Impact of Perinatal Death on the Social and Family Context of the Parents

Background: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal de...

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Autores: Fernandez-Sola, C, Camacho-Avila, M, Hernandez-Padilla, JM, Fernandez-Medina, IM, Jimenez-Lopez, FR, Hernandez-Sanchez, E, Conesa-Ferrer, MB, Granero-Molina, J
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2020
País:España
Institución:Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
Repositorio:r-FISABIO. Repositorio Institucional de Producción Científica
OAI Identifier:oai:fisabio.fundanetsuite.com:p10985
Acceso en línea:https://fisabio.portalinvestigacion.com/publicaciones/10985
Access Level:acceso abierto
Palabra clave:perinatal death
perinatal grief
disenfranchised grief
qualitative research
parents care
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network_name_str España
repository_id_str
spelling Impact of Perinatal Death on the Social and Family Context of the ParentsFernandez-Sola, CCamacho-Avila, MHernandez-Padilla, JMFernandez-Medina, IMJimenez-Lopez, FRHernandez-Sanchez, EConesa-Ferrer, MBGranero-Molina, Jperinatal deathperinatal griefdisenfranchised griefqualitative researchparents careBackground: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents' social and family life. Methods: A qualitative study based on Gadamer's hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had suffered a perinatal death. Inductive analysis was used to find themes based on the data. Results: Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death. Conclusions: PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief. Implications: Social care, health and education providers should pay attention to all family members who have suffered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.MDPI2020info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://fisabio.portalinvestigacion.com/publicaciones/10985International Journal of Environmental Research and Public HealthISSN: 16617827ISSNe: 16604601reponame:r-FISABIO. Repositorio Institucional de Producción Científicainstname:Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)Inglésinfo:eu-repo/semantics/openAccessoai:fisabio.fundanetsuite.com:p109852026-06-11T12:45:17Z
dc.title.none.fl_str_mv Impact of Perinatal Death on the Social and Family Context of the Parents
title Impact of Perinatal Death on the Social and Family Context of the Parents
spellingShingle Impact of Perinatal Death on the Social and Family Context of the Parents
Fernandez-Sola, C
perinatal death
perinatal grief
disenfranchised grief
qualitative research
parents care
title_short Impact of Perinatal Death on the Social and Family Context of the Parents
title_full Impact of Perinatal Death on the Social and Family Context of the Parents
title_fullStr Impact of Perinatal Death on the Social and Family Context of the Parents
title_full_unstemmed Impact of Perinatal Death on the Social and Family Context of the Parents
title_sort Impact of Perinatal Death on the Social and Family Context of the Parents
dc.creator.none.fl_str_mv Fernandez-Sola, C
Camacho-Avila, M
Hernandez-Padilla, JM
Fernandez-Medina, IM
Jimenez-Lopez, FR
Hernandez-Sanchez, E
Conesa-Ferrer, MB
Granero-Molina, J
author Fernandez-Sola, C
author_facet Fernandez-Sola, C
Camacho-Avila, M
Hernandez-Padilla, JM
Fernandez-Medina, IM
Jimenez-Lopez, FR
Hernandez-Sanchez, E
Conesa-Ferrer, MB
Granero-Molina, J
author_role author
author2 Camacho-Avila, M
Hernandez-Padilla, JM
Fernandez-Medina, IM
Jimenez-Lopez, FR
Hernandez-Sanchez, E
Conesa-Ferrer, MB
Granero-Molina, J
author2_role author
author
author
author
author
author
author
dc.subject.none.fl_str_mv perinatal death
perinatal grief
disenfranchised grief
qualitative research
parents care
topic perinatal death
perinatal grief
disenfranchised grief
qualitative research
parents care
description Background: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents' social and family life. Methods: A qualitative study based on Gadamer's hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had suffered a perinatal death. Inductive analysis was used to find themes based on the data. Results: Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death. Conclusions: PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief. Implications: Social care, health and education providers should pay attention to all family members who have suffered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.
publishDate 2020
dc.date.none.fl_str_mv 2020
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://fisabio.portalinvestigacion.com/publicaciones/10985
url https://fisabio.portalinvestigacion.com/publicaciones/10985
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv International Journal of Environmental Research and Public Health
ISSN: 16617827
ISSNe: 16604601
reponame:r-FISABIO. Repositorio Institucional de Producción Científica
instname:Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
instname_str Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana (FISABIO)
reponame_str r-FISABIO. Repositorio Institucional de Producción Científica
collection r-FISABIO. Repositorio Institucional de Producción Científica
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15.81155

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