Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition

Abstract Background & aims Caregivers of children with chronic diseases included in a home enteral nutrition (HEN) programme are at risk of experiencing a feeling of burden, high level of anxiety and psychological distress. The aims of this study were: first, to examine the prevalence of symptom...

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Autores: Pedrón-Giner, Consuelo, Calderón Garrido, Caterina, Martinez-Costa, Cecilia, Borraz, Soraya, Gómez-López, Lilianne
Tipo de recurso: artículo
Estado:Versión aceptada para publicación
Fecha de publicación:2013
País:España
Institución:Universidad de Barcelona
Repositorio:Dipòsit Digital de la UB
OAI Identifier:oai:diposit.ub.edu:2445/68848
Acceso en línea:https://hdl.handle.net/2445/68848
Access Level:acceso abierto
Palabra clave:Infants discapacitats
Cuidadors
Ansietat
Depressió psíquica
Children with disabilities
Caregivers
Anxiety
Mental depression
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spelling Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutritionPedrón-Giner, ConsueloCalderón Garrido, CaterinaMartinez-Costa, CeciliaBorraz, SorayaGómez-López, LilianneInfants discapacitatsCuidadorsAnsietatDepressió psíquicaChildren with disabilitiesCaregiversAnxietyMental depressionAbstract Background & aims Caregivers of children with chronic diseases included in a home enteral nutrition (HEN) programme are at risk of experiencing a feeling of burden, high level of anxiety and psychological distress. The aims of this study were: first, to examine the prevalence of symptoms of anxiety-depression in caregivers of children with neurological diseases requiring HEN by gastrostomy tube (GT); second, to compare the characteristics of caregivers with high or low risk of exhibiting symptoms of anxiety-depression; and third, to investigate possible associations to child disease severity and nutrition support mode. Methods A cross-sectional observational study was performed in 58 caregivers of children (31 boys, aged 0.3-18 years) with neurological diseases and GT feeding. The characteristics of caregivers with high or low risk of presenting symptoms of anxiety-depression were compared regarding the following variables: socio-demographic characteristics, the primary caregiver's intrapsychic factors, anthropometric parameters of the child, length of HEN, type of nutrients delivered by GT and infusion regime. Results All primary caregivers were mothers. Fifty-three per cent of them showed high risk of exhibiting symptoms of anxiety-depression. Mothers with high or low risk of presenting symptoms of anxiety-depression were comparable in age and family socio-economic status. They were also similar in terms of age, anthropometric conditions and length of HEN in their children. No differences were found between the two groups of mothers according to the level of the child's motor function impairment, type of nutrients delivered by GT and infusion regime. Higher levels of psychological distress and perception of burden overload were found in mothers with high risk of exhibiting symptoms of anxiety-depression. Conclusions This study found a high prevalence of symptoms of anxiety-depression, perception of burden overload and psychological distress in caregivers of children with HEN. Thus, greater practical and emotional support is required for these families.John Wiley & Sons2013info:eu-repo/semantics/articleinfo:eu-repo/semantics/acceptedVersionapplication/pdfhttps://hdl.handle.net/2445/68848Articles publicats en revistes (Psicologia Clínica i Psicobiologia)reponame:Dipòsit Digital de la UBinstname:Universidad de BarcelonaInglésVersió postprint del document publicat a: http://dx.doi.org/10.1111/cch.12038Child Care Health and Development, 2013, vol. 40, num. 3, p. 389-397http://dx.doi.org/10.1111/cch.12038(c) John Wiley & Sons, 2013info:eu-repo/semantics/openAccessoai:diposit.ub.edu:2445/688482026-05-27T06:46:51Z
dc.title.none.fl_str_mv Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
title Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
spellingShingle Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
Pedrón-Giner, Consuelo
Infants discapacitats
Cuidadors
Ansietat
Depressió psíquica
Children with disabilities
Caregivers
Anxiety
Mental depression
title_short Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
