Patient-reported outcomes: pathways to better health, better services, and better societies.

While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and po...

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Autores: Black, Nick, Burke, L., Forrest, Christopher B., Ravens, Sieberer U. H., Ahmed, Sara, Valderas Martínez, José María, Bartlett, Susan J., Alonso Caballero, Jordi
Tipo de recurso: artículo
Estado:Versión aceptada para publicación
Fecha de publicación:2016
País:España
Institución:Universitat Pompeu Fabra
Repositorio:Repositorio Digital de la UPF
OAI Identifier:oai:repositori.upf.edu:10230/26300
Acceso en línea:http://hdl.handle.net/10230/26300
http://dx.doi.org/10.1007/s11136-015-1168-3
Access Level:acceso abierto
Palabra clave:Serveis sanitaris -- Avaluació
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spelling Patient-reported outcomes: pathways to better health, better services, and better societies.Black, NickBurke, L.Forrest, Christopher B.Ravens, Sieberer U. H.Ahmed, SaraValderas Martínez, José MaríaBartlett, Susan J.Alonso Caballero, JordiServeis sanitaris -- AvaluacióWhile the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.Jose M. Valderas was supported by an NIHR Clinician Scientist Award (NIHR/CS/010/024).Springer20162016info:eu-repo/semantics/articleinfo:eu-repo/semantics/acceptedVersionapplication/pdfapplication/pdfhttp://hdl.handle.net/10230/26300http://dx.doi.org/10.1007/s11136-015-1168-3reponame:Repositorio Digital de la UPFinstname:Universitat Pompeu FabraInglésQuality of Life Research. 2016 May;25(5):1103-12© Springer (The original publication is available at www.Springerlink.com)info:eu-repo/semantics/openAccessoai:repositori.upf.edu:10230/263002026-06-12T07:21:37Z
dc.title.none.fl_str_mv Patient-reported outcomes: pathways to better health, better services, and better societies.
title Patient-reported outcomes: pathways to better health, better services, and better societies.
spellingShingle Patient-reported outcomes: pathways to better health, better services, and better societies.
Black, Nick
Serveis sanitaris -- Avaluació
title_short Patient-reported outcomes: pathways to better health, better services, and better societies.
title_full Patient-reported outcomes: pathways to better health, better services, and better societies.
title_fullStr Patient-reported outcomes: pathways to better health, better services, and better societies.
title_full_unstemmed Patient-reported outcomes: pathways to better health, better services, and better societies.
title_sort Patient-reported outcomes: pathways to better health, better services, and better societies.
dc.creator.none.fl_str_mv Black, Nick
Burke, L.
Forrest, Christopher B.
Ravens, Sieberer U. H.
Ahmed, Sara
Valderas Martínez, José María
Bartlett, Susan J.
Alonso Caballero, Jordi
author Black, Nick
author_facet Black, Nick
Burke, L.
Forrest, Christopher B.
Ravens, Sieberer U. H.
Ahmed, Sara
Valderas Martínez, José María
Bartlett, Susan J.
Alonso Caballero, Jordi
author_role author
author2 Burke, L.
Forrest, Christopher B.
Ravens, Sieberer U. H.
Ahmed, Sara
Valderas Martínez, José María
Bartlett, Susan J.
Alonso Caballero, Jordi
author2_role author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Serveis sanitaris -- Avaluació
topic Serveis sanitaris -- Avaluació
description While the use of PROs in research is well established, many challenges lie ahead as their use is extended to other applications. There is consensus that health outcome evaluations that include PROs along with clinician-reported outcomes and administrative data are necessary to inform clinical and policy decisions. The initiatives presented in this paper underline evolving recognition that PROs play a unique role in adding the patient perspective alongside clinical (e.g., blood pressure) and organizational (e.g., admission rates) indicators for evaluating the effects of new products, selecting treatments, evaluating quality of care, and monitoring the health of the population. In this paper, we first explore the use of PRO measures to support drug approval and labeling claims. We critically evaluate the evidence and challenges associated with using PRO measures to improve healthcare delivery at individual and population levels. We further discuss the challenges associated with selecting from the abundance of measures available, opportunities afforded by agreeing on common metrics for constructs of interest, and the importance of establishing an evidence base that supports integrating PRO measures across the healthcare system to improve outcomes. We conclude that the integration of PROs as a key end point within individual patient care, healthcare organization and program performance evaluations, and population surveillance will be essential for evaluating whether increased healthcare expenditure is translating into better health outcomes.
publishDate 2016
dc.date.none.fl_str_mv 2016
2016
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/acceptedVersion
format article
status_str acceptedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/10230/26300
http://dx.doi.org/10.1007/s11136-015-1168-3
url http://hdl.handle.net/10230/26300
http://dx.doi.org/10.1007/s11136-015-1168-3
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Quality of Life Research. 2016 May;25(5):1103-12
dc.rights.none.fl_str_mv © Springer (The original publication is available at www.Springerlink.com)
info:eu-repo/semantics/openAccess
rights_invalid_str_mv © Springer (The original publication is available at www.Springerlink.com)
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Springer
publisher.none.fl_str_mv Springer
dc.source.none.fl_str_mv reponame:Repositorio Digital de la UPF
instname:Universitat Pompeu Fabra
instname_str Universitat Pompeu Fabra
reponame_str Repositorio Digital de la UPF
collection Repositorio Digital de la UPF
repository.name.fl_str_mv
repository.mail.fl_str_mv
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