International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease

Objectives To validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD). Design Observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested. Setting The study took pla...

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Autores: Corchon, Silvia, Rodriguez-Blazquez, Carmen, Carvajal-Carrascal, Gloria, Fuentes-Ramirez, Alejandra, Ruiz De Ocenda, Manuel Ignacio, Caparros, Neus, Timonet-Andreu, Eva, Navarta Sánchez, María Victoria, Ambrosio, Leire
Tipo de recurso: artículo
Fecha de publicación:2021
País:España
Institución:Universidad Autónoma de Madrid
Repositorio:Biblos-e Archivo. Repositorio Institucional de la UAM
Idioma:inglés
OAI Identifier:oai:repositorio.uam.es:10486/701155
Acceso en línea:http://hdl.handle.net/10486/701155
https://dx.doi.org/10.1136/bmjopen-2020-039973
Access Level:acceso abierto
Palabra clave:adult pathology
chronic airways disease
quality in health care
Medicina
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spelling International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary diseaseCorchon, SilviaRodriguez-Blazquez, CarmenCarvajal-Carrascal, GloriaFuentes-Ramirez, AlejandraRuiz De Ocenda, Manuel IgnacioCaparros, NeusTimonet-Andreu, EvaNavarta Sánchez, María VictoriaAmbrosio, Leireadult pathologychronic airways diseasequality in health careMedicinaObjectives To validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD). Design Observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested. Setting The study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia. Participants The study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment. Results The LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach's alpha for the total score 0.92). Test-retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52-0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding signifi cantly different scores in patients grouped according to COPD severity levels. Conclusions This has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients' perspective, focused on providing holistic and comprehensive care to patients with COPDMinistry of Science, Innovation and University (FEDER/Ministerio de Ciencia, Innovacion y Universidades -Agencia Estatal de Investigacion)||Universidad de la SabanaBMJ Publishing Group LtdDepartamento de EnfermeríaFacultad de Medicina20212021-03-12research articlehttp://purl.org/coar/resource_type/c_2df8fbb1VoRhttp://purl.org/coar/version/c_970fb48d4fbd8a85info:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10486/701155https://dx.doi.org/10.1136/bmjopen-2020-039973reponame:Biblos-e Archivo. Repositorio Institucional de la UAMinstname:Universidad Autónoma de MadridInglésengopen accesshttp://purl.org/coar/access_right/c_abf2info:eu-repo/semantics/openAccessoai:repositorio.uam.es:10486/7011552026-06-23T12:46:27Z
dc.title.none.fl_str_mv International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
title International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
spellingShingle International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
Corchon, Silvia
adult pathology
chronic airways disease
quality in health care
Medicina
title_short International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
title_full International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
title_fullStr International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
title_full_unstemmed International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
title_sort International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
dc.creator.none.fl_str_mv Corchon, Silvia
Rodriguez-Blazquez, Carmen
Carvajal-Carrascal, Gloria
Fuentes-Ramirez, Alejandra
Ruiz De Ocenda, Manuel Ignacio
Caparros, Neus
Timonet-Andreu, Eva
Navarta Sánchez, María Victoria
Ambrosio, Leire
author Corchon, Silvia
author_facet Corchon, Silvia
Rodriguez-Blazquez, Carmen
Carvajal-Carrascal, Gloria
Fuentes-Ramirez, Alejandra
Ruiz De Ocenda, Manuel Ignacio
Caparros, Neus
Timonet-Andreu, Eva
Navarta Sánchez, María Victoria
Ambrosio, Leire
author_role author
author2 Rodriguez-Blazquez, Carmen
Carvajal-Carrascal, Gloria
Fuentes-Ramirez, Alejandra
Ruiz De Ocenda, Manuel Ignacio
Caparros, Neus
Timonet-Andreu, Eva
Navarta Sánchez, María Victoria
Ambrosio, Leire
author2_role author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Departamento de Enfermería
Facultad de Medicina
dc.subject.none.fl_str_mv adult pathology
chronic airways disease
quality in health care
Medicina
topic adult pathology
chronic airways disease
quality in health care
Medicina
description Objectives To validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD). Design Observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested. Setting The study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia. Participants The study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment. Results The LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach's alpha for the total score 0.92). Test-retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52-0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding signifi cantly different scores in patients grouped according to COPD severity levels. Conclusions This has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients' perspective, focused on providing holistic and comprehensive care to patients with COPD
publishDate 2021
dc.date.none.fl_str_mv 2021
2021-03-12
dc.type.none.fl_str_mv research article
http://purl.org/coar/resource_type/c_2df8fbb1
VoR
http://purl.org/coar/version/c_970fb48d4fbd8a85
dc.type.openaire.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.none.fl_str_mv http://hdl.handle.net/10486/701155
https://dx.doi.org/10.1136/bmjopen-2020-039973
url http://hdl.handle.net/10486/701155
https://dx.doi.org/10.1136/bmjopen-2020-039973
dc.language.none.fl_str_mv Inglés
eng
language_invalid_str_mv Inglés
language eng
dc.rights.none.fl_str_mv open access
http://purl.org/coar/access_right/c_abf2
dc.rights.openaire.fl_str_mv info:eu-repo/semantics/openAccess
rights_invalid_str_mv open access
http://purl.org/coar/access_right/c_abf2
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BMJ Publishing Group Ltd
publisher.none.fl_str_mv BMJ Publishing Group Ltd
dc.source.none.fl_str_mv reponame:Biblos-e Archivo. Repositorio Institucional de la UAM
instname:Universidad Autónoma de Madrid
instname_str Universidad Autónoma de Madrid
reponame_str Biblos-e Archivo. Repositorio Institucional de la UAM
collection Biblos-e Archivo. Repositorio Institucional de la UAM
repository.name.fl_str_mv
repository.mail.fl_str_mv
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