Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey

colitis (UC) about their disease and access to a specialist are important to improve health outcomes. Our objective was to determine, by collecting information directly from the patients, their information sources and knowledge of the disease, and the options for access to the gastroenterologist. Me...

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Autores: Argüelles Arias, Federico, Carpio, Daniel, Calvet, Xavier, Romero De Santos, Cristina, Cea Calvo, Luis, Juliá, Berta, López Sanromán, Antonio
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2017
País:España
Institución:Universidad de Sevilla (US)
Repositorio:idUS. Depósito de Investigación de la Universidad de Sevilla
OAI Identifier:oai:idus.us.es:11441/158700
Acceso en línea:https://hdl.handle.net/11441/158700
https://doi.org/10.17235/reed.2017.4748/2016
Access Level:acceso abierto
Palabra clave:Ulcerative colitis
Self-management
Information sources
Knowledge of disease
Access to physician
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spelling Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE surveyArgüelles Arias, FedericoCarpio, DanielCalvet, XavierRomero De Santos, CristinaCea Calvo, LuisJuliá, BertaLópez Sanromán, AntonioUlcerative colitisSelf-managementInformation sourcesKnowledge of diseaseAccess to physiciancolitis (UC) about their disease and access to a specialist are important to improve health outcomes. Our objective was to determine, by collecting information directly from the patients, their information sources and knowledge of the disease, and the options for access to the gastroenterologist. Methods: The information was collected using a printed survey handed out by 39 gastroenterologists to 15 consecutive adult patients with UC. Patients answered anonymously from their home. The responses were stratified by hospital size (> 900; 500 900; < 500 beds). Results: A total of 585 patients received the survey and 436 responded (74.5%; mean age of 46 years [13.5], 53% men). The main information source was the specialist physician (89.2%). Between 32% and 80% of patients had areas of improvement regarding knowledge of their disease. Knowledge of the disease was better in patients from small hospitals (< 500 beds). The frequency of routine visits was also higher in small hospitals. In case of a flare-up, 60% stated they were able to contact their doctor by phone and 37%, that they could get an appointment on the same day. The percentage stating that they had to ask for an appointment and wait until their physician was available was lower in small hospitals. Conclusions: There are areas of improvement with regard to knowledge of their disease in patients with UC followed in hospital clinics. Patients followed in small hospitals seem to know their disease better, are followed more frequently in the clinic, and have better access in case of a flare-up.Aran Ediciones S.A.Medicina2017info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://hdl.handle.net/11441/158700https://doi.org/10.17235/reed.2017.4748/2016reponame:idUS. Depósito de Investigación de la Universidad de Sevillainstname:Universidad de Sevilla (US)InglésRevista Española de Enfermedades Digestivas, 109 (6), 421-429.https://www.reed.es/ArticuloFicha.aspx?id=1724&hst=0&idR=49&tp=1info:eu-repo/semantics/openAccessoai:idus.us.es:11441/1587002026-06-17T12:51:07Z
dc.title.none.fl_str_mv Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
title Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
spellingShingle Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
Argüelles Arias, Federico
Ulcerative colitis
Self-management
Information sources
Knowledge of disease
Access to physician
title_short Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
title_full Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
title_fullStr Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
title_full_unstemmed Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
title_sort Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey
dc.creator.none.fl_str_mv Argüelles Arias, Federico
Carpio, Daniel
Calvet, Xavier
Romero De Santos, Cristina
Cea Calvo, Luis
Juliá, Berta
López Sanromán, Antonio
author Argüelles Arias, Federico
author_facet Argüelles Arias, Federico
Carpio, Daniel
Calvet, Xavier
Romero De Santos, Cristina
Cea Calvo, Luis
Juliá, Berta
López Sanromán, Antonio
author_role author
author2 Carpio, Daniel
Calvet, Xavier
Romero De Santos, Cristina
Cea Calvo, Luis
Juliá, Berta
López Sanromán, Antonio
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv Medicina
dc.subject.none.fl_str_mv Ulcerative colitis
Self-management
Information sources
Knowledge of disease
Access to physician
topic Ulcerative colitis
Self-management
Information sources
Knowledge of disease
Access to physician
description colitis (UC) about their disease and access to a specialist are important to improve health outcomes. Our objective was to determine, by collecting information directly from the patients, their information sources and knowledge of the disease, and the options for access to the gastroenterologist. Methods: The information was collected using a printed survey handed out by 39 gastroenterologists to 15 consecutive adult patients with UC. Patients answered anonymously from their home. The responses were stratified by hospital size (> 900; 500 900; < 500 beds). Results: A total of 585 patients received the survey and 436 responded (74.5%; mean age of 46 years [13.5], 53% men). The main information source was the specialist physician (89.2%). Between 32% and 80% of patients had areas of improvement regarding knowledge of their disease. Knowledge of the disease was better in patients from small hospitals (< 500 beds). The frequency of routine visits was also higher in small hospitals. In case of a flare-up, 60% stated they were able to contact their doctor by phone and 37%, that they could get an appointment on the same day. The percentage stating that they had to ask for an appointment and wait until their physician was available was lower in small hospitals. Conclusions: There are areas of improvement with regard to knowledge of their disease in patients with UC followed in hospital clinics. Patients followed in small hospitals seem to know their disease better, are followed more frequently in the clinic, and have better access in case of a flare-up.
publishDate 2017
dc.date.none.fl_str_mv 2017
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/11441/158700
https://doi.org/10.17235/reed.2017.4748/2016
url https://hdl.handle.net/11441/158700
https://doi.org/10.17235/reed.2017.4748/2016
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Revista Española de Enfermedades Digestivas, 109 (6), 421-429.
https://www.reed.es/ArticuloFicha.aspx?id=1724&hst=0&idR=49&tp=1
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
application/pdf
dc.publisher.none.fl_str_mv Aran Ediciones S.A.
publisher.none.fl_str_mv Aran Ediciones S.A.
dc.source.none.fl_str_mv reponame:idUS. Depósito de Investigación de la Universidad de Sevilla
instname:Universidad de Sevilla (US)
instname_str Universidad de Sevilla (US)
reponame_str idUS. Depósito de Investigación de la Universidad de Sevilla
collection idUS. Depósito de Investigación de la Universidad de Sevilla
repository.name.fl_str_mv
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