Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers
Aims To compare care recipient and caregiver perceptions of quality of life in patients (QoL-p) with Alzheimer"s disease (AD). To identify associated factors, and the concordances-discrepancies. Method Cross-sectional analytic study of 236 patients and their carers using the Quality of Life in...
| Autores: | , , , , |
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| Formato: | artículo |
| Estado: | Versión aceptada para publicación |
| Fecha de publicación: | 2009 |
| País: | España |
| Recursos: | Varias* (Consorci de Biblioteques Universitáries de Catalunya, Centre de Serveis Científics i Acadèmics de Catalunya) |
| Repositorio: | Recercat. Dipósit de la Recerca de Catalunya |
| OAI Identifier: | oai:recercat.cat:2445/59008 |
| Acesso em linha: | https://hdl.handle.net/2445/59008 |
| Access Level: | acceso abierto |
| Palavra-chave: | Malaltia d'Alzheimer Qualitat de vida Cuidadors Alzheimer's disease Quality of life Caregivers |
| Resumo: | Aims To compare care recipient and caregiver perceptions of quality of life in patients (QoL-p) with Alzheimer"s disease (AD). To identify associated factors, and the concordances-discrepancies. Method Cross-sectional analytic study of 236 patients and their carers using the Quality of Life in Alzheimer"s Disease(QoL-AD) scale, socio-demographic data and clinical examination. Results Patients scored the QoL-AD more favourably than did caregivers (34.4 vs 31.3, p<0.001). Cognitive deterioration did not affect the perception of QoL-AD (rho¼ 0.05, p¼0.394). The neuropsychiatric symptoms was associated with a negative perception of the QOL-AD in both patients (rho¼ 0.22, p<0.01) and caregivers (rho¼ 0.47, p<0.001). Greater functional autonomy was associated with a better perception of the QOL-AD in patients (rho¼0.17, p<0.01) and even more so in caregivers (rho¼0.56, p<0.001). In carers, burden (rho¼ 0.56, p<0.001) and mental health (rho¼0.31, p<0.001) were inversely associated with the QoL-AD. QoL-AD scores of both patients and caregivers were higher for men, married subjects, those who lived with their spouse and those living in their own home. When the carer was a spouse both patients and caregivers scored the QoL-AD higher than when the carer was a son or daughter (35.5 vs 33.4 and 33.7; 32.9 vs 30.5 and 27.7, p<0.001). Conclusions Patients have a better perception of QoL-p. Caregivers give a more negative evaluation of neuropsychiatric symptoms, but have a more positive view of functional autonomy. Carers who are spouses have a better perception of QoL-p than do carers who are sons or daughters. |
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