Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain

Background. The lockdown during the first wave of COVID-19 in Spain has been related to higher levels of anxiety in the general population. However, the emotional impact on Spanish caregivers of individuals with neurodevelopmental disorders (NDD) has not been studied so far. Methods. An online quest...

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Detalles Bibliográficos
Autores: Martínez-Castilla, Pastora, Campos García, Ruth, Samson, Andrea C, Herwegen, Jo Van
Tipo de recurso: artículo
Fecha de publicación:2023
País:España
Institución:Universidad Autónoma de Madrid
Repositorio:Biblos-e Archivo. Repositorio Institucional de la UAM
Idioma:inglés
OAI Identifier:oai:repositorio.uam.es:10486/710917
Acceso en línea:http://hdl.handle.net/10486/710917
Access Level:acceso abierto
Palabra clave:caregiver anxiety
COVID-19 in Spain
autism spectrum disorder
Down syndrome
Williams syndrome
Psicología
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spelling Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in SpainMartínez-Castilla, PastoraCampos García, RuthSamson, Andrea CHerwegen, Jo Vancaregiver anxietyCOVID-19 in Spainautism spectrum disorderDown syndromeWilliams syndromePsicologíaBackground. The lockdown during the first wave of COVID-19 in Spain has been related to higher levels of anxiety in the general population. However, the emotional impact on Spanish caregivers of individuals with neurodevelopmental disorders (NDD) has not been studied so far. Methods. An online questionnaire was distributed to Spanish organisations providing support to individuals with NDD and their families. Data from caregivers of individuals with autism spectrum disorder (ASD) (N = 17), Down syndrome (DS) (N = 25) and Williams syndrome (WS) (N = 18) were analysed. Results. All caregivers reported concerns directly related to the pandemic and lockdown situation. Caregivers of individuals with ASD showed higher level of concern about the possibility of family conflict. All three groups reported higher levels of anxiety during the lockdown. Anxiety was predicted by previous anxiety disorder and the child’s diagnosis. Conclusions. Predictors of anxiety in caregivers of individuals with NDD differ from those previously reported in the general Spanish population. The results suggest that confinement in Spain was especially demanding for families of individuals with ASD. Public policies should consider the particular needs of people with NND and their caregivers to minimise the negative consequences of the ongoing pandemicSwiss National Science Foundation (PP00P1_176722 for Andrea Samson), Research Funds of the Unidistance Suisse and the European Federation Williams Foundation. Spanish Ministry of Science and Innovation (PID2020-117087GB-I00)Amazing BooksDepartamento de Psicología BásicaFacultad de Psicología20232023-03-01research articlehttp://purl.org/coar/resource_type/c_2df8fbb1AMhttp://purl.org/coar/version/c_ab4af688f83e57aainfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10486/710917reponame:Biblos-e Archivo. Repositorio Institucional de la UAMinstname:Universidad Autónoma de MadridInglésengopen accesshttp://purl.org/coar/access_right/c_abf2info:eu-repo/semantics/openAccessoai:repositorio.uam.es:10486/7109172026-06-23T12:46:27Z
dc.title.none.fl_str_mv Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
title Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
spellingShingle Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
Martínez-Castilla, Pastora
caregiver anxiety
COVID-19 in Spain
autism spectrum disorder
Down syndrome
Williams syndrome
Psicología
title_short Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
title_full Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
title_fullStr Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
title_full_unstemmed Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
title_sort Perceived anxiety in family caregivers of individuals with autism spectrum disorder, Down syndrome and Williams syndrome during the lockdown of the first COVID-19 wave in Spain
dc.creator.none.fl_str_mv Martínez-Castilla, Pastora
Campos García, Ruth
Samson, Andrea C
Herwegen, Jo Van
author Martínez-Castilla, Pastora
author_facet Martínez-Castilla, Pastora
Campos García, Ruth
Samson, Andrea C
Herwegen, Jo Van
author_role author
author2 Campos García, Ruth
Samson, Andrea C
Herwegen, Jo Van
author2_role author
author
author
dc.contributor.none.fl_str_mv Departamento de Psicología Básica
Facultad de Psicología
dc.subject.none.fl_str_mv caregiver anxiety
COVID-19 in Spain
autism spectrum disorder
Down syndrome
Williams syndrome
Psicología
topic caregiver anxiety
COVID-19 in Spain
autism spectrum disorder
Down syndrome
Williams syndrome
Psicología
description Background. The lockdown during the first wave of COVID-19 in Spain has been related to higher levels of anxiety in the general population. However, the emotional impact on Spanish caregivers of individuals with neurodevelopmental disorders (NDD) has not been studied so far. Methods. An online questionnaire was distributed to Spanish organisations providing support to individuals with NDD and their families. Data from caregivers of individuals with autism spectrum disorder (ASD) (N = 17), Down syndrome (DS) (N = 25) and Williams syndrome (WS) (N = 18) were analysed. Results. All caregivers reported concerns directly related to the pandemic and lockdown situation. Caregivers of individuals with ASD showed higher level of concern about the possibility of family conflict. All three groups reported higher levels of anxiety during the lockdown. Anxiety was predicted by previous anxiety disorder and the child’s diagnosis. Conclusions. Predictors of anxiety in caregivers of individuals with NDD differ from those previously reported in the general Spanish population. The results suggest that confinement in Spain was especially demanding for families of individuals with ASD. Public policies should consider the particular needs of people with NND and their caregivers to minimise the negative consequences of the ongoing pandemic
publishDate 2023
dc.date.none.fl_str_mv 2023
2023-03-01
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
AM
http://purl.org/coar/version/c_ab4af688f83e57aa
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv http://hdl.handle.net/10486/710917
url http://hdl.handle.net/10486/710917
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Amazing Books
publisher.none.fl_str_mv Amazing Books
dc.source.none.fl_str_mv reponame:Biblos-e Archivo. Repositorio Institucional de la UAM
instname:Universidad Autónoma de Madrid
instname_str Universidad Autónoma de Madrid
reponame_str Biblos-e Archivo. Repositorio Institucional de la UAM
collection Biblos-e Archivo. Repositorio Institucional de la UAM
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