Preparing Data at the Source to Foster Interoperability across Rare Disease Resources.

The ability to combine heterogeneous data distributed across the globe is critically important to boost research on rare diseases, but it presents a number of methodological, representational and automation challenges. In this scenario, biomedical ontologies are of critical importance for enabling c...

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Detalles Bibliográficos
Autores: Roos, Marco, Lopez-Martin, Estrella, Wilkinson, Mark D
Tipo de recurso: capítulo de libro
Fecha de publicación:2017
País:España
Institución:Instituto de Salud Carlos III (ISCIII)
Repositorio:Repisalud
Idioma:inglés
OAI Identifier:oai:repisalud.isciii.es:20.500.12105/26095
Acceso en línea:https://hdl.handle.net/20.500.12105/26095
Access Level:acceso abierto
Palabra clave:Data integration
FAIR approach
Linkable data
Ontologies
Semantic model
Standardization
Biomedical Research
Data Accuracy
Databases, Factual
Guidelines as Topic
Health Information Interoperability
Humans
Quality Control
Rare Diseases
Registries
Research Design
Descripción
Sumario:The ability to combine heterogeneous data distributed across the globe is critically important to boost research on rare diseases, but it presents a number of methodological, representational and automation challenges. In this scenario, biomedical ontologies are of critical importance for enabling computers to aid in information retrieval and analysis across data collections.This chapter presents an approach to preparing rare disease data for integration through the application of a global standard for computer-readable data and knowledge. This includes the use of common data elements, ontological codes and computer-readable data. This approach was developed under a number of domain-relevant requirements, such as controlled access to data, independence of the original sources, and the desire to combining the data sources with other computational workflows and data platforms.