Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet

Background: Monitoring and improving quality of cancer care has become pivotal today. This is especially relevant for head and neck cancers since the disease is complex, it needs multi therapy, patients tend to be older, they tend to have comorbidities and limited social support. However, informatio...

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Autores: Trama, Annalisa, Botta, Laura, Foschi, Roberto, Visser, Otto, Borràs Andrés, Josep Maria, Agar, Tina, Primic-Žakelj, Maja, Bella, Francesca, Dimitrova, Nadya, Gatta, Gemma, Licitra, Lisa, RARECAREnet High Resolution Working Group
Formato: artículo
Estado:Versión publicada
Fecha de publicación:2019
País:España
Recursos:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repositorio:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:2445/171447
Acesso em linha:https://hdl.handle.net/2445/171447
Access Level:acceso abierto
Palavra-chave:Càncer de coll
Càncer de cap
Indicadors de salut
Neck cancer
Head cancer
Health status indicators
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spelling Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnetTrama, AnnalisaBotta, LauraFoschi, RobertoVisser, OttoBorràs Andrés, Josep MariaAgar, TinaPrimic-Žakelj, MajaBella, FrancescaDimitrova, NadyaGatta, GemmaLicitra, LisaRARECAREnet High Resolution Working GroupCàncer de collCàncer de capIndicadors de salutNeck cancerHead cancerHealth status indicatorsBackground: Monitoring and improving quality of cancer care has become pivotal today. This is especially relevant for head and neck cancers since the disease is complex, it needs multi therapy, patients tend to be older, they tend to have comorbidities and limited social support. However, information on quality of care for head and neck cancers is scarce. In the context of the project "Information Network on Rare Cancers" we aimed to identify indicators of quality of care specific for the head and neck cancers management and to measure the quality of care for head and neck cancers in different EU Member States. Methods: We defined indicators of quality of care for head and neck cancers based on a multidisciplinary and expert-based consensus process at a European level. To test the proposed indicators, we performed an observational population-based retrospective study in four countries (Ireland, Italy, Netherlands, and Slovenia) in the years 2009-2011. Results: The main quality indicators identified are: availability of formalized multidisciplinary team, participation in clinical and translational research; timeliness of care, high quality of surgery and radiotherapy, and of pathological reporting. For head and neck cancers, the quality of care did not reach the optimal standards in most of the countries analyzed. A high proportion of patients was diagnosed at an advanced disease stage, showed delays in starting treatment (especially for radiotherapy), and there was only a very limited use of multi therapy. Conclusions: According to the achieved consensus, indicators of quality of care for head and neck cancers have to cover the patient journey (i.e., diagnosis and treatment). Our results, showed suboptimal quality of care across countries and call for solutions for ensuring good quality of care for head and neck cancer patients in all EU countries. One possible option might be to refer head and neck cancer patients to specialized centers or to networks including specialized centers.Frontiers Media2020202020192020info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersion8 p.application/pdfapplication/pdfhttps://hdl.handle.net/2445/171447Articles publicats en revistes (Ciències Clíniques)reponame:Recercat. Dipósit de la Recerca de Catalunyainstname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)InglésReproducció del document publicat a: https://doi.org/10.3389/fonc.2019.00837Frontiers In Oncology, 2019, vol. 9, p. 837https://doi.org/10.3389/fonc.2019.00837cc-by (c) Trama, Annalisa et al., 2019http://creativecommons.org/licenses/by/3.0/esinfo:eu-repo/semantics/openAccessoai:recercat.cat:2445/1714472026-05-29T05:05:01Z
dc.title.none.fl_str_mv Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
title Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
spellingShingle Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
Trama, Annalisa
Càncer de coll
Càncer de cap
Indicadors de salut
Neck cancer
Head cancer
Health status indicators
title_short Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
title_full Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
