Electronic health records and patient registries in medical oncology departments in Spain

We aimed to evaluate the current situation of electronic health records (EHRs) and patient registries in the oncology departments of hospitals in Spain. This was a cross-sectional study conducted from December 2018 to September 2019. The survey was designed ad hoc by the Outcomes Evaluation and Clin...

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Detalles Bibliográficos
Autores: Ribelles, Nuria|||0000-0003-3194-7398, Alvarez-Lopez, Isabel, Arcusa, Àngels, Chacón, José Ignacio|||0000-0002-1286-6157, de la Haba Rodríguez, Juan Rafael|||0000-0001-5111-1702, Garcia-Corbacho, Javier, Garcia-Mata, Jesus, Jara Sánchez, Carlos|||0000-0003-1158-9415, Jerez, José Manuel, Lázaro, Martín|||0000-0002-0657-4713, Leon, Luis|||0000-0002-0742-1209, Ramirez-Merino, Natalia, Tibau Martorell, Ariadna|||0000-0003-0229-6987, García Palomo, Andrés|||0000-0002-9159-9025
Tipo de recurso: artículo
Fecha de publicación:2021
País:España
Institución:Universitat Autònoma de Barcelona
Repositorio:Dipòsit Digital de Documents de la UAB
Idioma:inglés
OAI Identifier:oai:ddd.uab.cat:249565
Acceso en línea:https://ddd.uab.cat/record/249565
https://dx.doi.org/urn:doi:10.1007/s12094-021-02614-9
Access Level:acceso abierto
Palabra clave:Electronic health records
Patient registries
Medical oncology
Work organization
Clinical practice
Clinical research
Descripción
Sumario:We aimed to evaluate the current situation of electronic health records (EHRs) and patient registries in the oncology departments of hospitals in Spain. This was a cross-sectional study conducted from December 2018 to September 2019. The survey was designed ad hoc by the Outcomes Evaluation and Clinical Practice Section of the Spanish Society of Medical Oncology (SEOM) and was distributed to all head of medical oncology department members of SEOM. We invited 148 heads of oncology departments, and 81 (54.7%) questionnaires were completed, with representation from all 17 Spanish autonomous communities. Seventy-seven (95%) of the respondents had EHRs implemented at their hospitals; of them, over 80% considered EHRs to have a positive impact on work organization and clinical practice, and 73% considered that EHRs improve the quality of patient care. In contrast, 27 (35.1%) of these respondents felt that EHRs worsened the physician-patient relationship and conveyed an additional workload (n = 29; 37.6%). Several drawbacks in the implementation of EHRs were identified, including the limited inclusion of information on both outpatients and inpatients, information recorded in free text data fields, and the availability of specific informed consent. Forty-six (56.7%) respondents had patient registries where they recorded information from all patients seen in the department. Our study indicates that EHRs are almost universally implemented in the hospitals surveyed and are considered to have a positive impact on work organization and clinical practice. However, EHRs currently have several drawbacks that limit their use for investigational purposes. Not applicable The online version contains supplementary material available at 10.1007/s12094-021-02614-9.