC/CD-Caregiver questionnaires assess the impact of ulcerative colitis (UC) or Crohn’s disease (CD) on parents’/caregivers’ work life and daily activities. Our objective was to adapt and validate these questionnaires in the Spanish population. Methods. A translation and back-t...

ver descrição completa

Detalhes bibliográficos
Autor: Task Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)
Tipo de documento: artigo
Data de publicação:2024
País:España
Recursos:Universidad Francisco de Vitoria
Repositório:DDFV. Repositorio Institucional de la Universidad Francisco de Vitoria
Idioma:inglês
OAI Identifier:oai:ddfv.ufv.es:10641/7613
Acesso em linha:https://hdl.handle.net/10641/7613
Access Level:Acceso aberto
Palavra-chave:WPAI-UC-Caregiver and WPAI-CD-Caregiver
inflammatory bowel conditions
surveys and questionnaires
validation study
Pediatrics, Perinatology, and Child Health
Journal Article
Validation Study
Multicenter Study
Yes
yes
id ES_a4ebfc19a21327c8b63c9ce0e8a33c00
oai_identifier_str oai:ddfv.ufv.es:10641/7613
network_acronym_str ES
network_name_str España
repository_id_str
spelling Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter studyTask Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)WPAI-UC-Caregiver and WPAI-CD-Caregiverinflammatory bowel conditionssurveys and questionnairesvalidation studyPediatrics, Perinatology, and Child HealthJournal ArticleValidation StudyMulticenter StudyYesyesIntroduction. The WPAI-UC/CD-Caregiver questionnaires assess the impact of ulcerative colitis (UC) or Crohn’s disease (CD) on parents’/caregivers’ work life and daily activities. Our objective was to adapt and validate these questionnaires in the Spanish population. Methods. A translation and back-translation were done. The document was assessed by an expert committee and a pilot group of families of patients with pediatric inflammatory bowel disease (p-IBD). For validation, the parents/caregivers of patients with p-IBD (10–18 years old) were recruited. The expert committee and the pilot group conducted a subjective assessment of the format and time necessary to complete the questionnaires. Cronbach’s alpha coefficient was estimated and a factor analysis with varimax rotation was done. Kaiser-Meyer-Olkin (KMO) coefficients and Bartlett’s sphericity test were estimated to test the adequacy of the factor analysis. Results. A total of 370 patients (median age: 14.1 years) and 263 parents/caregivers of patients with UC or unclassified IBD and 261 parents/caregivers of patients with CD were included. The KMO coefficients (0.6947 and 0.7179) and Bartlett’s sphericity test (p < 0.001) confirmed the adequacy of the factor analysis. The 6 items targeted the same domain. The factor model accounted for 99.99% and 94.68% of variance, and Cronbach’s alpha coefficients (0.6581 and 0.6968) showed an adequate consistency. The format and the median time of 2 minutes to complete the questionnaires were considered optimal. Conclusions. The versions of the WPAI-Caregiver questionnaires validated in the Spanish population may be used in families whose children have IBD.Facultad de Medicina20242024-12-0120242024-12-01journal articlehttp://purl.org/coar/resource_type/c_6501info:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/10641/7613reponame:DDFV. Repositorio Institucional de la Universidad Francisco de Vitoriainstname:Universidad Francisco de VitoriaInglésengopen accesshttp://purl.org/coar/access_right/c_abf2http://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessoai:ddfv.ufv.es:10641/76132026-06-11T12:44:57Z
dc.title.none.fl_str_mv Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
title Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
spellingShingle Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
Task Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)
WPAI-UC-Caregiver and WPAI-CD-Caregiver
inflammatory bowel conditions
surveys and questionnaires
validation study
Pediatrics, Perinatology, and Child Health
Journal Article
Validation Study
Multicenter Study
Yes
yes
title_short Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
title_full Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
title_fullStr Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
title_full_unstemmed Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
title_sort Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study
dc.creator.none.fl_str_mv Task Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)
author Task Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)
author_facet Task Force for Pediatric Inflammatory Bowel Disease of the Spanish Society of Pediatric Gastroenterology, Hepatology, and Nutrition (SEGHNP)
author_role author
dc.contributor.none.fl_str_mv Facultad de Medicina
dc.subject.none.fl_str_mv WPAI-UC-Caregiver and WPAI-CD-Caregiver
inflammatory bowel conditions
surveys and questionnaires
validation study
Pediatrics, Perinatology, and Child Health
Journal Article
Validation Study
Multicenter Study
Yes
yes
topic WPAI-UC-Caregiver and WPAI-CD-Caregiver
inflammatory bowel conditions
surveys and questionnaires
validation study
Pediatrics, Perinatology, and Child Health
Journal Article
Validation Study
Multicenter Study
Yes
yes
description Introduction. The WPAI-UC/CD-Caregiver questionnaires assess the impact of ulcerative colitis (UC) or Crohn’s disease (CD) on parents’/caregivers’ work life and daily activities. Our objective was to adapt and validate these questionnaires in the Spanish population. Methods. A translation and back-translation were done. The document was assessed by an expert committee and a pilot group of families of patients with pediatric inflammatory bowel disease (p-IBD). For validation, the parents/caregivers of patients with p-IBD (10–18 years old) were recruited. The expert committee and the pilot group conducted a subjective assessment of the format and time necessary to complete the questionnaires. Cronbach’s alpha coefficient was estimated and a factor analysis with varimax rotation was done. Kaiser-Meyer-Olkin (KMO) coefficients and Bartlett’s sphericity test were estimated to test the adequacy of the factor analysis. Results. A total of 370 patients (median age: 14.1 years) and 263 parents/caregivers of patients with UC or unclassified IBD and 261 parents/caregivers of patients with CD were included. The KMO coefficients (0.6947 and 0.7179) and Bartlett’s sphericity test (p < 0.001) confirmed the adequacy of the factor analysis. The 6 items targeted the same domain. The factor model accounted for 99.99% and 94.68% of variance, and Cronbach’s alpha coefficients (0.6581 and 0.6968) showed an adequate consistency. The format and the median time of 2 minutes to complete the questionnaires were considered optimal. Conclusions. The versions of the WPAI-Caregiver questionnaires validated in the Spanish population may be used in families whose children have IBD.
publishDate 2024
dc.date.none.fl_str_mv 2024
2024-12-01
2024
2024-12-01
dc.type.none.fl_str_mv journal article
http://purl.org/coar/resource_type/c_6501
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://hdl.handle.net/10641/7613
url https://hdl.handle.net/10641/7613
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2

http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2

http://creativecommons.org/licenses/by-nc-nd/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:DDFV. Repositorio Institucional de la Universidad Francisco de Vitoria
instname:Universidad Francisco de Vitoria
instname_str Universidad Francisco de Vitoria
reponame_str DDFV. Repositorio Institucional de la Universidad Francisco de Vitoria
collection DDFV. Repositorio Institucional de la Universidad Francisco de Vitoria
repository.name.fl_str_mv
repository.mail.fl_str_mv
_version_ 1869415554230517760
score 15.812429

Registros relacionados