Strengthening the parental role

Introduction: The presence of family members during invasive procedures in neonatal and pediatric intensive care units is limited, despite its emotional benefits. Exploring parents' experiences in these contexts can help us move toward more family-centered models of care. Objective: (I) To expl...

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Detalles Bibliográficos
Autores: Ventura Expósito, Laia|||0000-0003-3414-9543, Zuriguel Pérez, Esperanza|||0000-0002-0622-8423, Corrionero Alegre, jesús, Arreciado Marañón, Antonia|||0000-0002-3360-1430
Tipo de recurso: artículo
Fecha de publicación:2026
País:España
Institución:Universitat Autònoma de Barcelona
Repositorio:Dipòsit Digital de Documents de la UAB
Idioma:inglés
OAI Identifier:oai:dnet:uabarcelona_::33d2cd8f683e802cc44c19079526d6bf
Acceso en línea:https://ddd.uab.cat/record/327813
https://dx.doi.org/urn:doi:10.1016/j.iccn.2025.104279
Access Level:acceso abierto
Palabra clave:Child care
Pediatrics
Family
Invasive procedures
Intensive care units
Descripción
Sumario:Introduction: The presence of family members during invasive procedures in neonatal and pediatric intensive care units is limited, despite its emotional benefits. Exploring parents' experiences in these contexts can help us move toward more family-centered models of care. Objective: (I) To explore the experiences of parents of pediatric and neonatal patients admitted to intensive care units regarding being present during invasive procedures; (II) Understand the needs, limitations, and suggestions for improvement expressed by parents regarding their presence during invasive procedures. Methods: Qualitative phenomenological study based on in-depth interviews with parents of pediatric patients admitted to an intensive care unit. The thematic analysis followed the approach of Braun and Clarke, and the COREQ guidelines were respected. Results: 22 parents participated in the study. Two major themes emerged from the analysis: (1) The influence of family presence during invasive procedures, and (2) Parents' needs. Participants viewed being present as essential to fulfilling their role as caregivers, providing comfort to their children, and strengthening emotional bonds. They endorsed being present, despite the emotional burden entailed. They identified the following key needs: receiving clear information, having emotional support, having the freedom to decide whether to be present, and having a private and safe environment. Conclusions: Parents view being present during procedures as a right and a way of exercising their parental role. It promotes the emotional well-being of the child and strengthens their relationship with professionals. Implications for Clinical Practice: The presence of family members should be encouraged through specific training for staff and support personnel. Safe environments must be created, and teams must foster a sensitive approach toward the active role of parents in caregiving.