The burden of chronic spontaneous urticaria is substantial

Chronic spontaneous urticaria () can be debilitating, difficult to treat, and frustrating for patients and physicians. Real-world evidence for the burden of is limited. The objective of this study was to document disease duration, treatment history, and disease activity, as well as impact on health-...

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Autores: Maurer, Marcus|||0000-0002-4121-481X, Abuzakouk, Mohamed|||0000-0003-0802-8342, Bérard, Frédéric|||0000-0003-0094-6122, Canonica, G. Walter|||0000-0001-8467-2557, Oude Elberink, H., Giménez-Arnau, Ana M.|||0000-0001-5434-7753, Grattan, Clive|||0000-0002-8466-4351, Hollis, Kelly, Knulst, André|||0000-0002-1056-3179, Lacour, Jean Philippe|||0000-0001-7663-2053, Lynde, Charles, Marsland, Alexander, McBride, Doreen|||0000-0002-2545-651X, Nakonechna, Alla|||0000-0002-0141-6361, Ortiz-Frutos, FJ.|||0000-0002-0635-0971, Proctor, Christina, Sussman, Gordon|||0000-0002-2202-2513, Sweeney, Carolyn, Tian, Haijun, Weller, Karsten|||0000-0003-4437-0313, Wolin, Daniel, Balp, Maria Magdalena|||0000-0002-8612-7680
Tipo de recurso: artículo
Fecha de publicación:2017
País:España
Institución:Universitat Autònoma de Barcelona
Repositorio:Dipòsit Digital de Documents de la UAB
Idioma:inglés
OAI Identifier:oai:ddd.uab.cat:186252
Acceso en línea:https://ddd.uab.cat/record/186252
https://dx.doi.org/urn:doi:10.1111/all.13209
Access Level:acceso abierto
Palabra clave:Angioedema
Economic burden
Observational study
Quality of life
Urticaria
Descripción
Sumario:Chronic spontaneous urticaria () can be debilitating, difficult to treat, and frustrating for patients and physicians. Real-world evidence for the burden of is limited. The objective of this study was to document disease duration, treatment history, and disease activity, as well as impact on health-related quality of life (oL) and work among patients with inadequately controlled , and to describe its humanistic, societal, and economic burden. This international observational study assessed a cohort of 673 adult patients with whose symptoms persisted for ≥12 months despite treatment. Demographics, disease characteristics, and healthcare resource use in the previous 12 months were collected from medical records. Patient-reported data on urticaria and angioedema symptoms, oL, and work productivity and activity impairment were collected from a survey and a diary. Almost 50% of patients had moderate-to-severe disease activity as reported by Urticaria Activity Score. Mean () Dermatology Life Quality Index and Chronic Urticaria Quality of Life Questionnaire scores were 9.1 (6.62) and 33.6 (20.99), respectively. Chronic spontaneous urticaria markedly interfered with sleep and daily activities. Angioedema in the previous 12 months was reported by 66% of enrolled patients and significantly affected oL. More than 20% of patients reported ≥1 hour per week of missed work; productivity impairment was 27%. These effects increased with increasing disease activity. Significant healthcare resources and costs were incurred to treat . Chronic spontaneous urticaria has considerable humanistic and economic impacts. Patients with greater disease activity and with angioedema experience greater oL impairments.