Direct Medical Costs of Spinal Muscular Atrophy in the Catalonia Region: A Population-Based Analysis

Background : Spinal muscular atrophy (SMA) is a rare disorder, estimated to affect 1 per 10,000 live births. Patients affected with SMA often require intensive, chronic healthcare, which represents great social and economic costs. / Objective : This study aimed to evaluate the direct medical costs o...

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Detalhes bibliográficos
Autor: Darbà, Josep
Formato: artículo
Estado:Versión aceptada para publicación
Fecha de publicación:2020
País:España
Recursos:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repositorio:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:2445/175368
Acesso em linha:https://hdl.handle.net/2445/175368
Access Level:acceso abierto
Palavra-chave:Atròfia muscular
Gestió hospitalària
Política sanitària
Anàlisi cost-benefici
Muscular atrophy
Hospital administration
Medical policy
Cost effectiveness
Descrição
Resumo:Background : Spinal muscular atrophy (SMA) is a rare disorder, estimated to affect 1 per 10,000 live births. Patients affected with SMA often require intensive, chronic healthcare, which represents great social and economic costs. / Objective : This study aimed to evaluate the direct medical costs of SMA, from the National Health System perspective in Catalonia, and provide regional data for the development of optimal disease management protocols and resource allocation decisions at the regional level (...)