Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus

Objective To agree on important domains for the Outcome Measures in Rheumatology (OMERACT) core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition (CPPD) disease. Methods Patient research partners (PRPs) and other participants (mainly clinicians and researcher...

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Authors: Zhang, YL, Tedeschi, SK, Abhishek, A, Hensey, O, Grossberg, D, Cai, K, Shea, B, Singh, JA, Christensen, R, Serban, T, Cipolletta, E, Parperis, K, Diaz-Torne, C, Mccarthy, GM, Becce, F, Gheita, TA, Sirotti, S, Christiansen, SN, Coronel, L, Stamp, LK, Abdel-Fattah, YH, Pascart, T, Filippou, G, Hong, LE, Fitzgerald, J, Dalbeth, N
Format: article
Status:Published version
Publication Date:2025
Country:España
Institution:Institut d’Investigació Biomèdica Sant Pau (IIB Sant Pau)
Repository:r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
OAI Identifier:oai:iibsantpau.fundanetsuite.com:p19503
Online Access:https://iibsantpau.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=19503
Access Level:Open access
Keyword:OMERACT
Calcium pyrophosphate deposition disease
Delphi
Domain
Core domain set
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spelling Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensusZhang, YLTedeschi, SKAbhishek, AHensey, OGrossberg, DCai, KShea, BSingh, JAChristensen, RSerban, TCipolletta, EParperis, KDiaz-Torne, CMccarthy, GMBecce, FGheita, TASirotti, SChristiansen, SNCoronel, LStamp, LKAbdel-Fattah, YHPascart, TFilippou, GHong, LEFitzgerald, JDalbeth, NOMERACTCalcium pyrophosphate deposition diseaseDelphiDomainCore domain setObjective To agree on important domains for the Outcome Measures in Rheumatology (OMERACT) core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition (CPPD) disease. Methods Patient research partners (PRPs) and other participants (mainly clinicians and researchers) contributed to three rounds of a consensus survey using Delphi methodology. Consensus was defined if >= 70% of both patients and other participants scored the domain as 'critically important domain to include'. In a subsequent ranking exercise, all participants were asked to select and rank up to 10 of the domains reaching consensus. Results Fifteen domains reached consensus as critically important. Within the Pathophysiological Manifestations area, these were joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, joint damage on imaging tests, joint calcification on imaging tests, and crystals in joint fluid. Within the Life Impact area, these were overall function, ability to complete daily tasks, ability to work, health related quality of life, patient global assessment response to treatment, patient global assessment of disease activity, physician global assessment of disease activity, and patient satisfaction with treatment. No domains within the Societal/Resource Use area reached consensus as critically important. In the ranking exercise, joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare and overall function were most highly ranked. Conclusion This work has identified potential domains for the OMERACT core domain set for chronic and/or recurrent manifestations of CPPD disease. There was strong support for joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, overall function, and global assessments of disease activity as core domains.W B SAUNDERS CO-ELSEVIER INC2025info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionhttps://iibsantpau.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=19503SEMINARS IN ARTHRITIS AND RHEUMATISMISSN: 00490172ISSNe: 1532866Xreponame:r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pauinstname:Institut d’Investigació Biomèdica Sant Pau (IIB Sant Pau)Inglésinfo:eu-repo/semantics/openAccessoai:iibsantpau.fundanetsuite.com:p195032026-06-14T12:41:47Z
dc.title.none.fl_str_mv Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
title Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
spellingShingle Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
Zhang, YL
OMERACT
Calcium pyrophosphate deposition disease
Delphi
Domain
Core domain set
title_short Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
title_full Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
title_fullStr Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
title_full_unstemmed Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
title_sort Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus
dc.creator.none.fl_str_mv Zhang, YL
Tedeschi, SK
Abhishek, A
Hensey, O
Grossberg, D
Cai, K
Shea, B
Singh, JA
Christensen, R
Serban, T
Cipolletta, E
Parperis, K
Diaz-Torne, C
Mccarthy, GM
Becce, F
Gheita, TA
Sirotti, S
Christiansen, SN
Coronel, L
Stamp, LK
Abdel-Fattah, YH
Pascart, T
Filippou, G
Hong, LE
Fitzgerald, J
Dalbeth, N
author Zhang, YL
author_facet Zhang, YL
Tedeschi, SK
Abhishek, A
Hensey, O
Grossberg, D
Cai, K
Shea, B
Singh, JA
Christensen, R
Serban, T
Cipolletta, E
Parperis, K
Diaz-Torne, C
Mccarthy, GM
Becce, F
Gheita, TA
Sirotti, S
Christiansen, SN
Coronel, L
Stamp, LK
Abdel-Fattah, YH
Pascart, T
Filippou, G
Hong, LE
Fitzgerald, J
Dalbeth, N
author_role author
author2 Tedeschi, SK
Abhishek, A
Hensey, O
Grossberg, D
Cai, K
Shea, B
Singh, JA
Christensen, R
Serban, T
Cipolletta, E
Parperis, K
Diaz-Torne, C
Mccarthy, GM
Becce, F
Gheita, TA
Sirotti, S
Christiansen, SN
Coronel, L
Stamp, LK
Abdel-Fattah, YH
Pascart, T
Filippou, G
Hong, LE
Fitzgerald, J
Dalbeth, N
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
author
dc.subject.none.fl_str_mv OMERACT
Calcium pyrophosphate deposition disease
Delphi
Domain
Core domain set
topic OMERACT
Calcium pyrophosphate deposition disease
Delphi
Domain
Core domain set
description Objective To agree on important domains for the Outcome Measures in Rheumatology (OMERACT) core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition (CPPD) disease. Methods Patient research partners (PRPs) and other participants (mainly clinicians and researchers) contributed to three rounds of a consensus survey using Delphi methodology. Consensus was defined if >= 70% of both patients and other participants scored the domain as 'critically important domain to include'. In a subsequent ranking exercise, all participants were asked to select and rank up to 10 of the domains reaching consensus. Results Fifteen domains reached consensus as critically important. Within the Pathophysiological Manifestations area, these were joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, joint damage on imaging tests, joint calcification on imaging tests, and crystals in joint fluid. Within the Life Impact area, these were overall function, ability to complete daily tasks, ability to work, health related quality of life, patient global assessment response to treatment, patient global assessment of disease activity, physician global assessment of disease activity, and patient satisfaction with treatment. No domains within the Societal/Resource Use area reached consensus as critically important. In the ranking exercise, joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare and overall function were most highly ranked. Conclusion This work has identified potential domains for the OMERACT core domain set for chronic and/or recurrent manifestations of CPPD disease. There was strong support for joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, overall function, and global assessments of disease activity as core domains.
publishDate 2025
dc.date.none.fl_str_mv 2025
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.none.fl_str_mv https://iibsantpau.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=19503
url https://iibsantpau.fundanetsuite.com/Publicaciones/ProdCientif/PublicacionFrw.aspx?id=19503
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.rights.none.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv W B SAUNDERS CO-ELSEVIER INC
publisher.none.fl_str_mv W B SAUNDERS CO-ELSEVIER INC
dc.source.none.fl_str_mv SEMINARS IN ARTHRITIS AND RHEUMATISM
ISSN: 00490172
ISSNe: 1532866X
reponame:r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
instname:Institut d’Investigació Biomèdica Sant Pau (IIB Sant Pau)
instname_str Institut d’Investigació Biomèdica Sant Pau (IIB Sant Pau)
reponame_str r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
collection r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
repository.name.fl_str_mv
repository.mail.fl_str_mv
_version_ 1869410521669697536
score 15,812455

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