Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents

Introduction: Achondroplasia is a common skeletal dysplasia caused by a mutation in the FGFR3 gene, leading to disproportionate short stature and various clinical features. Despite the absence of definitive pharmacological treatments, mindfulness-based interventions may offer psychosocial benefits f...

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Autores: Casellas, Àngel, Casellas Grau, Anna, Serra Jubany, Àngel, Busquets, Ester (Busquets Alibés)
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:España
Recursos:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/220419
Acesso em linha:https://hdl.handle.net/2445/220419
Access Level:acceso abierto
Palavra-chave:Trastorns del creixement
Teràpia cognitiva basada en l'atenció plena
Psicologia infantil
Psicologia de l'adolescència
Growth disorders
Mindfulness-based cognitive therapy
Child psychology
Adolescent psychology
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spelling Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parentsCasellas, ÀngelCasellas Grau, AnnaSerra Jubany, ÀngelBusquets, Ester (Busquets Alibés)Trastorns del creixementTeràpia cognitiva basada en l'atenció plenaPsicologia infantilPsicologia de l'adolescènciaGrowth disordersMindfulness-based cognitive therapyChild psychologyAdolescent psychologyIntroduction: Achondroplasia is a common skeletal dysplasia caused by a mutation in the FGFR3 gene, leading to disproportionate short stature and various clinical features. Despite the absence of definitive pharmacological treatments, mindfulness-based interventions may offer psychosocial benefits for affected individuals and their families. Objectives: This study aimed to assess the feasibility and psychosocial effects of an online mindfulness intervention for children and adolescents with achondroplasia and their parents. Methodology: The intervention was an eight-week, synchronous online program with 15 participants: seven children and adolescents with achondroplasia and eight parents. Quantitative outcomes were assessed pre-and post-intervention using the State-Trait Anxiety Inventory for Children (STAIC) and the Multifactorial Self- Assessment Child Adaptation Test (TAMAI) for the younger participants, along with the Brief Symptom Inventory (BSI-18) for parents. Participant satisfaction was assessed using a customized survey, and qualitative data were collected through semi-structured interviews. Results: The study demonstrated high feasibility, with 84.61% adherence and 93.75% participant satisfaction. Average anxiety levels decreased in children and adolescents (30.60 f 5.12 to 26.80 f 6.94, p = .285) and parents (3.67 f 3.98 to 1.00 f .89, p = .066). Emotional regulation was the most reported improvement category by children and adolescents (31.4%), while general well-being was the most noted by parents (29.63%). Conclusions: The results support the feasibility of this online mindfulness intervention for individuals with achondroplasia and their parents, indicating benefits for psychosocial well-being. Future studies should address these limitations by expanding sample sizes, exploring hybrid intervention models, and ensuring data anonymity. Integrating mindfulness into comprehensive psychosocial care strategies could enhance the quality of life for these populations.Elsevier BV2024info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://hdl.handle.net/2445/220419Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésReproducció del document publicat a: https://doi.org/10.1016/j.ejmg.2024.104984European Journal of Medical Genetics, 2024, vol. 72https://doi.org/10.1016/j.ejmg.2024.104984cc-by (c) Casellas, Àngel et al., 2024http://creativecommons.org/licenses/by/3.0/es/info:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/2204192026-05-27T06:46:51Z
dc.title.none.fl_str_mv Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
title Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
spellingShingle Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
Casellas, Àngel
Trastorns del creixement
Teràpia cognitiva basada en l'atenció plena
Psicologia infantil
Psicologia de l'adolescència
Growth disorders
Mindfulness-based cognitive therapy
Child psychology
Adolescent psychology
title_short Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
title_full Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
title_fullStr Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
title_full_unstemmed Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
title_sort Feasibility study of the psychosocial effects of an online mindfulness intervention in children and adolescents with achondroplasia and their parents
dc.creator.none.fl_str_mv Casellas, Àngel
Casellas Grau, Anna
Serra Jubany, Àngel
Busquets, Ester (Busquets Alibés)
author Casellas, Àngel
author_facet Casellas, Àngel
Casellas Grau, Anna
Serra Jubany, Àngel
Busquets, Ester (Busquets Alibés)
author_role author
author2 Casellas Grau, Anna
Serra Jubany, Àngel
Busquets, Ester (Busquets Alibés)
author2_role author
author
author
dc.subject.none.fl_str_mv Trastorns del creixement
Teràpia cognitiva basada en l'atenció plena
Psicologia infantil
Psicologia de l'adolescència
Growth disorders
Mindfulness-based cognitive therapy
Child psychology
Adolescent psychology
topic Trastorns del creixement
Teràpia cognitiva basada en l'atenció plena
Psicologia infantil
Psicologia de l'adolescència
Growth disorders
Mindfulness-based cognitive therapy
Child psychology
Adolescent psychology
description Introduction: Achondroplasia is a common skeletal dysplasia caused by a mutation in the FGFR3 gene, leading to disproportionate short stature and various clinical features. Despite the absence of definitive pharmacological treatments, mindfulness-based interventions may offer psychosocial benefits for affected individuals and their families. Objectives: This study aimed to assess the feasibility and psychosocial effects of an online mindfulness intervention for children and adolescents with achondroplasia and their parents. Methodology: The intervention was an eight-week, synchronous online program with 15 participants: seven children and adolescents with achondroplasia and eight parents. Quantitative outcomes were assessed pre-and post-intervention using the State-Trait Anxiety Inventory for Children (STAIC) and the Multifactorial Self- Assessment Child Adaptation Test (TAMAI) for the younger participants, along with the Brief Symptom Inventory (BSI-18) for parents. Participant satisfaction was assessed using a customized survey, and qualitative data were collected through semi-structured interviews. Results: The study demonstrated high feasibility, with 84.61% adherence and 93.75% participant satisfaction. Average anxiety levels decreased in children and adolescents (30.60 f 5.12 to 26.80 f 6.94, p = .285) and parents (3.67 f 3.98 to 1.00 f .89, p = .066). Emotional regulation was the most reported improvement category by children and adolescents (31.4%), while general well-being was the most noted by parents (29.63%). Conclusions: The results support the feasibility of this online mindfulness intervention for individuals with achondroplasia and their parents, indicating benefits for psychosocial well-being. Future studies should address these limitations by expanding sample sizes, exploring hybrid intervention models, and ensuring data anonymity. Integrating mindfulness into comprehensive psychosocial care strategies could enhance the quality of life for these populations.
publishDate 2024
dc.date.none.fl_str_mv 2024
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/220419
url https://hdl.handle.net/2445/220419
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.1016/j.ejmg.2024.104984
European Journal of Medical Genetics, 2024, vol. 72
https://doi.org/10.1016/j.ejmg.2024.104984
dc.rights.none.fl_str_mv cc-by (c) Casellas, Àngel et al., 2024
http://creativecommons.org/licenses/by/3.0/es/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc-by (c) Casellas, Àngel et al., 2024
http://creativecommons.org/licenses/by/3.0/es/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Elsevier BV
publisher.none.fl_str_mv Elsevier BV
dc.source.none.fl_str_mv Articles publicats en revistes (Institut d'lnvestigació Biomèdica de Bellvitge (IDIBELL))
reponame:Dipòsit Digital de la UB
instname:Universidad de Barcelona
instname_str Universidad de Barcelona
reponame_str Dipòsit Digital de la UB
collection Dipòsit Digital de la UB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15.812429

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