Elevating the Standard of Care for Patients with Psoriasis
Despite advances in treatment options and the management of patients with psoriasis, considerable unmet needs remain. Our objective was to identify ways to elevate the standard of care for patients with psoriasis by combining the perspectives of three important stakeholders: patients, clinicians and...
| Autores: | , , , , , , , , , , , , , , |
|---|---|
| Tipo de recurso: | artículo |
| Fecha de publicación: | 2022 |
| País: | España |
| Institución: | Universitat Autònoma de Barcelona |
| Repositorio: | Dipòsit Digital de Documents de la UAB |
| Idioma: | inglés |
| OAI Identifier: | oai:ddd.uab.cat:281766 |
| Acceso en línea: | https://ddd.uab.cat/record/281766 https://dx.doi.org/urn:doi:10.1007/s13555-022-00846-3 |
| Access Level: | acceso abierto |
| Palabra clave: | Consensus Delphi Multistakeholder Psoriasis Standard of care |
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Elevating the Standard of Care for Patients with Psoriasis'Calls to Action' from Epicensus, a Multistakeholder Pan-European InitiativeKoren, JanLambert, Jo|||0000-0001-5303-9310Thomsen, Simon F.McAteer, Helen|||0000-0002-2887-5533Fabbrocini, GabriellaCorazza, Valeria|||0000-0002-0131-3012Jullien, Denis|||0000-0002-2995-7928Augustin, Matthias|||0000-0002-4026-8728Warren, Richard B.|||0000-0002-2918-6481de Rie, Menno A.Lazaridou, Elizabeth|||0000-0002-4072-3591Puig Sanz, Lluís|||0000-0001-6083-0952Guillevin, LoïcGrosser, MariusBoehncke, Wolf-Henning|||0000-0002-1225-7124ConsensusDelphiMultistakeholderPsoriasisStandard of careDespite advances in treatment options and the management of patients with psoriasis, considerable unmet needs remain. Our objective was to identify ways to elevate the standard of care for patients with psoriasis by combining the perspectives of three important stakeholders: patients, clinicians and payors, and define 'Calls to Action' designed to achieve the identified changes. Eight themes relevant to elevating the standard of care were identified from an insights-gathering questionnaire completed by all three stakeholder groups. A modified Delphi exercise gained consensus on statements informed by the insights. Statements were then used to inspire 'Calls to Action' - practical steps that could be taken to realise the desired changes and elevate the standard of care. In total, 18 European experts (10 dermatologists, 3 payors and 5 patient representatives) took part in the Delphi process. Consensus was reached on statements relating to all eight themes: improve healthcare systems to better support multidisciplinary team working and digital services, real-world data generation and optimal use, improve patient access, elevate quality-of-life measures as the most important outcomes, involve patients in patient-centred and personalised approaches to care, improve the relevance and reach of guidelines, education, and multistakeholder engagement. 'Calls to Action' common to all three stakeholder groups recognised the need to capitalise on the shift to digital healthcare, the need for consistent input into registries to generate real-world evidence to support guideline development, and the necessity of educating patients on the benefits of reporting outcomes to generate real-world data. The enormous quality-of-life burden and psychological impact of psoriasis, as well as the clinical needs of patients must be better understood, including by healthcare commissioners, so that funding priorities are assessed appropriately. This unique initiative identified a practical 'Call-to-Action Framework' which, if implemented, could help improve the standard of care for patients with psoriasis. The online version contains supplementary material available at 10.1007/s13555-022-00846-3.Universitat Autònoma de Barcelona 22022-01-0120222022-01-01Articlehttp://purl.org/coar/resource_type/c_6501VoRhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articleapplication/pdfhttps://ddd.uab.cat/record/281766https://dx.doi.org/urn:doi:10.1007/s13555-022-00846-3reponame:Dipòsit Digital de Documents de la UABinstname:Universitat Autònoma de BarcelonaInglésengopen accesshttp://purl.org/coar/access_right/c_abf2Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.https://creativecommons.org/licenses/by-nc/4.0/info:eu-repo/semantics/openAccessoai:ddd.uab.cat:2817662026-06-06T12:50:31Z |
| dc.title.none.fl_str_mv |
Elevating the Standard of Care for Patients with Psoriasis 'Calls to Action' from Epicensus, a Multistakeholder Pan-European Initiative |
| title |
Elevating the Standard of Care for Patients with Psoriasis |
| spellingShingle |
Elevating the Standard of Care for Patients with Psoriasis Koren, Jan Consensus Delphi Multistakeholder Psoriasis Standard of care |
| title_short |
Elevating the Standard of Care for Patients with Psoriasis |
| title_full |
Elevating the Standard of Care for Patients with Psoriasis |
| title_fullStr |
Elevating the Standard of Care for Patients with Psoriasis |
| title_full_unstemmed |
Elevating the Standard of Care for Patients with Psoriasis |
| title_sort |
Elevating the Standard of Care for Patients with Psoriasis |
| dc.creator.none.fl_str_mv |
