Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research

Participatory research (PR) is on the rise. In Spain, PR is scarce in the field of health, although there is an increasing interest in the matter. A comprehensive understanding of the meanings and practical implications of “public participation” is essential to promote participation in health resear...

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Detalles Bibliográficos
Autores: Jacques Aviñó, Constanza, Roel, Elena, Medina Perucha, Laura, Mcghie, Jasmine Elsie, Pons Vigués, Mariona
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2022
País:España
Institución:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
Repositorio:Recercat. Dipósit de la Recerca de Catalunya
OAI Identifier:oai:recercat.cat:10256/21650
Acceso en línea:http://hdl.handle.net/10256/21650
Access Level:acceso abierto
Palabra clave:Salut -- Investigació -- Participació ciutadana
Health -- Research -- Citizen participation
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spelling Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory researchJacques Aviñó, ConstanzaRoel, ElenaMedina Perucha, LauraMcghie, Jasmine ElsiePons Vigués, MarionaSalut -- Investigació -- Participació ciutadanaHealth -- Research -- Citizen participationParticipatory research (PR) is on the rise. In Spain, PR is scarce in the field of health, although there is an increasing interest in the matter. A comprehensive understanding of the meanings and practical implications of “public participation” is essential to promote participation in health research. The aim of the study is to explore the discursive positions on PR among individuals with experience in participatory processes in different areas and how this understanding translates into practice. We conducted a critical discourse analysis of 21 individuals with experience in PR and participatory processes (13 women, 8 men), mainly from the field of health and other areas of knowledge. Sixteen were Spanish and the rest were from the United Kingdom (3), United States (1), and Canada (1). Interviews were conducted in person or by telephone. The fieldwork was conducted between March 2019 and November 2019. The dominant discourses on public participation are situated along two axes situated on a continuum: the purpose of public participation and how power should be distributed in public participation processes. The first is instrumental public participation, which sees participatory research as a tool to improve research results and focuses on institutional interests and power-decision making is hold by researchers and institutions. The second, is transformative public participation, with a focus on social change and an equitable sharing of decision-making power between the public and researchers. All discursive positions stated that they do not carry out specific strategies to include the most socially disadvantaged individuals or groups. A shift in the scientific approach about knowledge, along with time and resources, are required to move towards a more balanced power distribution in the processes involving the publicThe project has received funding from a Network for Prevention and Health Promotion in Primary Care (redIAPP, RD16/0007/0001) grant from the Institute of Health Carlos III (Instituto de Salud Carlos III) of the Ministry of Economy and Competitiveness (Spain), co-financed with European Union ERDF funds. In addition, was funded through the grants for the creation and configuration of Cooperative Research Networks Oriented to Health Results (RICOR), file RD21/0016/0029, co-funded by the European Union – Next Generation EUPublic Library of Science (PLoS)2022info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionpeer-reviewedapplication/pdfhttp://hdl.handle.net/10256/21650http://hdl.handle.net/10256/21650PLoS ONE, 2022, vol. 17, núm. 9, p. e0273727Articles publicats (D-I)reponame:Recercat. Dipósit de la Recerca de Catalunyainstname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)Inglésinfo:eu-repo/semantics/altIdentifier/doi/10.1371/journal.pone.0273727info:eu-repo/semantics/altIdentifier/eissn/1932-6203Attribution 4.0 Internationalhttp://creativecommons.org/licenses/by/4.0/info:eu-repo/semantics/openAccessoai:recercat.cat:10256/216502026-05-29T05:05:01Z
dc.title.none.fl_str_mv Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
title Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
spellingShingle Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
Jacques Aviñó, Constanza
Salut -- Investigació -- Participació ciutadana
Health -- Research -- Citizen participation
title_short Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
title_full Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
title_fullStr Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
title_full_unstemmed Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
title_sort Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research
dc.creator.none.fl_str_mv Jacques Aviñó, Constanza
Roel, Elena
Medina Perucha, Laura
Mcghie, Jasmine Elsie
Pons Vigués, Mariona
author Jacques Aviñó, Constanza
author_facet Jacques Aviñó, Constanza
Roel, Elena
Medina Perucha, Laura
Mcghie, Jasmine Elsie
Pons Vigués, Mariona
author_role author
author2 Roel, Elena
Medina Perucha, Laura
Mcghie, Jasmine Elsie
Pons Vigués, Mariona
author2_role author
author
author
author
dc.subject.none.fl_str_mv Salut -- Investigació -- Participació ciutadana
Health -- Research -- Citizen participation
topic Salut -- Investigació -- Participació ciutadana
Health -- Research -- Citizen participation
description Participatory research (PR) is on the rise. In Spain, PR is scarce in the field of health, although there is an increasing interest in the matter. A comprehensive understanding of the meanings and practical implications of “public participation” is essential to promote participation in health research. The aim of the study is to explore the discursive positions on PR among individuals with experience in participatory processes in different areas and how this understanding translates into practice. We conducted a critical discourse analysis of 21 individuals with experience in PR and participatory processes (13 women, 8 men), mainly from the field of health and other areas of knowledge. Sixteen were Spanish and the rest were from the United Kingdom (3), United States (1), and Canada (1). Interviews were conducted in person or by telephone. The fieldwork was conducted between March 2019 and November 2019. The dominant discourses on public participation are situated along two axes situated on a continuum: the purpose of public participation and how power should be distributed in public participation processes. The first is instrumental public participation, which sees participatory research as a tool to improve research results and focuses on institutional interests and power-decision making is hold by researchers and institutions. The second, is transformative public participation, with a focus on social change and an equitable sharing of decision-making power between the public and researchers. All discursive positions stated that they do not carry out specific strategies to include the most socially disadvantaged individuals or groups. A shift in the scientific approach about knowledge, along with time and resources, are required to move towards a more balanced power distribution in the processes involving the public
publishDate 2022
dc.date.none.fl_str_mv 2022
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
peer-reviewed
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv http://hdl.handle.net/10256/21650
http://hdl.handle.net/10256/21650
url http://hdl.handle.net/10256/21650
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv info:eu-repo/semantics/altIdentifier/doi/10.1371/journal.pone.0273727
info:eu-repo/semantics/altIdentifier/eissn/1932-6203
dc.rights.none.fl_str_mv Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Public Library of Science (PLoS)
publisher.none.fl_str_mv Public Library of Science (PLoS)
dc.source.none.fl_str_mv PLoS ONE, 2022, vol. 17, núm. 9, p. e0273727
Articles publicats (D-I)
reponame:Recercat. Dipósit de la Recerca de Catalunya
instname:Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
instname_str Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya)
reponame_str Recercat. Dipósit de la Recerca de Catalunya
collection Recercat. Dipósit de la Recerca de Catalunya
repository.name.fl_str_mv
repository.mail.fl_str_mv
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