Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis

This study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offere...

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Detalhes bibliográficos
Autores: Gayà-Barroso, Aina, González-Moreno, Juan, Cisneros-Barroso, Eugenia, Rodriguez Rodriguez, Adrian, Ripoll, Tomás, Losada-López, Inés, Gili, Margalida
Tipo de documento: artigo
Data de publicação:2022
País:España
Recursos:Conselleria de Salut i Consum del Govern de les Illes Balears
Repositório:Docusalut
Idioma:inglês
OAI Identifier:oai:docusalut.com:20.500.13003/18035
Acesso em linha:https://hdl.handle.net/20.500.13003/18035
Access Level:Acceso aberto
Palavra-chave:Quality of Life
Humans
Occupational Therapy
Amyloid Neuropathies, Familial
Surveys and Questionnaires
Neuropatías Amiloides Familiares
Terapia Ocupacional
Humanos
Calidad de Vida
Encuestas y Cuestionarios
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spelling Accessibility to Occupational Therapy Services for Hereditary Transthyretin AmyloidosisGayà-Barroso, AinaGonzález-Moreno, JuanCisneros-Barroso, EugeniaRodriguez Rodriguez, AdrianRipoll, TomásLosada-López, InésGili, MargalidaQuality of LifeHumansOccupational TherapyAmyloid Neuropathies, FamilialSurveys and QuestionnairesSurveys and QuestionnairesNeuropatías Amiloides FamiliaresTerapia OcupacionalHumanosCalidad de VidaEncuestas y CuestionariosThis study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offered to them, together with their satisfaction and real benefits as users. We developed an online questionnaire which was distributed to patients with ATTRv in Spain through patient associations. Seventy-four patients with a diagnosis of ATTRv residing in Spain participated in the study. Thirteen had already used OT services at least once, felt that OT interventions improved their quality of life, would recommend OT services to others, and would return to see an occupational therapist. However, 61 had never used this type of service before. Of these, 35 knew what OT is and 13 declared that they considered that OT interventions in ATTRv could be positive for them. The results suggest that the use of OT services by ATTRv patients is low, mainly because of the lack of information about the occupational profile of individuals with this disease. The low response rate obtained for the survey limits generalization, and thus further research to confirm these preliminary findings is needed.20222022-04-0720222022-04-07research articlehttp://purl.org/coar/resource_type/c_2df8fbb1info:eu-repo/semantics/articleapplication/pdfhttps://hdl.handle.net/20.500.13003/18035reponame:Docusalutinstname:Conselleria de Salut i Consum del Govern de les Illes BalearsInglésengopen accesshttp://purl.org/coar/access_right/c_abf2Atribución 4.0 Internacionalhttp://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:docusalut.com:20.500.13003/180352026-06-22T12:44:07Z
dc.title.none.fl_str_mv Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
title Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
spellingShingle Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
Gayà-Barroso, Aina
Quality of Life
Humans
Occupational Therapy
Amyloid Neuropathies, Familial
Surveys and Questionnaires
Surveys and Questionnaires
Neuropatías Amiloides Familiares
Terapia Ocupacional
Humanos
Calidad de Vida
Encuestas y Cuestionarios
title_short Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
title_full Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
title_fullStr Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
title_full_unstemmed Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
title_sort Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
dc.creator.none.fl_str_mv Gayà-Barroso, Aina
González-Moreno, Juan
Cisneros-Barroso, Eugenia
Rodriguez Rodriguez, Adrian
Ripoll, Tomás
Losada-López, Inés
Gili, Margalida
author Gayà-Barroso, Aina
author_facet Gayà-Barroso, Aina
González-Moreno, Juan
Cisneros-Barroso, Eugenia
Rodriguez Rodriguez, Adrian
Ripoll, Tomás
Losada-López, Inés
Gili, Margalida
author_role author
author2 González-Moreno, Juan
Cisneros-Barroso, Eugenia
Rodriguez Rodriguez, Adrian
Ripoll, Tomás
Losada-López, Inés
Gili, Margalida
author2_role author
author
author
author
author
author
dc.contributor.none.fl_str_mv
dc.subject.none.fl_str_mv Quality of Life
Humans
Occupational Therapy
Amyloid Neuropathies, Familial
Surveys and Questionnaires
Surveys and Questionnaires
Neuropatías Amiloides Familiares
Terapia Ocupacional
Humanos
Calidad de Vida
Encuestas y Cuestionarios
topic Quality of Life
Humans
Occupational Therapy
Amyloid Neuropathies, Familial
Surveys and Questionnaires
Surveys and Questionnaires
Neuropatías Amiloides Familiares
Terapia Ocupacional
Humanos
Calidad de Vida
Encuestas y Cuestionarios
description This study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offered to them, together with their satisfaction and real benefits as users. We developed an online questionnaire which was distributed to patients with ATTRv in Spain through patient associations. Seventy-four patients with a diagnosis of ATTRv residing in Spain participated in the study. Thirteen had already used OT services at least once, felt that OT interventions improved their quality of life, would recommend OT services to others, and would return to see an occupational therapist. However, 61 had never used this type of service before. Of these, 35 knew what OT is and 13 declared that they considered that OT interventions in ATTRv could be positive for them. The results suggest that the use of OT services by ATTRv patients is low, mainly because of the lack of information about the occupational profile of individuals with this disease. The low response rate obtained for the survey limits generalization, and thus further research to confirm these preliminary findings is needed.
publishDate 2022
dc.date.none.fl_str_mv 2022
2022-04-07
2022
2022-04-07
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv https://hdl.handle.net/20.500.13003/18035
url https://hdl.handle.net/20.500.13003/18035
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
Atribución 4.0 Internacional
http://creativecommons.org/licenses/by/4.0/
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
Atribución 4.0 Internacional
http://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Docusalut
instname:Conselleria de Salut i Consum del Govern de les Illes Balears
instname_str Conselleria de Salut i Consum del Govern de les Illes Balears
reponame_str Docusalut
collection Docusalut
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15,811543

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