title_full Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
title_fullStr Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
title_full_unstemmed Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
title_sort Factors predicting distress among parents/caregivers of children with neurological disease and home enteral nutrition
dc.creator.none.fl_str_mv Pedrón-Giner, Consuelo
Calderón Garrido, Caterina
Martinez-Costa, Cecilia
Borraz, Soraya
Gómez-López, Lilianne
author Pedrón-Giner, Consuelo
author_facet Pedrón-Giner, Consuelo
Calderón Garrido, Caterina
Martinez-Costa, Cecilia
Borraz, Soraya
Gómez-López, Lilianne
author_role author
author2 Calderón Garrido, Caterina
Martinez-Costa, Cecilia
Borraz, Soraya
Gómez-López, Lilianne
author2_role author
author
author
author
dc.subject.none.fl_str_mv Infants discapacitats
Cuidadors
Ansietat
Depressió psíquica
Children with disabilities
Caregivers
Anxiety
Mental depression
topic Infants discapacitats
Cuidadors
Ansietat
Depressió psíquica
Children with disabilities
Caregivers
Anxiety
Mental depression
description Abstract Background & aims Caregivers of children with chronic diseases included in a home enteral nutrition (HEN) programme are at risk of experiencing a feeling of burden, high level of anxiety and psychological distress. The aims of this study were: first, to examine the prevalence of symptoms of anxiety-depression in caregivers of children with neurological diseases requiring HEN by gastrostomy tube (GT); second, to compare the characteristics of caregivers with high or low risk of exhibiting symptoms of anxiety-depression; and third, to investigate possible associations to child disease severity and nutrition support mode. Methods A cross-sectional observational study was performed in 58 caregivers of children (31 boys, aged 0.3-18 years) with neurological diseases and GT feeding. The characteristics of caregivers with high or low risk of presenting symptoms of anxiety-depression were compared regarding the following variables: socio-demographic characteristics, the primary caregiver's intrapsychic factors, anthropometric parameters of the child, length of HEN, type of nutrients delivered by GT and infusion regime. Results All primary caregivers were mothers. Fifty-three per cent of them showed high risk of exhibiting symptoms of anxiety-depression. Mothers with high or low risk of presenting symptoms of anxiety-depression were comparable in age and family socio-economic status. They were also similar in terms of age, anthropometric conditions and length of HEN in their children. No differences were found between the two groups of mothers according to the level of the child's motor function impairment, type of nutrients delivered by GT and infusion regime. Higher levels of psychological distress and perception of burden overload were found in mothers with high risk of exhibiting symptoms of anxiety-depression. Conclusions This study found a high prevalence of symptoms of anxiety-depression, perception of burden overload and psychological distress in caregivers of children with HEN. Thus, greater practical and emotional support is required for these families.
publishDate 2013
dc.date.none.fl_str_mv 2013
dc.type.none.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/acceptedVersion
format article
status_str acceptedVersion
dc.identifier.none.fl_str_mv https://hdl.handle.net/2445/68848
url https://hdl.handle.net/2445/68848
dc.language.none.fl_str_mv Inglés
language_invalid_str_mv Inglés
dc.relation.none.fl_str_mv Versió postprint del document publicat a: http://dx.doi.org/10.1111/cch.12038
Child Care Health and Development, 2013, vol. 40, num. 3, p. 389-397
http://dx.doi.org/10.1111/cch.12038
dc.rights.none.fl_str_mv (c) John Wiley & Sons, 2013
info:eu-repo/semantics/openAccess
rights_invalid_str_mv (c) John Wiley & Sons, 2013
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv John Wiley & Sons
publisher.none.fl_str_mv John Wiley & Sons
dc.source.none.fl_str_mv Articles publicats en revistes (Psicologia Clínica i Psicobiologia)
reponame:Dipòsit Digital de la UB
instname:Universidad de Barcelona
instname_str Universidad de Barcelona
reponame_str Dipòsit Digital de la UB
collection Dipòsit Digital de la UB
repository.name.fl_str_mv
repository.mail.fl_str_mv
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score 15.301603

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