A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR

12 Pág.

Bibliographic Details
Authors:	van Damme, Philip, Alarcón-Moreno, Pablo, Bernabé, César Henrique, Cámara, Alberto, Le Cornec, Clémence M. A., Dos Santos Vieira, Bruna, Van der Velde, K. Joeri, Zhang, Shuxin, Carta, Claudio, Cornet, Ronald, Hoen, Peter A. C., Jacobsen, Annika, Swertz, Morris A., Roos, Marco, Benis, Nirupama
Format:	article
Status:	Published version
Publication Date:	2023
Country:	España
Institution:	Consejo Superior de Investigaciones Científicas (CSIC)
Repository:	DIGITAL.CSIC. Repositorio Institucional del CSIC
OAI Identifier:	oai:digital.csic.es:10261/331435
Online Access:	http://hdl.handle.net/10261/331435 https://api.elsevier.com/content/abstract/scopus_id/85164259134
Access Level:	Open access
Keyword:	Data management planning European Reference Networks FAIR data FAIR data stewardship Patient registries Rare diseases

Description
Summary:	12 Pág.