Koren, Jan Lambert, Jo|||0000-0001-5303-9310 Thomsen, Simon F. McAteer, Helen|||0000-0002-2887-5533 Fabbrocini, Gabriella Corazza, Valeria|||0000-0002-0131-3012 Jullien, Denis|||0000-0002-2995-7928 Augustin, Matthias|||0000-0002-4026-8728 Warren, Richard B.|||0000-0002-2918-6481 de Rie, Menno A. Lazaridou, Elizabeth|||0000-0002-4072-3591 Puig Sanz, Lluís|||0000-0001-6083-0952 Guillevin, Loïc Grosser, Marius Boehncke, Wolf-Henning|||0000-0002-1225-7124 |
| author |
Koren, Jan |
| author_facet |
Koren, Jan Lambert, Jo|||0000-0001-5303-9310 Thomsen, Simon F. McAteer, Helen|||0000-0002-2887-5533 Fabbrocini, Gabriella Corazza, Valeria|||0000-0002-0131-3012 Jullien, Denis|||0000-0002-2995-7928 Augustin, Matthias|||0000-0002-4026-8728 Warren, Richard B.|||0000-0002-2918-6481 de Rie, Menno A. Lazaridou, Elizabeth|||0000-0002-4072-3591 Puig Sanz, Lluís|||0000-0001-6083-0952 Guillevin, Loïc Grosser, Marius Boehncke, Wolf-Henning|||0000-0002-1225-7124 |
| author_role |
author |
| author2 |
Lambert, Jo|||0000-0001-5303-9310 Thomsen, Simon F. McAteer, Helen|||0000-0002-2887-5533 Fabbrocini, Gabriella Corazza, Valeria|||0000-0002-0131-3012 Jullien, Denis|||0000-0002-2995-7928 Augustin, Matthias|||0000-0002-4026-8728 Warren, Richard B.|||0000-0002-2918-6481 de Rie, Menno A. Lazaridou, Elizabeth|||0000-0002-4072-3591 Puig Sanz, Lluís|||0000-0001-6083-0952 Guillevin, Loïc Grosser, Marius Boehncke, Wolf-Henning|||0000-0002-1225-7124 |
| author2_role |
author author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Universitat Autònoma de Barcelona |
| dc.subject.none.fl_str_mv |
Consensus Delphi Multistakeholder Psoriasis Standard of care |
| topic |
Consensus Delphi Multistakeholder Psoriasis Standard of care |
| description |
Despite advances in treatment options and the management of patients with psoriasis, considerable unmet needs remain. Our objective was to identify ways to elevate the standard of care for patients with psoriasis by combining the perspectives of three important stakeholders: patients, clinicians and payors, and define 'Calls to Action' designed to achieve the identified changes. Eight themes relevant to elevating the standard of care were identified from an insights-gathering questionnaire completed by all three stakeholder groups. A modified Delphi exercise gained consensus on statements informed by the insights. Statements were then used to inspire 'Calls to Action' - practical steps that could be taken to realise the desired changes and elevate the standard of care. In total, 18 European experts (10 dermatologists, 3 payors and 5 patient representatives) took part in the Delphi process. Consensus was reached on statements relating to all eight themes: improve healthcare systems to better support multidisciplinary team working and digital services, real-world data generation and optimal use, improve patient access, elevate quality-of-life measures as the most important outcomes, involve patients in patient-centred and personalised approaches to care, improve the relevance and reach of guidelines, education, and multistakeholder engagement. 'Calls to Action' common to all three stakeholder groups recognised the need to capitalise on the shift to digital healthcare, the need for consistent input into registries to generate real-world evidence to support guideline development, and the necessity of educating patients on the benefits of reporting outcomes to generate real-world data. The enormous quality-of-life burden and psychological impact of psoriasis, as well as the clinical needs of patients must be better understood, including by healthcare commissioners, so that funding priorities are assessed appropriately. This unique initiative identified a practical 'Call-to-Action Framework' which, if implemented, could help improve the standard of care for patients with psoriasis. The online version contains supplementary material available at 10.1007/s13555-022-00846-3. |
| publishDate |
2022 |
| dc.date.none.fl_str_mv |
2 2022-01-01 2022 2022-01-01 |
| dc.type.none.fl_str_mv |
Article http://purl.org/coar/resource_type/c_6501 VoR http://purl.org/coar/version/c_970fb48d4fbd8a85 |
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info:eu-repo/semantics/article |
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article |
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https://ddd.uab.cat/record/281766 https://dx.doi.org/urn:doi:10.1007/s13555-022-00846-3 |
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https://ddd.uab.cat/record/281766 https://dx.doi.org/urn:doi:10.1007/s13555-022-00846-3 |
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Inglés eng |
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Inglés |
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eng |
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open access http://purl.org/coar/access_right/c_abf2 https://creativecommons.org/licenses/by-nc/4.0/ |
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info:eu-repo/semantics/openAccess |
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open access http://purl.org/coar/access_right/c_abf2 https://creativecommons.org/licenses/by-nc/4.0/ |
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