Prediction of caregiver psychological distress in amyotrophic lateral sclerosis: A cross-sectional study.

Purpose/Objective: To propose a predictive model for caregivers’ psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex). Research...

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Detalles Bibliográficos
Autores: Privado Zamorano, Jesús, Sanchis Sanchis, Elena, Sancho Cantus, David, Cubero Plazas, Laura, Navarro Illana, Esther, de la Rubia Ortí, José Enrique
Tipo de recurso: artículo
Fecha de publicación:2024
País:España
Institución:Universidad Complutense de Madrid (UCM)
Repositorio:Docta Complutense
Idioma:inglés
OAI Identifier:oai:docta.ucm.es:20.500.14352/129243
Acceso en línea:https://hdl.handle.net/20.500.14352/129243
Access Level:acceso abierto
Palabra clave:Amyotrophic lateral sclerosis
Caregiver burden
Psychological
Stress
Psicología (Psicología)
61 Psicología
Descripción
Sumario:Purpose/Objective: To propose a predictive model for caregivers’ psychological distress (including anxiety, depression, and cognitive overload) based on different data gathered from amyotrophic lateral sclerosis (ALS) patients (cognitive level, psychological distress, type of ALS, and sex). Research Method/Design: A cross-sectional study with a sample of 51 ALS patients and their respective main carers. Various instruments were used such as the Beck Anxiety Inventory, ALS Depression Inventory-12, and the Edinburgh Cognitive and Behavioral ALS Screen, Zarit Burden Interview, Self-Rating Depression Scale, and Self-Rating Anxiety Scale for caregivers. Results: ALS type, sex, and cognition were predictive variables for caregiver distress, with the main explanatory variable being the distress of the patients themselves. Spinal ALS led to higher psychological distress in caregivers (β = .38), as did male patients with ALS and preserved cognition. Conclusions/Implications: The proposed confirmatory model demonstrates that patients’ psychological distress is the best predictor of psychological distress in their caregivers.

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