title_fullStr Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
title_full_unstemmed Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
title_sort Quality of care indicators for head and neck cancers: The experience of the European Project RARECAREnet
dc.creator.none.fl_str_mv Trama, Annalisa
Botta, Laura
Foschi, Roberto
Visser, Otto
Borràs Andrés, Josep Maria
Agar, Tina
Primic-Žakelj, Maja
Bella, Francesca
Dimitrova, Nadya
Gatta, Gemma
Licitra, Lisa
RARECAREnet High Resolution Working Group
author Trama, Annalisa
author_facet Trama, Annalisa
Botta, Laura
Foschi, Roberto
Visser, Otto
Borràs Andrés, Josep Maria
Agar, Tina
Primic-Žakelj, Maja
Bella, Francesca
Dimitrova, Nadya
Gatta, Gemma
Licitra, Lisa
RARECAREnet High Resolution Working Group
author_role author
author2 Botta, Laura
Foschi, Roberto
Visser, Otto
Borràs Andrés, Josep Maria
Agar, Tina
Primic-Žakelj, Maja
Bella, Francesca
Dimitrova, Nadya
Gatta, Gemma
Licitra, Lisa
RARECAREnet High Resolution Working Group
author2_role author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv Càncer de coll
Càncer de cap
Indicadors de salut
Neck cancer
Head cancer
Health status indicators
topic Càncer de coll
Càncer de cap
Indicadors de salut
Neck cancer
Head cancer
Health status indicators
description Background: Monitoring and improving quality of cancer care has become pivotal today. This is especially relevant for head and neck cancers since the disease is complex, it needs multi therapy, patients tend to be older, they tend to have comorbidities and limited social support. However, information on quality of care for head and neck cancers is scarce. In the context of the project "Information Network on Rare Cancers" we aimed to identify indicators of quality of care specific for the head and neck cancers management and to measure the quality of care for head and neck cancers in different EU Member States. Methods: We defined indicators of quality of care for head and neck cancers based on a multidisciplinary and expert-based consensus process at a European level. To test the proposed indicators, we performed an observational population-based retrospective study in four countries (Ireland, Italy, Netherlands, and Slovenia) in the years 2009-2011. Results: The main quality indicators identified are: availability of formalized multidisciplinary team, participation in clinical and translational research; timeliness of care, high quality of surgery and radiotherapy, and of pathological reporting. For head and neck cancers, the quality of care did not reach the optimal standards in most of the countries analyzed. A high proportion of patients was diagnosed at an advanced disease stage, showed delays in starting treatment (especially for radiotherapy), and there was only a very limited use of multi therapy. Conclusions: According to the achieved consensus, indicators of quality of care for head and neck cancers have to cover the patient journey (i.e., diagnosis and treatment). Our results, showed suboptimal quality of care across countries and call for solutions for ensuring good quality of care for head and neck cancer patients in all EU countries. One possible option might be to refer head and neck cancer patients to specialized centers or to networks including specialized centers.
publishDate 2019
dc.date.none.fl_str_mv 2019
2020
2020
2020
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/171447
url https://hdl.handle.net/2445/171447
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Reproducció del document publicat a: https://doi.org/10.3389/fonc.2019.00837
Frontiers In Oncology, 2019, vol. 9, p. 837
https://doi.org/10.3389/fonc.2019.00837
dc.rights.none.fl_str_mv cc-by (c) Trama, Annalisa et al., 2019
http://creativecommons.org/licenses/by/3.0/es
info:eu-repo/semantics/openAccess
rights_invalid_str_mv cc-by (c) Trama, Annalisa et al., 2019
http://creativecommons.org/licenses/by/3.0/es
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 8 p.
application/pdf
application/pdf
dc.publisher.none.fl_str_mv Frontiers Media
publisher.none.fl_str_mv Frontiers Media
dc.source.none.fl_str_mv Articles publicats en revistes (Ciències Clíniques)
reponame:Recercat. Dipósit de la Recerca de Catalunya
instname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
instname_str Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
reponame_str Recercat. Dipósit de la Recerca de Catalunya
collection Recercat. Dipósit de la Recerca de Catalunya
repository.name.fl_str_mv
repository.mail.fl_str_mv
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