Family quality of life in Neurodegenerative Diseases and associated factors [Dataset]
[EN]This database was developed in a study of 300 family members of patients with Neurodegenerative Diseases (NDs), living in the cross-border region of Spain-Portugal, mostly in rural areas (70% females, mean age: 62.4). The majority were primary caregivers. Data were collected from October 2019 to...
| Autores: | , , , , , |
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| Formato: | conjunto de datos |
| Estado: | Versión actualizada desde la publicación |
| Fecha de publicación: | 2021 |
| País: | España |
| Recursos: | Universidad de Salamanca (USAL) |
| Repositorio: | GREDOS. Repositorio Institucional de la Universidad de Salamanca |
| OAI Identifier: | oai:gredos.usal.es:10366/147031 |
| Acesso em linha: | http://hdl.handle.net/10366/147031 |
| Access Level: | acceso abierto |
| Palavra-chave: | Neurodegenerative diseases Family quality of life FQOLS-ND Services Quality of Life Neurodegenerative Diseases 3207.11 Neuropatología 6310.09 Calidad de Vida enfermedades neurodegenerativas calidad de vida |
| Resumo: | [EN]This database was developed in a study of 300 family members of patients with Neurodegenerative Diseases (NDs), living in the cross-border region of Spain-Portugal, mostly in rural areas (70% females, mean age: 62.4). The majority were primary caregivers. Data were collected from October 2019 to July 2020 through a survey administered via telephone. Concretely, the FQOLS–ND examined how the family perceived its quality of life at the global and domain-level, in terms of attainment and satisfaction. It also collected data on diverse sociodemographic, family, and social-health factors. The survey is available at: http://hdl.handle.net/10366/145788. |
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