Family bonds and personal factors in caregiver burden in patients at the end of life

Family caregivers are defined as those who assume substantial responsibilities for the care of an ill loved one without formal health care training. This study aims to analyze the predictors of physical and emotional burden in caregivers of palliative patients using qualitative comparative analysis...

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Detalles Bibliográficos
Autores: Ribera-Asensi, O, Pérez-Marín, M, Valero-Moreno, S
Tipo de recurso: artículo
Estado:Versión publicada
Fecha de publicación:2024
País:España
Institución:INCLIVA
Repositorio:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
OAI Identifier:oai:incliva.fundanetsuite.com:p18524
Acceso en línea:https://incliva.portalinvestigacion.com/publicaciones/18524
Access Level:acceso abierto
Palabra clave:caregiver burden
emotional and physical burden
end of life
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spelling Family bonds and personal factors in caregiver burden in patients at the end of lifeRibera-Asensi, OPérez-Marín, MValero-Moreno, Scaregiver burdenemotional and physical burdenend of lifeFamily caregivers are defined as those who assume substantial responsibilities for the care of an ill loved one without formal health care training. This study aims to analyze the predictors of physical and emotional burden in caregivers of palliative patients using qualitative comparative analysis methodologies (QCA) and taking into account patient and caregiver personal and relational variables. A total of 125 caregivers of patients at the end of life were assessed using an ad hoc emotional and physical burden questionnaire and patient and caregiver personal and relational variables were recorded. Results indicate moderately high levels of both emotional and physical burden. Differences in burden are found only as a function of kinship. Emotional burden is positively associated with the use of physical health medication in the caregiver and kinship; meanwhile, physical burden is positively associated with time since diagnosis, patient functional independence, and economic problems. For the QCA models, several pathways predict the observed variance in the emotional and physical burden of family caregivers of patients at the end of life, based on patient, caregiver, and relationship variables. In conclusion, it is relevant to design intervention programs focused on patient-caregiver relationship to prevent the development of emotional and physical burden.WILEY2024info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://incliva.portalinvestigacion.com/publicaciones/18524FAMILY PROCESSISSN: 00147370ISSNe: 15455300reponame:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVAinstname:INCLIVAInglésinfo:eu-repo/semantics/openAccessoai:incliva.fundanetsuite.com:p185242026-06-07T16:35:31Z
dc.title.none.fl_str_mv Family bonds and personal factors in caregiver burden in patients at the end of life
title Family bonds and personal factors in caregiver burden in patients at the end of life
spellingShingle Family bonds and personal factors in caregiver burden in patients at the end of life
Ribera-Asensi, O
caregiver burden
emotional and physical burden
end of life
title_short Family bonds and personal factors in caregiver burden in patients at the end of life
title_full Family bonds and personal factors in caregiver burden in patients at the end of life
title_fullStr Family bonds and personal factors in caregiver burden in patients at the end of life
title_full_unstemmed Family bonds and personal factors in caregiver burden in patients at the end of life
title_sort Family bonds and personal factors in caregiver burden in patients at the end of life
dc.creator.none.fl_str_mv Ribera-Asensi, O
Pérez-Marín, M
Valero-Moreno, S
author Ribera-Asensi, O
author_facet Ribera-Asensi, O
Pérez-Marín, M
Valero-Moreno, S
author_role author
author2 Pérez-Marín, M
Valero-Moreno, S
author2_role author
author
dc.subject.none.fl_str_mv caregiver burden
emotional and physical burden
end of life
topic caregiver burden
emotional and physical burden
end of life
description Family caregivers are defined as those who assume substantial responsibilities for the care of an ill loved one without formal health care training. This study aims to analyze the predictors of physical and emotional burden in caregivers of palliative patients using qualitative comparative analysis methodologies (QCA) and taking into account patient and caregiver personal and relational variables. A total of 125 caregivers of patients at the end of life were assessed using an ad hoc emotional and physical burden questionnaire and patient and caregiver personal and relational variables were recorded. Results indicate moderately high levels of both emotional and physical burden. Differences in burden are found only as a function of kinship. Emotional burden is positively associated with the use of physical health medication in the caregiver and kinship; meanwhile, physical burden is positively associated with time since diagnosis, patient functional independence, and economic problems. For the QCA models, several pathways predict the observed variance in the emotional and physical burden of family caregivers of patients at the end of life, based on patient, caregiver, and relationship variables. In conclusion, it is relevant to design intervention programs focused on patient-caregiver relationship to prevent the development of emotional and physical burden.
publishDate 2024
dc.date.none.fl_str_mv 2024
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://incliva.portalinvestigacion.com/publicaciones/18524
url https://incliva.portalinvestigacion.com/publicaciones/18524
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv WILEY
publisher.none.fl_str_mv WILEY
dc.source.none.fl_str_mv FAMILY PROCESS
ISSN: 00147370
ISSNe: 15455300
reponame:r-INCLIVA. Repositorio Institucional de Producción Científica de INCLIVA
instname:INCLIVA
instname_str INCLIVA
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repository.mail.fl_str_mv
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score 15,812429

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