Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals
Objectives. Our research aims to compare the perception that children in the pediatric palliative care setting have of their emotional well-being, or that expressed by the parents, with the perception held by the professionals involved in their care. Methods. In this cross-sectional study, the emoti...
| Autores: | , , , , , |
|---|---|
| Tipo de recurso: | artículo |
| Estado: | Versión publicada |
| Fecha de publicación: | 2024 |
| País: | España |
| Institución: | Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya) |
| Repositorio: | Recercat. Dipósit de la Recerca de Catalunya |
| OAI Identifier: | oai:recercat.cat:2445/215440 |
| Acceso en línea: | https://hdl.handle.net/2445/215440 |
| Access Level: | acceso abierto |
| Palabra clave: | Pediatria Tractament pal·liatiu Emocions en els infants Benestar Pediatrics Palliative treatment Emotions in children Well-being |
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Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionalsToro Pérez, Daniel delCamprodon-Rosanas, EsterNavarro Vilarrubí, SergiBolancé Losilla, CatalinaGuillén, MontserratLimonero, Joaquin T.PediatriaTractament pal·liatiuEmocions en els infantsBenestarPediatricsPalliative treatmentEmotions in childrenWell-beingObjectives. Our research aims to compare the perception that children in the pediatric palliative care setting have of their emotional well-being, or that expressed by the parents, with the perception held by the professionals involved in their care. Methods. In this cross-sectional study, the emotional well-being of 30 children with a mean age of 10.8 years (standard deviation [SD] = 6.1) is evaluated. Children, or parents where necessary, evaluate their situation with a question about emotional well-being on a 0–10 visual analog scale. For each child, a health professional also rates the child’s emotional status using the same scale. Results. Theaveragechild’semotionalwell-beingscoreprovidedbychildrenorparentswas7.1 (SD =1.6), while the average score given by health professionals was 5.6 (SD = 1.2). Children or parents graded the children’s emotional well-being significantly higher than professionals (t-test = 4.6, p-value < .001). Health professionals rated the children’s emotional well-being significantly lower when the disease status was progressive than when the disease was not (t-test = 2.2, p-value = .037). Significance of results. Children themselves, or their parents, report more positive evaluations of emotional well-being than health professionals. Sociodemographic and disease variables do not seem to have a direct influence on this perception, rather it is more likely that children, parents, and professionals focus on different aspects and that children or parents need to hold on to a more optimistic vision. We must emphasize that when this difference is more pronounced, it can be a warning sign that further analysis is required of the situation.Cambridge University Press (CUP)2024202420242024info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion9 p.application/pdfhttps://hdl.handle.net/2445/215440Articles publicats en revistes (Economia)reponame:Recercat. Dipósit de la Recerca de Catalunyainstname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)InglésReproducció del document publicat a: https://doi.org/10.1017/S1478951523000251Palliative & Supportive Care, 2024, vol. 22, núm. 5, p. 1000–1008https://doi.org/10.1017/S1478951523000251cc by (c) Toro Pérez et al., 2024http://creativecommons.org/licenses/by/3.0/es/info:eu-repo/semantics/openAccessoai:recercat.cat:2445/2154402026-05-29T05:05:01Z |
| dc.title.none.fl_str_mv |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| title |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| spellingShingle |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals Toro Pérez, Daniel del Pediatria Tractament pal·liatiu Emocions en els infants Benestar Pediatrics Palliative treatment Emotions in children Well-being |
| title_short |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| title_full |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| title_fullStr |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| title_full_unstemmed |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| title_sort |
Assessing well-being in pediatric palliative care: A pilot study about views of children parents and health professionals |
| dc.creator.none.fl_str_mv |
Toro Pérez, Daniel del Camprodon-Rosanas, Ester Navarro Vilarrubí, Sergi Bolancé Losilla, Catalina Guillén, Montserrat Limonero, Joaquin T. |
| author |
Toro Pérez, Daniel del |
| author_facet |
Toro Pérez, Daniel del Camprodon-Rosanas, Ester Navarro Vilarrubí, Sergi Bolancé Losilla, Catalina Guillén, Montserrat Limonero, Joaquin T. |
| author_role |
author |
| author2 |
Camprodon-Rosanas, Ester Navarro Vilarrubí, Sergi Bolancé Losilla, Catalina Guillén, Montserrat Limonero, Joaquin T. |
| author2_role |
author author author author author |
| dc.subject.none.fl_str_mv |
Pediatria Tractament pal·liatiu Emocions en els infants Benestar Pediatrics Palliative treatment Emotions in children Well-being |
| topic |
Pediatria Tractament pal·liatiu Emocions en els infants Benestar Pediatrics Palliative treatment Emotions in children Well-being |
| description |
Objectives. Our research aims to compare the perception that children in the pediatric palliative care setting have of their emotional well-being, or that expressed by the parents, with the perception held by the professionals involved in their care. Methods. In this cross-sectional study, the emotional well-being of 30 children with a mean age of 10.8 years (standard deviation [SD] = 6.1) is evaluated. Children, or parents where necessary, evaluate their situation with a question about emotional well-being on a 0–10 visual analog scale. For each child, a health professional also rates the child’s emotional status using the same scale. Results. Theaveragechild’semotionalwell-beingscoreprovidedbychildrenorparentswas7.1 (SD =1.6), while the average score given by health professionals was 5.6 (SD = 1.2). Children or parents graded the children’s emotional well-being significantly higher than professionals (t-test = 4.6, p-value < .001). Health professionals rated the children’s emotional well-being significantly lower when the disease status was progressive than when the disease was not (t-test = 2.2, p-value = .037). Significance of results. Children themselves, or their parents, report more positive evaluations of emotional well-being than health professionals. Sociodemographic and disease variables do not seem to have a direct influence on this perception, rather it is more likely that children, parents, and professionals focus on different aspects and that children or parents need to hold on to a more optimistic vision. We must emphasize that when this difference is more pronounced, it can be a warning sign that further analysis is required of the situation. |
| publishDate |
2024 |
| dc.date.none.fl_str_mv |
2024 2024 2024 2024 |
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info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
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article |
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publishedVersion |
| dc.identifier.none.fl_str_mv |
https://hdl.handle.net/2445/215440 |
| url |
https://hdl.handle.net/2445/215440 |
| dc.language.none.fl_str_mv |
Inglés |
| language_invalid_str_mv |
Inglés |
| dc.relation.none.fl_str_mv |
Reproducció del document publicat a: https://doi.org/10.1017/S1478951523000251 Palliative & Supportive Care, 2024, vol. 22, núm. 5, p. 1000–1008 https://doi.org/10.1017/S1478951523000251 |
| dc.rights.none.fl_str_mv |
cc by (c) Toro Pérez et al., 2024 http://creativecommons.org/licenses/by/3.0/es/ info:eu-repo/semantics/openAccess |
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cc by (c) Toro Pérez et al., 2024 http://creativecommons.org/licenses/by/3.0/es/ |
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openAccess |
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9 p. application/pdf |
| dc.publisher.none.fl_str_mv |
Cambridge University Press (CUP) |
| publisher.none.fl_str_mv |
Cambridge University Press (CUP) |
| dc.source.none.fl_str_mv |
Articles publicats en revistes (Economia) reponame:Recercat. Dipósit de la Recerca de Catalunya instname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya) |
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Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya) |
| reponame_str |
Recercat. Dipósit de la Recerca de Catalunya |
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Recercat. Dipósit de la Recerca de Catalunya |
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