Spanish survey on follow-up programmes for children born very preterm

Aim: To describe variations in practice between follow-up programmes for very preterm children born at less than 32 weeks' gestation or with very low birth weight of less than 1,500 g. Methods: A survey on follow-up practices was electronically distributed to level II and III units among hospit...

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Autores: Pallás-Alonso, Carmen|||0000-0001-9710-8162, Loureiro, Begoña|||0000-0001-6065-1364, De la Cruz Bértolo, Javier, García González, Pilar, Ginovart, Gemma|||0000-0001-8072-1681, Jiménez, Ana, Martín, Yolanda, Soriano, Javier, Torres, María José, Vento Torres, Máximo|||0000-0003-0061-4742
Tipo de recurso: artículo
Fecha de publicación:2019
País:España
Institución:Universitat Autònoma de Barcelona
Repositorio:Dipòsit Digital de Documents de la UAB
Idioma:inglés
OAI Identifier:oai:ddd.uab.cat:286270
Acceso en línea:https://ddd.uab.cat/record/286270
https://dx.doi.org/urn:doi:10.1111/apa.14647
Access Level:acceso abierto
Palabra clave:Follow-up
High-risk children
Quality of care
Very low birth weight
Very preterm
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spelling Spanish survey on follow-up programmes for children born very pretermPallás-Alonso, Carmen|||0000-0001-9710-8162Loureiro, Begoña|||0000-0001-6065-1364De la Cruz Bértolo, JavierGarcía González, PilarGinovart, Gemma|||0000-0001-8072-1681Jiménez, AnaMartín, YolandaSoriano, JavierTorres, María JoséVento Torres, Máximo|||0000-0003-0061-4742Follow-upHigh-risk childrenQuality of careVery low birth weightVery pretermAim: To describe variations in practice between follow-up programmes for very preterm children born at less than 32 weeks' gestation or with very low birth weight of less than 1,500 g. Methods: A survey on follow-up practices was electronically distributed to level II and III units among hospitals of the Spanish National Health Service in 2016. The survey included 70 questions covering issues such as follow-up organisation and resources, routine assessments, relationships with other services and families, information management and training. Results: The response rate was 91.5% (141/154). Among respondents, 70.9% (100/141) reported that they do provide follow-up and 42% do so up to six years of age. Routine neurological and ophthalmological follow-up is not performed in 60% and 37% of hospitals, respectively, and a second hearing assessment is not given in 62%. Just 38% of units have psychologist. In 41% of hospitals, training in follow-up skills is not included in Paediatric Residency training programme. Conclusion: Although Spain has a nationwide health system that provides universal health coverage, we found that follow-up care for children born very preterm/very low birth weight is not equitable. Nearly half of paediatric residents receive no training in follow-up for this high-risk population. 22019-01-0120192019-01-01Articlehttp://purl.org/coar/resource_type/c_6501VoRhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articleapplication/pdfhttps://ddd.uab.cat/record/286270https://dx.doi.org/urn:doi:10.1111/apa.14647reponame:Dipòsit Digital de Documents de la UABinstname:Universitat Autònoma de BarcelonaInglésengInstituto de Salud Carlos III https://doi.org/10.13039/501100004587 RD16/0022open accesshttp://purl.org/coar/access_right/c_abf2Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.https://creativecommons.org/licenses/by-nc-nd/4.0/info:eu-repo/semantics/openAccessoai:ddd.uab.cat:2862702026-06-06T12:50:31Z
dc.title.none.fl_str_mv Spanish survey on follow-up programmes for children born very preterm
title Spanish survey on follow-up programmes for children born very preterm
spellingShingle Spanish survey on follow-up programmes for children born very preterm
Pallás-Alonso, Carmen|||0000-0001-9710-8162
Follow-up
High-risk children
Quality of care
Very low birth weight
Very preterm
title_short Spanish survey on follow-up programmes for children born very preterm
title_full Spanish survey on follow-up programmes for children born very preterm
title_fullStr Spanish survey on follow-up programmes for children born very preterm
title_full_unstemmed Spanish survey on follow-up programmes for children born very preterm
title_sort Spanish survey on follow-up programmes for children born very preterm
dc.creator.none.fl_str_mv Pallás-Alonso, Carmen|||0000-0001-9710-8162
Loureiro, Begoña|||0000-0001-6065-1364
De la Cruz Bértolo, Javier
García González, Pilar
Ginovart, Gemma|||0000-0001-8072-1681
Jiménez, Ana
Martín, Yolanda
Soriano, Javier
Torres, María José
Vento Torres, Máximo|||0000-0003-0061-4742
author Pallás-Alonso, Carmen|||0000-0001-9710-8162
author_facet Pallás-Alonso, Carmen|||0000-0001-9710-8162
Loureiro, Begoña|||0000-0001-6065-1364
De la Cruz Bértolo, Javier
García González, Pilar
Ginovart, Gemma|||0000-0001-8072-1681
Jiménez, Ana
Martín, Yolanda
Soriano, Javier
Torres, María José
Vento Torres, Máximo|||0000-0003-0061-4742
author_role author
author2 Loureiro, Begoña|||0000-0001-6065-1364
De la Cruz Bértolo, Javier
García González, Pilar
Ginovart, Gemma|||0000-0001-8072-1681
Jiménez, Ana
Martín, Yolanda
Soriano, Javier
Torres, María José
Vento Torres, Máximo|||0000-0003-0061-4742
author2_role author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Follow-up
High-risk children
Quality of care
Very low birth weight
Very preterm
topic Follow-up
High-risk children
Quality of care
Very low birth weight
Very preterm
description Aim: To describe variations in practice between follow-up programmes for very preterm children born at less than 32 weeks' gestation or with very low birth weight of less than 1,500 g. Methods: A survey on follow-up practices was electronically distributed to level II and III units among hospitals of the Spanish National Health Service in 2016. The survey included 70 questions covering issues such as follow-up organisation and resources, routine assessments, relationships with other services and families, information management and training. Results: The response rate was 91.5% (141/154). Among respondents, 70.9% (100/141) reported that they do provide follow-up and 42% do so up to six years of age. Routine neurological and ophthalmological follow-up is not performed in 60% and 37% of hospitals, respectively, and a second hearing assessment is not given in 62%. Just 38% of units have psychologist. In 41% of hospitals, training in follow-up skills is not included in Paediatric Residency training programme. Conclusion: Although Spain has a nationwide health system that provides universal health coverage, we found that follow-up care for children born very preterm/very low birth weight is not equitable. Nearly half of paediatric residents receive no training in follow-up for this high-risk population.
publishDate 2019
dc.date.none.fl_str_mv 2
2019-01-01
2019
2019-01-01
dc.type.none.fl_str_mv Article
http://purl.org/coar/resource_type/c_6501
VoR
http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://ddd.uab.cat/record/286270
https://dx.doi.org/urn:doi:10.1111/apa.14647
url https://ddd.uab.cat/record/286270
https://dx.doi.org/urn:doi:10.1111/apa.14647
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.relation.none.fl_str_mv Instituto de Salud Carlos III https://doi.org/10.13039/501100004587 RD16/0022
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
https://creativecommons.org/licenses/by-nc-nd/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Dipòsit Digital de Documents de la UAB
instname:Universitat Autònoma de Barcelona
instname_str Universitat Autònoma de Barcelona
reponame_str Dipòsit Digital de Documents de la UAB
collection Dipòsit Digital de Documents de la UAB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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